Participants are represented as either a Working Group member (WG1, WG2 …), Tasmania’s Primary Health Network employee (PHN1, PHN2 …), or external stakeholder (E1, E2 …), to ensure confidentiality.
Understanding and establishing the trial in Tasmania
The establishment of the trial was seen to be dependent on early decisions made by the Advisory Group, who, in their role as higher-level project governance representatives, played a key role as major decision makers throughout the Trial.
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…they [the Advisory Group] had an integral and fundamental role to play in the design of the trial. You know, identifying our target populations, where the trial was geographically situated, and in approving some of the initiatives. (PHN6)
Having host organisations already working in suicide prevention was thought to help with the establishment of Working Groups, through existing links to local communities, businesses, and service providers.
A voluntary and committed approach from Working Groups members, some bringing their own lived experience, was seen to support the establishment of the trial and provide motivation to overcome challenges, including bureaucratic/administrative burden.
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The Working Group members’ voluntary approach, their passion for their community to enable this to be established, to bear with the process and the bureaucracy and continue, it’s a big commitment. (WG4)
Establishing the trial was seen to take time and effort and require the people with the appropriate knowledge and skill sets to sit at the table, particularly when developing feasible action plans.
“…had to engage staff, in some instances, recruit staff, inform staff, and then those staff members and the key agencies were responsible for bringing the Working Groups together and designing their action plans… for the Working Groups themselves to say, you know, have we got the right people around the table and if not, who else needs to be here? (PHN6)
From an implementation perspective, the Working Group members were seen to be more motivated to engage when they understood the Trial aims and the purpose of their involvement. It was generally understood that the Trial was looking at novel approaches to reach at-risk groups and provide resources to build local community capacity:
There was also an understanding that the Trial would be an opportunity to explore how a systems-based approach could be applied, and the capacity communities have to influence these systems using the LifeSpan framework:
The following Working Group member, reported their understanding of Trial aims as using different approaches to reach specific population groups.
Working Group governance structures and processes
From establishment, the role of the PHN was seen as essential to supporting the Working Groups, as described by these participants from the PHN.
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There is a lot of bureaucratic hurdles that the working groups and the Coordinators had to jump over and the [PHN] Consultant could actually support the coordinator and the Host Organisation through that process. (PHN1)
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It was a lot of bureaucratic processes. You know, the action plans and reports and all of that and that we were able to provide that direct guidance around it. (PHN4)
Tasmania’s PHN acted as a “conduit of advice”, an access point or “connector” for information for the Working Group; for example, the partnership established with the Coroner’s office.
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The relationship that we built with the Coroner’s office, and, you know, for a Coroner’s office to offer an NGO access to some of the data they allowed us to access, you know, we had to prove to them that we could manage that data in a very sound and capable way…they may need organisations like a Primary Health Network or similar to enable, that kind of conduit of advice. (PHN5)
This following Working Group member described how the PHN provided flexibility around learning along the way and showed this throughout the Trial with constant reflection and quality improvements.
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[PHN] has been quite flexible in a lot of ways because I think, to be fair, they’ve been limping through a lot of these things as well. They’ve learned okay, by trial and error they found out this is working, or this isn’t. And a lot of the downs when things didn’t get off the ground…they’ve learned that, you know, these are some of our difficulties and they’ve been quite flexible with that as well. (WG2)
Whilst the Trial was understood as looking at the capacity of communities, the model itself was administered through Tasmania’s Primary Health Network and as described by the following participant, seen as embedded within the traditional health paradigm,
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The real purpose of it was to try and capture words on paper that can be shown to the health bureaucrats, you know, actually facilitate that whole thing from saying that this shouldn't be dominated by health model[s]. But on the same hand, you've got an organization which was [PHN], which is absolutely and utterly dominated by traditional health paradigms. (E1)
Working Group members believed additional flexibility is required with managing budgets and reconciling how funds were spent:
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In the initial stage things were quite highly directive, an unusual method…the level of hands-on by PHN has been…not one I would endorse going forward... (WG12)
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… it's been really time-consuming as well as non-user-friendly. (WG4)
The importance of transparency around funding processes was highlighted by participants. It was expressed that those processes should be streamlined with funds easily accessible, as they can impact activity selection and decision making.
Administrative processes were also considered overly burdensome, with levels of bureaucracy potentially impacting progress, highlighting a need to initial explore community literacy and capacity.
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It’s been quite restrictive, and I’ve seen the admin work that had to be done. There’s a lot of bureaucracy…we can see things that need to be done and we want to do them and we’re not able to do them…it’s not a lack of us wanting to, it’s a lack of resources being given and powers-that-be holding back, for whatever reason. (WG8)
It was, however, understood that many of these governance and administrative processes were driven by contractual obligations associated with participating in the Trial.
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This is part of a national trial. And that brings with it certain obligations and ways of working and accountability…we can’t just let money go out the door without knowing what it’s for, the evidence for it, how it’s going to be expended? (PHN6)
Working Group progress was influenced by locally available social and physical capital, with each group having a slightly different structure and membership composition, influencing activity selection and success.
Having grassroots community member involvement was seen as pivotal to Working Groups, recognising the contribution and experience of members already working in the community and a means to shift a top-down approach to bottom-up.
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…we’ve become more community-focused, so that the people who are now on the group were already working in the community, making those kinds of connections…it’s shifted from top-down to ground level where the work is really being done. (WG19)
The role of the coordinator was central to Trial site operations and successes, likened to a “relationship and management” role, the “anchor” connecting the trial with local community.
The inclusion of community members with lived experience in Working Groups was also acknowledged as a powerful enabler, bringing a different perspective and much-needed energy.
It was acknowledged that often Working Group membership was made up of people representing services as a requirement of their job roles, and that this may have affected the level of buy-in for these members.
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One of the things that I think was really missed in this trial as it was implemented here was actually picking up people who were genuine…Some of them had lived experience, some or everybody had some form of motivation to be involved… generally, they were picked up because they hold positions of some sort. (E1)
Given the nature of it being a trial, lack of role clarity and decision-making structures were described by Working Groups, manifesting as inactivity:
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All the Working Group meetings were just conversations, nothing really got done…We didn’t think we could make those decisions because it’d have to be a group decision, but then the group didn’t think that it was their responsibility to make those decisions. PHN didn’t want to make those decisions because they’re a funder...So I think it was conflicting…So we had all these rounds of non-conversations. (WG2)
Communication and engagement processes
Communication across the Trial site was impacted by different communication styles, and people interpreting things differently, tying in a need for clear Terms of Reference at program outset to guide expectations and responsibilities.
The Participatory Action Research process helped unpack the processes of the Trial, including the role of stakeholders and relationships needed.
It was perceived that the involvement and role of Trial site communities in the national Trial was not initially communicated in a clear or timely manner.
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Why was the mainland announced and [Trial site location] wasn't originally on there? And then we were later added. But it shouldn't have to come out like that. Why not be upfront? This is where we are, this is what we can do. This is what we definitely can't…Where if we just knew straight up this is why we're saying no to what we rather that you know where you stand, what you can work with and what's reasonable. (WG5)
Effective and timely communication was essential to community engagement and managing community expectations. As one WG member described:
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When it started off, the community engagement, there was a lot of work going on behind the scenes. I’ll be frank and say I don’t know that we have been on top of communicating our messages as we could to the community…when that happens after there’s been a launch in the expectations, people do need regular updates to see what’s happening. (WG12)
It was also highlighted that conversations between people not at the frontline of suicide prevention but across sectors, communities, Trial site locations and neighbouring communities were increased as a result of the Trial, highlighting those community members that are well placed to be community “gatekeepers”:
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I had an email conversation with [allied health professional] in [coastal town]…she says, “I see suicidal people all the time because of their chronic pain and how it impacts on their life”. I’m like, “What do you do with them?” and she’s like, “I don’t know. I just, like, let them talk”. And I’m like, “Do you know there’s suicide services who they can go and see for free?” And she’s like, “Oh, thank you”...so we’re not doing anything new but we’re just connecting. (WG1)
For the delivery of some activity types, i.e., training or education, being able to communicate in a way to engage at-risk groups was seen to depend on finding the “right” voice, someone relatable to the cohort, to connect with community members.
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… the recent activity with Doc Robinson, he’s not a professional speaker; he’s a dad. Talking about his boy…they [the audience] trusted [him] despite the roughness of the delivery… on their own level… the vast majority of us going out and speaking is not going to reach the people that we talk about as being unreachable. (WG19)
Reaching population groups
Participants from Working Groups described challenges in reaching at-risk groups, including geographical distances and finding alternative ways to reach the 65+ cohort, who may not use or frequently access emails or social media and still value direct communication via word of mouth as their main source of information.
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One of the barriers with such a widespread rural area … We have a community that…are an older population, so technology isn’t a way…[Host Organisation] uses the radio a lot... (WG25)
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…in our community, word of mouth seems to be the most effective. (WG4)
Face-to-face activities were the most commonly utilised activity type in the Trial when engaging the male cohort. Taking the training to the priority groups, for example, to their workplace, was suggested as a method to help overcome participation barriers.
Engaging senior-level representatives from workplaces with a large number of employees in the priority groups to sit on Working Groups was suggested, to help devise strategies that would increase participation of employees from those organisations.
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It would’ve been good to have had a HR man from a large workforce…it’s all well and good to say, “We’ll go out and target male workplaces”. Good luck getting the employer to release these people from their paid jobs…backfill…pay other people to come along to training. Like, it sounds good in theory but in practice… (WG1)
The LifeSpan model and activity development
Participant’s perceived LifeSpan to be a helpful starting point for Working Groups and activity focus and development, particularly where there was little experience with suicide prevention activity planning.
The model was also appreciated by participants for reflecting the broader areas of people’s lives which impact on suicide.
There was, however, concern across the Working Groups that LifeSpan does not include a postvention strategy as a means to reach those at risk after attempting suicide, as well as those bereaved by suicide who may be at higher risk themselves.
Participants mentioned that lack of information on how to adapt the framework and accommodate for differences in gender made it challenging for Working Groups to understand how to modify activities and overcome barriers to accessing at-risk groups.
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Gender was, for me, the missing ingredient…that’s also historically part of why we haven’t really been able to make big inroads on the numbers, because we’ve not had a gendered focus…programs and services that have been used, or funded in the past, such as Lifeline, tend to reach women better than they do men… we know 75% of suicide is in men. (E3)
Barriers to implementing the full model centred on its perceived complexity and Working Group members, including the following coordinator, expressed frustration with understanding how the framework should be utilised, particularly with those people who experience health literacy barriers.
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I’m coming from a grassroots level of community development. It was a huge barrier to include people with lived experience, people that have never worked in an office in looking at that model…it is extraordinarily difficult for people with low literacy. It’s dis-empowering and what you’re losing there is some really rough diamonds that have valuable input and linkages to those that are vulnerable. (WG4)
In implementing the Lifespan framework, it was highlighted that co-design with communities and utilising existing resources and relationships was seen as essential for community buy-in and deciding which strategies were to be implemented.
From a Primary Health Network perspective some strategies, such as those involving emergency and follow up care and using evidence-based treatment, were considered ambitious at the community-level, due to lack of capacity, networks, influence or resources.
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We’ve asked communities implementing the model to be able to have a significant influence in other areas, like emergency and follow-up care, treatment regimens and even improving safety and access to means…it would take a pretty strategic, well resourced, and capable leadership team to be able to do that…in a short time frame… (PHN6)
Participants highlighted the need for assistance from other organisations, such as Tasmania’s Primary Health Network, to address these strategies.
Population group-specific activities often centred on building community capacity and awareness, i.e., the “community engagement” strategy (see Figure 2) and were mainly delivered through a third party to those in gatekeeper roles, rather than the at-risk population themselves.
Effectiveness and sustainability of activities
Participants discussed the term “effectiveness”, and suggested viewing success along a continuum, and using this to measure outcomes other than suicide rates to reflect progress and what can be learned for future efforts.
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Every relationship that’s built, every effort that’s made to engage a service is progress. I think use “progress” rather than “success”… It’s just the continuum of what you were able to achieve, and then understanding the extent to which you were able to achieve what you set out to do…every failure really equals success because this is a trial, it’s teaching us something we can apply next time. (PHN6)
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The ultimate measure is the suicide rate, isn’t it?...there’s so much more you can measure, I mean just raising community awareness about how to talk safely and how to support people…getting a broader community to understand what the impacts of loneliness are…whole community awareness raising. (E2)
Another point of view provided by this participant, was that it was perceived as disconcerting that a primary focus of the Trial was on reducing suicides, but that demonstrating such a reduction likely would not be possible within the life of the Trial in Tasmania.
Inclusion of people with lived experience within Working Groups was regarded as instrumental in the successful implementation and sustainability of activities.
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Our lived experience group…a partnership that’s happened because of the trial…they have really strong stories to tell…it really makes a big difference because the trial may, or may not be there after June but they, the learnings that they have and the confidence that they have, would still be there. (WG2)
This approach was also utilised to reach priority populations and build the capacity of communities, particularly of interest to councils who work at this level.
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What I didn’t like was the sense that we were being pushed towards a particular part of the model…around the medical stuff within the hospital system… whereas if we were to work with our strengths as a council, we’d been working more towards the lived experience, towards more community capacity building part. (WG3)
While a focus on activity effectiveness and sustainability were seen as important, there was limited potential to ensure these within activity planning. This was particularly noted at the start of the Trial, with decisions often based on getting anything started, even just one-off activities. Partnerships, continued funding and people’s capacity to take ownership were regarded as important elements to sustaining project outcomes.
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A lot of those activities were just a one-off thing. But as we've gone on, we've built on some of those… It's been partnerships, and we're relying on each other to deliver both of our objectives. (WG2)
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Is it sustainable if someone takes ownership of it?...then try find an owner... (WG19)
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We’re up to our third event of working together and building those relationships with the Child and Family Centre, with us, with Mission, with the Church Group, with Rotary…that's going to be somewhat sustainable going forward, but again, that hinges on funding…those people have a lot of motivation to be involved and do things, but it's hard to do things when you’re penny-pinching. (WG1)
Also highlighted was a reflection on the importance of the need for low-cost, high-impact practices for sustainability, i.e., relationship building, using local services, and finding community “ownership” of activities.
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There was probably a conscious idea to work with and embed local services to … upskill, capacity build…and be involved in sustainability aspects, that’s what they’re trying to do. (WG12)
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They’re fairly simple strategies that don’t require a lot of money…build that level of sustainable relationships on the ground… (PHN2)
Sustainability was not always considered in activity planning, with sustainability considered more relevant as the Trial end became nearer.
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[Sustainability is] something that we've struggled with in the past because a lot of those activities were just a one-off thing. As we've gone on, I think we've built on some of those as well, as we've gone on. So it hasn't been a one-off. It's been partnerships and we're relying on each other to deliver both of our objectives. (WG2)
Through training and increased awareness, changes to organisational culture and practices were seen as having a legacy post-Trial, including within population-group specific organisations.
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…we’ve been able to train…to educate men in different workplaces… maybe that is an element that then is changing the work culture in those workplaces. (WG1)
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“They’re really starting to embed in their practice, as a [workplace], a lot of this work…this is going to continue beyond the pilot, regardless. (WG7)
The host organisation of each Working Group was seen as promoting activity sustainability, with the advantages of drawing on the resources and expertise of host organisations such as local councils.
It was evident from discussions with community members involved with the Trial that fatigue and despondence from being constantly exposed to suicide meant that any efforts, whether a trial or not, needed to consider lasting impacts for individuals involved, and the communities:
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These communities have built up a level of expectation…trials not continued or converted into more meaningful change, actually supported by dollars- that's three potential [trial site] areas that are going to feel let down, particularly the people that have really been engaged in the process… that's always an issue for trials, there's always risks from a design component, like there’s uncertainty about what's going to go ahead, you're at risk of losing people because of that... (E2)
Post-Trial, there was a sense that there was a government responsibility for ensuring information would be shared and that continued funding, and support for local communities to build on Trial learnings was important.
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The notion of a trial does suggest ideally that you're going to do something afterward…the 20 something sites around the country potentially all trialling different things…ideally those people should all come together and showcase what they've done, highlight the successes, share what didn't work, you know and sit and acknowledge what didn't work, be encouraged and share that stuff…we shouldn't be having a trial unless there's a recognition or an acknowledgment that we're going to then implement what has worked. Otherwise it just let's communities down. It breaks trust. (E3)