This preprint is under consideration at BMC Palliative Care. A preprint is a preliminary version of a manuscript that has not completed peer review at a journal. Research Square does not conduct peer review prior to posting preprints. The posting of a preprint on this server should not be interpreted as an endorsement of its validity or suitability for dissemination as established information or for guiding clinical practice.
Learn more about In Review
Research Article
Henning Cuhls
University Hospital Bonn
Corresponding Author
License:
This work is licensed under a CC BY 4.0 License. Read Full License
Background
Improving the quality of life is one of the main objectives of palliative care. Biographical approaches are often used in combination with leaving a legacy in a range of different interventions such as Dignity Therapy or Life Review. This study presents an evaluation of audiobook biographies for palliative care patients with young children.
Methods
Young parents diagnosed with a life-limiting disease could participate and create an audiobook for their young children. The audiobook itself was recorded over several days and edited by qualified radio journalists. After providing informed consent participants were interviewed twice over the course of the intervention regarding expectations, concerns, motivation, and experiences. Interviews and notes were transcribed verbatim and were analyzed using content analysis.
Results
The data were collected from February 2017 till September 2020. Fifty-four patients with ninety-six children at a mean age of seven years were included and created an audiobook. The main theme of all interviews were the children. Within this field identified main topics were legacy, motivation, usage, benefit, aims, difficulties and worries in descending order. All patients would recommend the intervention.
Conclusion
Creating an audiobook as a legacy to their children seemed to help the diseased parents to cope with their limited life span.
Keywords
Palliative care, reminiscence, biography, bereaved children, legacy
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Peer Review Timeline
CURRENT STATUS: Under Review
Version 1
Posted 17 Mar, 2021
No community comments so far
Review #4 received
Received 22 Mar, 2021
Review #1 received
Received 22 Mar, 2021
Review #3 received
Received 22 Mar, 2021
Review #5 received
Received 22 Mar, 2021
Reviewer #5 agreed
On 19 Mar, 2021
Reviewer #1 agreed
On 19 Mar, 2021
Reviewer #2 agreed
On 19 Mar, 2021
Reviewer #4 agreed
On 19 Mar, 2021
Reviewer #6 agreed
On 19 Mar, 2021
Reviewers invited
Invitations sent on 15 Mar, 2021
Editor assigned
On 15 Mar, 2021
Editor invited
On 15 Mar, 2021
Submission checks complete
On 15 Mar, 2021
First submitted
On 02 Mar, 2021
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Subject Areas
Critical Care & Emergency Medicine
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This preprint is under consideration at BMC Palliative Care. A preprint is a preliminary version of a manuscript that has not completed peer review at a journal. Research Square does not conduct peer review prior to posting preprints. The posting of a preprint on this server should not be interpreted as an endorsement of its validity or suitability for dissemination as established information or for guiding clinical practice.
Learn more about In Review
Research Article
Henning Cuhls
University Hospital Bonn
Corresponding Author
Badges
Prescreen
This manuscript passed our Prescreen assessment
Complete author information
Appropriate declaration statements
Potential risks to human health
Prescreen
Peer Review Timeline
CURRENT STATUS: Under Review
Version 1
Posted 17 Mar, 2021
No community comments so far
Review #4 received
Received 22 Mar, 2021
Review #1 received
Received 22 Mar, 2021
Review #3 received
Received 22 Mar, 2021
Review #5 received
Received 22 Mar, 2021
Reviewer #5 agreed
On 19 Mar, 2021
Reviewer #1 agreed
On 19 Mar, 2021
Reviewer #2 agreed
On 19 Mar, 2021
Reviewer #4 agreed
On 19 Mar, 2021
Reviewer #6 agreed
On 19 Mar, 2021
Reviewers invited
Invitations sent on 15 Mar, 2021
Editor assigned
On 15 Mar, 2021
Editor invited
On 15 Mar, 2021
Submission checks complete
On 15 Mar, 2021
First submitted
On 02 Mar, 2021
Subject Areas
Critical Care & Emergency Medicine
License:
This work is licensed under a CC BY 4.0 License. Read Full License
Background
Improving the quality of life is one of the main objectives of palliative care. Biographical approaches are often used in combination with leaving a legacy in a range of different interventions such as Dignity Therapy or Life Review. This study presents an evaluation of audiobook biographies for palliative care patients with young children.
Methods
Young parents diagnosed with a life-limiting disease could participate and create an audiobook for their young children. The audiobook itself was recorded over several days and edited by qualified radio journalists. After providing informed consent participants were interviewed twice over the course of the intervention regarding expectations, concerns, motivation, and experiences. Interviews and notes were transcribed verbatim and were analyzed using content analysis.
Results
The data were collected from February 2017 till September 2020. Fifty-four patients with ninety-six children at a mean age of seven years were included and created an audiobook. The main theme of all interviews were the children. Within this field identified main topics were legacy, motivation, usage, benefit, aims, difficulties and worries in descending order. All patients would recommend the intervention.
Conclusion
Creating an audiobook as a legacy to their children seemed to help the diseased parents to cope with their limited life span.
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