Participant demographics are summarized in Table 1. A total of 114 adults participated in the 10 focus groups conducted, which represent the following 5 community groups: Arabic, Nepali/Bhutanese, Somali/Somali Bantu, Central Africa/Swahili Speaking, Congolese/Swahili/Lingala Speaking. The ages of participants ranged from 20–66 years. Twenty participants identified as single parents. Qualitative results are presented below as four different themes.
Table 1
Ethnic Community Represented
|
Sex
|
Age Range
|
Totals
|
Female
|
Male
|
Arabic
|
12
|
1
|
29–66
|
13
|
Nepali/Bhutanese
|
13
|
4
|
27–45
|
17
|
Somali/Somali Bantu
|
26
|
0
|
25–56
|
26
|
Central Africa, Swahili Speaking
|
18
|
17
|
20–55
|
35
|
Congolese-Swahili/Lingala Speaking
|
10
|
13
|
N/A
|
23
|
Total
|
79
|
35
|
|
114
|
Theme 1: Access to culturally sensitive healthcare during the COVID-19 pandemic.
When attempting to contact health care providers, many interviewees expressed difficulties, including with appointment scheduling, as described by one participant, “I have a problem…calling the [health center], two or three months they never answered me.” One major barrier is that many members in the community have limited English proficiency, and interpretation services are often unavailable to aid in communication with doctors and pharmacists, as one person stated, “during this COVID times it is difficult and challenging to reach out to doctors and pharmacies by calling over the phones especially for people who have no English or limited English.” Many focus group members reported calling several times to try and set up an appointment or be consulted on the next course of action if they needed testing or how to properly quarantine, but received no return calls, or would be transferred several times to make appointments or to follow-up on appointments that had been canceled due to the pandemic.
For example, as noted by a participant, “it was difficult to contact my doctor… I went there because there was [a] lot of misunderstanding as I was not able to contact… the hospital… I was totally confused what I should do… there wasn’t a response from the [health center]; I had left voice messages… 3 or 4 times a day but I did not get any reply. Finally, I went to the hospital… but they asked me to go back home and wait for them to contact me… it was a very difficult experience for me to contact the hospital.”
Participants discussed miscommunication between themselves and care providers; they also shared experiences where they made attempts to contact care providers who they felt were completely unresponsive, as expressed by one participant: “I didn’t know that the hospitals or clinics were closed so I tried to set up an appointment but… there was no response and they gave this number to call to schedule an appointment but there was no response so I didn’t end up setting up any appointment.” Poor communication has deterred community members from accessing care, as one person noted, “all three of us have not been able to contact our family doctor yet. I don’t know English and I don’t understand what they ask in English.”
This lack of timely communication caused interruptions in obtaining necessary prescriptions; such as one patient who was trying to refill a prescription for asthma, “I want a medicine from the doctor and I [had] been calling the hospital for a long time, at least a week, I wasn’t getting any answer.” The patient was informed by the hospital that they would contact the pharmacy to refill her prescription, but the patient was not contacted concerning the progress or process of refilling her prescription. During the focus group meeting, the interpreter for a participant stated, “she didn’t get a hold [of] the doctor so she went to the pharmacy… the pharmacist informed [her] she cannot get the refill until the doctor prescribed [it] for her… the pharmacy help[ed] her call the doctor… the doctor answer[ed]… ‘I cannot give you a refill because I haven’t seen you for… six months.’” This lack of timely communication caused the patient to experience considerable discomfort as a result of having asthma that went untreated, and inevitably, increased their risk for Covid-19. Community members shared that they continued to encounter barriers when attempting to contact health care professionals. Participants shared that there were sporadic interpretation services provided to patients when they were able to make an in-person appointments. Although, patients found more consistency with receiving guidance and language interpretation via interface programs such as Zoom, many participants expressed challenges with technology and with online platforms, as expressed by one participant:
“during the COVID-19 pandemic… the services are okay but it’s hard… with the Zoom or Telehealth services, I would rather have it in person… because it’s very challenging.”
Another participant agreed, “I wish they would allow at least… the kid and one guardian… go in person to do the checkup because through Zoom, how do I know if my child’s vision is good or like hearing well.” One participant expressed concerns with doctors not being able to treat her mother’s health issue properly over a Zoom call, “my mother-in-law had [a] throat problem, and when she tried to connect with [the] hospital, they just did Zoom… but how can you show your throat in Zoom?” In each focus group, there was an overwhelming concern that needs were not being met when communicating over Zoom, both because of technology barriers, especially for elderly or non-literate members of the community, and because patients did not feel that their symptoms and ailments could be fully expressed without an in-person meeting. One participant stated, “are the doctors going to see this report and see the recommendations that Zoom is not working, so would they stop using Zoom?” This sentiment was shared by another participant, “with Zoom it’s really hard for people in our community especially who don’t read or write. The instructions… how to do Zoom meetings or appointments… but it’s still hard to follow the instructions.” The English only availability of Zoom instructions further complicated this issue for participants. One participant summed up their feelings about using Zoom for healthcare:
“We don’t know anything about Zoom; we don’t know how to open the Zoom, how to use the Zoom; we know nothing about the Zoom. There can be many individuals who are like me who do not know anything about Zoom and how to use it.”
Theme 2: Quality of Health Services in Vermont and Partnerships with Immigrant and Refugee Communities.
All focus groups reported long wait times, whether they were being seen at a health care facility or at a Coronavirus testing center, as one person noted, “I felt very sick and… went to the emergency, and… stayed 4 hours without help. There [were] so many people in the waiting area, no masks.” This sentiment was echoed by another participant who stated, “I have a challenge at the hospital, waiting time, 3 to 4 hours.”
Focus group members did report positive experiences at the testing centers both with interpretation services and in obtaining help with filling out forms. An interpreter from one focus group offered, “the testing site… for them… was well done, [there] was an interpreter there.” Other focus group members praised the conduct of the testing sites, stating, “this is the best thing… making… testing sites available to everyone, with or without registration, it was very comfortable.” Also, one participant shared, “there’s an interpreter on site, so the interpreter helps us with filling out the forms.” For most Somali community members, the entire testing process was very successfully handled, as noted by a participant who stated, “For me going to the testing site I didn’t have any problem, I went there and there [was] a Translator that helped me with the application and testing.” Another Somali community member added: “I didn’t have any problem… everything was smooth… after four days [I had] a letter translated [in] Somali and English saying the testing was negative.”
The most significant issues presented were the amount of paperwork that needed to be filled-out for each family member for Covid-19 testing (many participants, as mentioned, have large multigenerational family units), together with limited English-language proficiency, added more challenges to the process, as noted by one participant, “there’s a lot of paperwork… like three-four forms. And I think it’s very difficult when you don’t speak English to fill all those forms.” Another participant stated, “I went to the testing site and… [it] was all in English… They should have someone there to translate but they didn’t have anyone there to translate.”
Some participants expressed a possibility that translation and interpretation services became less reliable later into the pandemic timeline, for example, one participant shared, “we had interpretation… from the beginning to the middle… I don’t know what happened [in the] last two months but before… they had interpretation.” While most reports on the testing centers were positive, some focus group members from the Nepali community had very negative experiences, as shared by a participant who stated that:
“I also went two times for the corona testing…interpreter was there, still we don’t understand a lot. I had a good experience the first time, but the second time, I felt that we were treated differently than the local American people…when they direct[ed] us to come this or that way, they did it in a disrespectful way, their disposition was bad…they did test…on me…also…not gently…blood came out of my nose…since then, I stopped going for the testing.”
Other Nepali participants expressed similar sentiments, as stated by one participant, “While testing, people bled sometimes… we fear that maybe they will hurt us more… and cause more infections. So, because of such fear, we did not go to the testing sites.” Another Nepali participant shared that, “People mistreated us, humiliated us and even at [the] hospital they would ask if we were corona positive before or not and if yes, they would ask ‘what did you do that time?”
Another obstacle was getting children to get tested as the swabbing process could be quite painful, as one participant noted, “we had to hold our daughter real tight and fight to do the test… when she was sick the second time… she did not want to go to see the doctor… she was impacted psychologically due to her COVID test experience.” For some families, the long line for Covid-19 testing was in itself a barrier, as one participant shared that “I’ve been to the testing site… a couple times-the first time was in the summer, it was very hot, and the line was very long… I couldn’t get tested that day because my kids were in the car and it was very hot that day.” Another participant shared that, “I never went to the testing site because the wait is long.” A participant who identifies as Congolese shared that “sometimes when they [have] symptoms, they want to get tested, they don’t know where to go. Even [if] they give them the address… they don’t know… that place.”
Some focus group members expressed challenges with how they were treated in seeking health care, and shared experiences of either not being able to get tested or being refused an in person visit because of unreasonable suspicion of acquiring Covid. As one Arabic speaking participant noted:
“I have to beg care providers… to… test me… they said I do not have high temperature and I did not have the regular COVID symptom[s], even the doctor was examining me without [a] mask… I begged them… To test but they were refusing, and after walking in at a testing site, I ended up being positive.”
An interpreter from the Somali focus group explained that one community member had issues with constant itching on her hand and simply wished to try a different topical cream to alleviate the itching. When she called to make an appointment with a doctor to update the prescription the following happened: “she said that I want to set an appointment and… the person who was… [on] the phone said… ‘I cannot make… an appointment because you sound like someone with COVID-19 and you cannot come here.” Although many community members reported positive experiences with the testing centers, and there were a few members of the focus group who stated that they were well cared for at their health care facilities, several reports suggest a lack of interpretation and quality care practices that leave community members with a poor impression of the kind of care they can expect to receive. This is discouraging, especially in the time of a pandemic when there is a great deal of uncertainty and anxiety surrounding health issues and weighing the risks of getting tested against the risk of infection by spending long hours at a health care facility.
Theme 3: Health Behaviors Surrounding the Pandemic, Causal Challenges and Vaccines
Although each focus group professed that there are a multitude of preexisting health conditions that increase risk of acquiring COVID within their communities, they mentioned high blood pressure, diabetes, heart conditions, asthma, allergies, cancer and especially irritable colon syndrome for the Arabic communities; asthma and diabetes was prevalent for the Congolese community, who also shared that HIV is a concern within their community.. Focus group members reported that high blood pressure continued to be a concern after the pandemic was in effect due to the stress and lack of exercise as many community members did, in fact acquire Coronavirus and had to self-quarantine, not leaving the house for work or physical activity, as one person shared, “I had tested COVID positive and also my mother-in-law was COVID positive… I was a new mom with just [a] one-month-old child when I was affected by Coronavirus. I was in [a] lot of stress.” Additional stress may have been a factor in personal health as many infected members had to quarantine in a house with non-infected family members, which made quarantining difficult.
Other community members reported mental health strains due to isolation, as one participant stated, “we were isolated in our house for more than 5 months; we are seeking therapy because no one asked about us and no one contacted us. No provider called us; no social worker checked us.” Another Arabic participant stated that due to the new living conditions in a pandemic, “I am using sanitizers all the time until I have allergy now. I have anxiety. Depression… media has [a] very big role in destroying our psychological condition hearing about death rate every minute in the news.” Although, many of the immigrant and refugee communities admitted high rates of COVID infection, many of them seemed to have a basic understanding of the vital precautions to take to stay safe during the pandemic, such as, “washing hand[s]… and sanitize the mask… observe the social distancing, because in our culture we are always close to each other.”
Many participants were most concerned for the elderly and children in their community, as one person noted, “for the adult, the prevention education is pretty clear… But for the elderly, it might be difficult, but it is especially harder for young kids… someone says… ‘you cannot give a hug…’ he wouldn’t listen.” Another member of the Burmese focus group agreed, stating, “it is really hard for younger children to follow social distancing… their masks are going down when they talk, and… we have to remind them ‘pull your mask up.” Another Burmese community member added, “with the younger kids, it’s really hard for them… they have to stay home and [can’t] play with friends… from their point of view, their stress level is very high and they are getting depressed at the same time.”
Community members worry that the isolation inside the home and lack of social time for their children is having serious effects on their mental health, as one person shared that “the issue of stress and depression is very present for the young people… they… always used to go out and play… but now… They are just in [the] house.” For the elderly, “because of COVID-19, my mom’s stress level is very high because she gets really scared… and she’s been staying home and… not been going outside.” Additionally, a participant stated that the “elderly got very scared and stressed when they heard they are the most vulnerable.” Many community members have had their physical activity, (a natural stress reliever), reduced greatly due to the pandemic.
Community members also experienced higher levels of stress and risk of mental disorders without their usual coping mechanisms to remedy these issues, as one participant noted that “to… play soccer… together that’s how we actually… talk and it’s… our own way of counseling each other.” Arabic community members expressed concerns for becoming obese due to their current living conditions, stating, “the problem is eating too much and gaining lots of weight… and this increased obesity.” Loss of work and income insecurity compounded an already stressful situation for many community members as well, as one person shared that “it was a challenging time for me too. I am a single mom; my two kids were sick; there was no job due to the pandemic; I pay rent by myself only… I had to apply for a food stamp.” Unsurprisingly, community members added that, “they are confused… too much fear… and a lot of stress because they are alone.” Community members also stated, “we are feeling very miserable. Because of the social isolation. We are almost getting crazy, not able to socialize with anyone.”
Theme 4: Vaccine Hesitancy
Concerning the Covid-19 vaccine, most community members were optimistic about taking it, stating, “many people are looking forward to it.” Other focus group members insisted that, “if the government can bring out vaccines for this virus and provide us as soon as possible, it would be great.” Another participant stated that, “I will take the vaccine if it becomes available,” a sentiment shared by another participant, “I will take it and give the vaccine to my family.” Of course, the majority of focus group members from all the communities asserted that they needed be sure that the vaccine was safe for use, and many inquired about possible side-effects, especially for persons with asthma or allergies, as stated, “I’m concerned for my children… for vaccine when they get it, can they get… side-effects… if someone has asthma, can they get the vaccine, or will it make it worse?” Understandably, community members experienced limited or confusing messaging concerning the vaccine, as one participant stated, “the media, they are contradicting each other about vaccines making some people sick… Are they going to work or make me sick? I am really worried and confused.” Another participant shared that, “I would love to have information about the vaccine before you take a shot because that vaccine could… make you sick or something.” The most resistant arguments against the validity of the vaccine came from the Congolese focus group, as one participant shared that “People… are not supposed to get the vaccine. They will take this vaccine only if they know that this vaccine cannot… change the DNA for people… most people are opposed to this vaccine… It is a problem of trust.” The interpreter for the focus group added, “they don’t trust the vaccine because they don’t know exactly if [it] is the right vaccine or not.” Although, most community members are hopeful that the vaccine will bring an end to the pandemic and the stress and isolation that come with it, others are hesitant to trust a vaccine because of fears of being targeted by institutions that have proven to act against underprivileged populations in the past.