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Titles: Caregiver's perspectives on facilitators and barriers of active participation in cerebral palsy rehabilitation in North West Nigeria: a qualitative study
Auwal Abdullahi
Corresponding Author
ORCiD: https://orcid.org/0000-0001-9214-3313
License:
This work is licensed under a CC BY 4.0 License. Read Full License
View the published version at BMC Health Services Research.
Background: Cerebral Palsy (CP) is a group of permanent disorders of movement and posture, attributed to non-progressive disturbance that occurred in the developing fetal or infant brain. The condition results in long-term disability in carrying out activities of daily living (ADL). Thus, active participation of caregivers in the rehabilitation of their children with CP is required. Objective: The aim of this study is to explore the facilitators and barriers of active participation of caregivers in the rehabilitation of children with CP in Kano, Nigeria.
Materials and Methods: The study design used was qualitative in-depth interview. The participants consisted of caregivers of children with CP attending Hasiya Bayero Paediatric Specialists Hospital, Kano. The caregivers were sampled and interviewed by one of the researchers until theoretical saturation was attained. Responses of the participants were audio-recorded with a tape recorder, supplemented with note taking. The data generated from the interview was then transcribed, coded and analyzed using matrix analysis, using constant comparative analysis.
Results: Forty caregivers with mean age, 27.17±4.46 years participated in the study. The results of the study showed factors that facilitate active participation of caregivers of children with CP in the rehabilitation of their children are improvement in the child’s condition, family support, improvement in the conditions of other children with CP, encouragement from the therapist managing the child, empathy, and cooperation of the child during home programs. The barriers identified are number of children the caregiver has, caregiver’s occupation and financial resources.
Conclusion: Therapists need to help reinforce these facilitators, and devise strategies to help caregivers overcome barriers during rehabilitation of children with CP. Economically sustainable and accessible rehabilitation services are needed for all children with CP. Similarly, sharing caregiving rehabilitation tasks amongst family members could facilitate caregiver active participation.
Keywords
Cerebral Palsy, Rehabilitation, Caregivers, Facilitators, Barriers
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Posted 20 May, 2020
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On 06 Jul, 2020
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Editor assigned
On 12 May, 2020
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On 11 May, 2020
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Editorial decision: Major revision
On 23 Apr, 2020
Review #4 received
Received 15 Apr, 2020
Review #3 received
Received 09 Apr, 2020
Reviewer #4 agreed
On 08 Apr, 2020
Reviewer #3 agreed
On 17 Dec, 2019
Review #2 received
Received 20 Nov, 2019
Review #1 received
Received 16 Nov, 2019
Reviewer #2 agreed
On 05 Nov, 2019
Reviewer #1 agreed
On 31 Oct, 2019
Reviewers invited
Invitations sent on 30 Oct, 2019
Editor assigned
On 14 Oct, 2019
Submission checks complete
On 13 Oct, 2019
Editor invited
On 13 Oct, 2019
No comments provided
Editorial decision: Major revision
On 17 Sep, 2019
Review #2 received
Received 27 Aug, 2019
Review #1 received
Received 27 Aug, 2019
Reviewer #2 agreed
On 13 Aug, 2019
Reviewer #1 agreed
On 13 Aug, 2019
Reviewers invited
Invitations sent on 05 Jul, 2019
Submission checks complete
On 03 Jul, 2019
Editor assigned
On 03 Jul, 2019
Editor invited
On 02 Jul, 2019
First submitted
On 22 Jun, 2019
Metrics
Comments: 0
PDF Downloads: ...
HTML Views: ...
Subject Areas
Physical Medicine & Rehab
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This preprint is under consideration at BMC Health Services Research. A preprint is a preliminary version of a manuscript that has not completed peer review at a journal. Research Square does not conduct peer review prior to posting preprints. The posting of a preprint on this server should not be interpreted as an endorsement of its validity or suitability for dissemination as established information or for guiding clinical practice.
Learn more about In Review
Research article
Titles: Caregiver's perspectives on facilitators and barriers of active participation in cerebral palsy rehabilitation in North West Nigeria: a qualitative study
Auwal Abdullahi
Corresponding Author
ORCiD: https://orcid.org/0000-0001-9214-3313
Badges
Prescreen
This manuscript passed our Prescreen assessment
Complete author information
Appropriate declaration statements
Potential risks to human health
Prescreen
Peer Review Timeline
CURRENT STATUS: Published
Version 3
Posted 20 May, 2020
Published
On 06 Jul, 2020
No community comments so far
Editor assigned
On 12 May, 2020
Submission checks complete
On 11 May, 2020
Editor invited
On 11 May, 2020
No comments provided
Editorial decision: Major revision
On 23 Apr, 2020
Review #4 received
Received 15 Apr, 2020
Review #3 received
Received 09 Apr, 2020
Reviewer #4 agreed
On 08 Apr, 2020
Reviewer #3 agreed
On 17 Dec, 2019
Review #2 received
Received 20 Nov, 2019
Review #1 received
Received 16 Nov, 2019
Reviewer #2 agreed
On 05 Nov, 2019
Reviewer #1 agreed
On 31 Oct, 2019
Reviewers invited
Invitations sent on 30 Oct, 2019
Editor assigned
On 14 Oct, 2019
Submission checks complete
On 13 Oct, 2019
Editor invited
On 13 Oct, 2019
No comments provided
Editorial decision: Major revision
On 17 Sep, 2019
Review #2 received
Received 27 Aug, 2019
Review #1 received
Received 27 Aug, 2019
Reviewer #2 agreed
On 13 Aug, 2019
Reviewer #1 agreed
On 13 Aug, 2019
Reviewers invited
Invitations sent on 05 Jul, 2019
Submission checks complete
On 03 Jul, 2019
Editor assigned
On 03 Jul, 2019
Editor invited
On 02 Jul, 2019
First submitted
On 22 Jun, 2019
Metrics
Comments: 0
PDF Downloads: ...
HTML Views: ...
Subject Areas
Physical Medicine & Rehab
License:
This work is licensed under a CC BY 4.0 License. Read Full License
View the published version at BMC Health Services Research.
Background: Cerebral Palsy (CP) is a group of permanent disorders of movement and posture, attributed to non-progressive disturbance that occurred in the developing fetal or infant brain. The condition results in long-term disability in carrying out activities of daily living (ADL). Thus, active participation of caregivers in the rehabilitation of their children with CP is required. Objective: The aim of this study is to explore the facilitators and barriers of active participation of caregivers in the rehabilitation of children with CP in Kano, Nigeria.
Materials and Methods: The study design used was qualitative in-depth interview. The participants consisted of caregivers of children with CP attending Hasiya Bayero Paediatric Specialists Hospital, Kano. The caregivers were sampled and interviewed by one of the researchers until theoretical saturation was attained. Responses of the participants were audio-recorded with a tape recorder, supplemented with note taking. The data generated from the interview was then transcribed, coded and analyzed using matrix analysis, using constant comparative analysis.
Results: Forty caregivers with mean age, 27.17±4.46 years participated in the study. The results of the study showed factors that facilitate active participation of caregivers of children with CP in the rehabilitation of their children are improvement in the child’s condition, family support, improvement in the conditions of other children with CP, encouragement from the therapist managing the child, empathy, and cooperation of the child during home programs. The barriers identified are number of children the caregiver has, caregiver’s occupation and financial resources.
Conclusion: Therapists need to help reinforce these facilitators, and devise strategies to help caregivers overcome barriers during rehabilitation of children with CP. Economically sustainable and accessible rehabilitation services are needed for all children with CP. Similarly, sharing caregiving rehabilitation tasks amongst family members could facilitate caregiver active participation.
Figure 1