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Research Article
Markus Saarijärvi
University of Gothenburg
Corresponding Author
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Background
During the past decade there has been some evaluation of transition programmes for adolescents with chronic conditions. However, this has rarely involved process evaluations focusing on mechanisms leading to outcomes, thus hampering implementation of these complex interventions. Our aim was to (I) describe adolescents’ and parents’ experiences of participating in a person-centred transition programme aiming to empower them in transition to adulthood and (II) explore the mechanisms of impact.
Methods
A qualitative process evaluation was performed, embedded in a randomized controlled trial evaluating the effectiveness of a transition programme for adolescents with congenital heart disease in Sweden. A purposive sample of 14 adolescents and 12 parents randomized to the intervention were interviewed after participation in the programme. Data were analysed deductively and inductively in NVivo v12.
Results
Experiences of participation in the transition programme were generally positive. Meeting a transition coordinator trained in person-centred care and adolescent health and embarking on an educational process based on the adolescents’ prerequisites in combination with peer support were considered key change mechanisms. However, support to parents was not delivered as intended, resulting in ambivalence about changing roles and the unmet needs off parents who required additional support.
Conclusions
Participants experienced increased empowerment in several dimensions of this construct, thus demonstrating that the transition programme was largely implemented as intended and the evidence-based behaviour-change techniques used proved effective in reaching the outcome. These findings can inform future implementation of transition programmes and illuminate challenges associated with delivering a complex intervention for adolescents with chronic conditions.
Keywords
Adolescent, Chronic disease, Parent, Process evaluation, Qualitative research, Randomized controlled trial, Transition of care
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No competing interests reported.
This is a list of supplementary files associated with this preprint. Click to download.
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CURRENT STATUS: Under Review
Version 1
Posted 24 Feb, 2021
No community comments so far
Editorial decision: Major revision
On 29 Mar, 2021
Reviews received
Received 25 Mar, 2021
Reviews received
Received 25 Mar, 2021
Reviewers agreed
On 03 Mar, 2021
Reviewers agreed
On 19 Feb, 2021
Reviewers invited
Invitations sent on 17 Feb, 2021
Editor assigned
On 17 Feb, 2021
Editor invited
On 17 Feb, 2021
Submission checks complete
On 17 Feb, 2021
First submitted
On 11 Feb, 2021
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A new preprint design is coming!
We have improved readability, clarity, accessibility, and opportunities for engagement.
This preprint is under consideration at BMC Health Services Research. A preprint is a preliminary version of a manuscript that has not completed peer review at a journal. Research Square does not conduct peer review prior to posting preprints. The posting of a preprint on this server should not be interpreted as an endorsement of its validity or suitability for dissemination as established information or for guiding clinical practice.
Learn more about In Review
Research Article
Markus Saarijärvi
University of Gothenburg
Corresponding Author
Badges
Prescreen
This manuscript passed our Prescreen assessment
Complete author information
Appropriate declaration statements
Potential risks to human health
Prescreen
Peer Review Timeline
CURRENT STATUS: Under Review
Version 1
Posted 24 Feb, 2021
No community comments so far
Editorial decision: Major revision
On 29 Mar, 2021
Reviews received
Received 25 Mar, 2021
Reviews received
Received 25 Mar, 2021
Reviewers agreed
On 03 Mar, 2021
Reviewers agreed
On 19 Feb, 2021
Reviewers invited
Invitations sent on 17 Feb, 2021
Editor assigned
On 17 Feb, 2021
Editor invited
On 17 Feb, 2021
Submission checks complete
On 17 Feb, 2021
First submitted
On 11 Feb, 2021
Metrics
Comments: 0
PDF Downloads: ...
HTML Views: ...
License:
This work is licensed under a CC BY 4.0 License. Read Full License
Background
During the past decade there has been some evaluation of transition programmes for adolescents with chronic conditions. However, this has rarely involved process evaluations focusing on mechanisms leading to outcomes, thus hampering implementation of these complex interventions. Our aim was to (I) describe adolescents’ and parents’ experiences of participating in a person-centred transition programme aiming to empower them in transition to adulthood and (II) explore the mechanisms of impact.
Methods
A qualitative process evaluation was performed, embedded in a randomized controlled trial evaluating the effectiveness of a transition programme for adolescents with congenital heart disease in Sweden. A purposive sample of 14 adolescents and 12 parents randomized to the intervention were interviewed after participation in the programme. Data were analysed deductively and inductively in NVivo v12.
Results
Experiences of participation in the transition programme were generally positive. Meeting a transition coordinator trained in person-centred care and adolescent health and embarking on an educational process based on the adolescents’ prerequisites in combination with peer support were considered key change mechanisms. However, support to parents was not delivered as intended, resulting in ambivalence about changing roles and the unmet needs off parents who required additional support.
Conclusions
Participants experienced increased empowerment in several dimensions of this construct, thus demonstrating that the transition programme was largely implemented as intended and the evidence-based behaviour-change techniques used proved effective in reaching the outcome. These findings can inform future implementation of transition programmes and illuminate challenges associated with delivering a complex intervention for adolescents with chronic conditions.
Figure 1
Figure 2
Figure 3
No competing interests reported.
This is a list of supplementary files associated with this preprint. Click to download.
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