Data and Sample
Unit level data from the 76th (2018-2019) round of the National Sample Survey (NSS), conducted by the National Sample Survey Organization (NSSO), India, has been analyzed to address the objectives. NSS’s 76th round collecting data on drinking water, sanitation, hygiene, and housing conditions, and persons with disabilities. During the 15th round, NSSO attempted to collect information from July 1959 - June 1960 on the disability of visual, hearing, speech, and locomotor persons, followed by the 58th round from July-December 2002. Information on mental disability was added in the 58th round. The main objective of the 76th round on “survey of persons with disabilities” is to estimate incidence and prevalence of disability, cause of disability, age at onset of disability, facilities available to the persons with disability, difficulties faced by persons with disability in accessing the public building, public transport, arrangement of regular caregiver, out of pocket expense relating to disability, etc. Further, data was collected on various employment and unemployment particulars for household members with at least one disability. For each household member aged 12 to 59 years, information on vocational/technical training and its aspects was collected (NSSO Report, 2019).
The NSS is a national representative survey organized by NSSO; the NSSO is a population-based survey organization that collects data to facilitate the policymakers and researchers. NSS 76th round data has been used for this paper which covered 8992 village/urban blocks (5378 rural villages and 3614 urban blocks), 118,152 households (69.8% in rural and 30.2% in urban areas), enumerating 576,569 persons (402,589 rural and 173,980 urban). The present study based on youth contains 103,831 youths, out of which 12,951 youth have suffered from any disability. Seven disabilities were considered during the survey period: Locomotor, Visual, Hearing, Speech and language, Mental retardation/ intellectual disability, Mental illness, and other types of disability. For detailed methodology NSS, 76th Round (July- December 2018), report on persons with disabilities in India can be seen (NSS Report, 2019).
Sampling technique
For NSS 76th round survey, the Census 2011 population of villages was projected by applying reasonable growth rates and considered a sampling frame. A stratified two-stage sampling design has been used for the NSS 76th round survey. In the first stage, villages/urban blocks were chosen by Probability Proportional to Size with Replacement. In the second stage, Simple Random Sampling without replacement has been used to select households in both rural and urban areas. Stratified seven-second stage strata (SSS) has been used for listing households in the selected village/UFS Block/SU. First SSS was formed using the households having a person(s) with any of the eleven disabilities among cerebral palsy, dwarfism, haemophilia, multiple sclerosis, muscular dystrophy, acid attack victims, autism spectrum disorder, other chronic neurological conditions, Parkinson’s disease, sickle cell disease, and thalassemia (NSSO Report, 2019).
Definitions
- Working-age population- the age group 15-59 currently employed or seeking employment (NSSO Report, 2019).
- Living arrangement- The arrangement that existed for the household member regarding where and with whom they lived. This was decided based on Composition of the household in which the person with a disability is a member, Age of the household member and Marital status of the household member (NSSO Report, 2019).
- Household’s usual monthly consumer expenditure (UMCE) - This information was collected to classify the households into different UMPCE (Usual Monthly Per Capita Consumption Expenditure) classes. A Household’s usual monthly consumer expenditure is the total monetary value of all goods and services consumed on a domestic account with a monthly regularity. Unusual expenditures, such as expenditure on social ceremonies, capitation fee, hospitalization, etc., were excluded for deriving the usual monthly consumer expenditure of the household. However, expenditure on durable household goods was included, and monthly expenditure on durable goods was derived by apportioning the total expenditure made by the household on durable goods during the last 365 days (NSSO Report, 2019).
Outcome variable
The dependent variable is change or loss of work due to the onset of disability. The three categories of the dependent variable for the present study are loss of work, change of work, and no loss and change of work due to onset of disability.
Covariates
The socio-economic and demographic characteristics of respondents were used as independent variables. All of them were definite and prominent determinants of change or loss of work due to the onset of disability in India. We include the following variable as potential determinants in statistical analysis: sex (male and female), place of residence (rural and urban), religion (Hindu, Muslim, others), marital status (never married, currently married, (widowed/divorced/separated), an education level (illiterate, up to the middle, up to higher secondary, graduate and above), UMPCE (poorer, poor, middle, richer, richest) and region (north, northeast, west, south, east, central)
Statistical analysis
Univariate and bivariate analysis has been used to calculate the prevalence of disabled persons by selected background characteristics. Multinomial logistic regression has been used to assess the impact of the onset of disability on employment opportunities among the working-age population. Disability deprivation index has been calculated for states of India
The multinomial logistic regression technique facilitates eliciting the effect of several independent variables that may be quantitative, categorical or a mixture of two on the response variable with more than two categories. A brief presentation of the functional form of the multinomial logit model for the present study is as follows
Where P1 is the probability of changing of work, P2 denotes the probability of loss of work and P3 is the probability of no loss or change of work after the onset of disability. The reference category in the present model is no loss or change of work, and it may be noted that the three categories of work status due to onset of disability are mutually exclusive and exhaustive, k signifies the number of independent variables. The MCA table for the adjusted value of Pj’s is constructed by substituting the appropriate combination of ones, zeros, and mean values for the independent variables. The adjusted values are based on elicited parametric estimates for the complete model, including all independent variables simultaneously. Alternatively, all the independent variables are controlled at their mean value except the one whose effect is elicited at its particular level. When multiplied by a hundred, the elicited probabilities provide estimates of loss of work, change of work, and no loss or change of work amongst persons in the particular categories.
Deprivation index:
Disability Deprivation Index (DDI): This index was calculated by taking the average of four selected indicators: loss or change of work due to onset of disability, illiteracy, beggars, and difficulty in public transportation, all expressed as a percentage. The reason behind including loss or change of work and illiteracy is that in the developing countries, the disabled population has poor access to literacy and employment. People with disabilities have consistently described how barriers related to transportation affect their livings. (J. Field & M. Jette, 2007). The fourth indicator, “beggars,” is an essential occupational category as disabled beggars belong to poor and disadvantaged communities. Yet, they are virtually invisible in countries worldwide' policy agendas and are overlooked in advocacy efforts to improve opportunities for people with disabilities in general (Kaur & Van Brakel, 2002). The disability deprivation index has been calculated for only twenty-three states and UTs since others have a tiny sample. The methodology of computation of the composite index was adopted from the Human Development Report (HRD, 2015)
This methodology involves two steps.
In step 1, the computation of the dimension index for each of the indicators considered for the specific composite index is done using the following expression:
Where Vi is the actual value of the indicator, Vmin is the minimum, and Vmax is the maximum value percentage of the indicators in distribution.
In step 2, the computation of the composite index (CI) is done, assigning equal weights to each indicator included in the composite index as under:
Where Di is the dimension index, and N is the number of dimension indices included in the composite index. (Awasthi et al., 2017)