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Background and Objective: The Dutch population is ageing, resulting in rising care demands and healthcare costs, which in turn led to a shift from formal to informal care. However, not only is the number of potential informal carers fastly decreasing, informal caregivers also experience higher caregiver burden. This literature review aimed at identifying the determinants of caregiver burden, to inform future interventions and foster informal care activities.
Research Design and Methods: A systematic review of peer-reviewed articles included in either PubMed, Scopus and/or PsychInfo has been conducted.
Results: 17 articles have been included. The most important predictors were the duration of caregiving and the dependency level of the patient, both in terms of physical dependency and mental dependency stemming from decreased cognitive capacity or behavioral problems. Some specific illnesses and role conflicts or captivity also increased burden, while social support lowered it. Being a female caregiver or having an adult-childrelationhip led to higher burden.
Discussion and Implications: Firstly, it is recommended that specific interventions are designed for carers most at risk and that they focus on increasing the patient’s physical and mental independency. Moreover, interventions need to be adapted to the illness trajectory of specific diseases and the adhering needs for social support of both the recipient and caregiver. Lastly, role expectations should be changed, leading to men being more involved. Future research could focus on determining causality, the concept of ‘time’ and the relevance of cultural expectations.
Keywords
Informal care, stress, antecedents, Adapted Stress Model
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Peer Review Timeline
CURRENT STATUS: Published
View the published article at BMC Geriatrics.
Version 1
Posted 30 Jul, 2019
No community comments so far
Editorial decision: Major revision
On 03 Feb, 2020
Review #2 received
Received 02 Feb, 2020
Review #3 received
Received 02 Jan, 2020
Reviewer #3 agreed
On 31 Dec, 2019
Reviewer #2 agreed
On 26 Dec, 2019
Review #1 received
Received 19 Nov, 2019
Reviewer #1 agreed
On 05 Nov, 2019
Reviewers invited
Invitations sent on 22 Aug, 2019
Submission checks complete
On 23 Jul, 2019
Editor assigned
On 15 Jul, 2019
Editor invited
On 14 Jul, 2019
First submitted
On 12 Jul, 2019
Metrics
Comments: 0
PDF Downloads: ...
HTML Views: ...
Subject Areas
Geriatrics & Gerontology
Learn more about our company.
A new preprint design is coming!
We have improved readability, clarity, accessibility, and opportunities for engagement.
See the published version of this preprint at BMC Geriatrics.
This is a preprint, a preliminary version of a manuscript that has not completed peer review at a journal. Research Square does not conduct peer review prior to posting preprints. The posting of a preprint on this server should not be interpreted as an endorsement of its validity or suitability for dissemination as established information or for guiding clinical practice.
Learn more about In Review
Research article
Badges
Prescreen
This manuscript passed our Prescreen assessment
Complete author information
Appropriate declaration statements
Potential risks to human health
Prescreen
Peer Review Timeline
CURRENT STATUS: Published
View the published article at BMC Geriatrics.
Version 1
Posted 30 Jul, 2019
No community comments so far
Editorial decision: Major revision
On 03 Feb, 2020
Review #2 received
Received 02 Feb, 2020
Review #3 received
Received 02 Jan, 2020
Reviewer #3 agreed
On 31 Dec, 2019
Reviewer #2 agreed
On 26 Dec, 2019
Review #1 received
Received 19 Nov, 2019
Reviewer #1 agreed
On 05 Nov, 2019
Reviewers invited
Invitations sent on 22 Aug, 2019
Submission checks complete
On 23 Jul, 2019
Editor assigned
On 15 Jul, 2019
Editor invited
On 14 Jul, 2019
First submitted
On 12 Jul, 2019
Metrics
Comments: 0
PDF Downloads: ...
HTML Views: ...
Subject Areas
Geriatrics & Gerontology
License:
This work is licensed under a CC BY 4.0 License. Read Full License
View the published article at BMC Geriatrics.
Background and Objective: The Dutch population is ageing, resulting in rising care demands and healthcare costs, which in turn led to a shift from formal to informal care. However, not only is the number of potential informal carers fastly decreasing, informal caregivers also experience higher caregiver burden. This literature review aimed at identifying the determinants of caregiver burden, to inform future interventions and foster informal care activities.
Research Design and Methods: A systematic review of peer-reviewed articles included in either PubMed, Scopus and/or PsychInfo has been conducted.
Results: 17 articles have been included. The most important predictors were the duration of caregiving and the dependency level of the patient, both in terms of physical dependency and mental dependency stemming from decreased cognitive capacity or behavioral problems. Some specific illnesses and role conflicts or captivity also increased burden, while social support lowered it. Being a female caregiver or having an adult-childrelationhip led to higher burden.
Discussion and Implications: Firstly, it is recommended that specific interventions are designed for carers most at risk and that they focus on increasing the patient’s physical and mental independency. Moreover, interventions need to be adapted to the illness trajectory of specific diseases and the adhering needs for social support of both the recipient and caregiver. Lastly, role expectations should be changed, leading to men being more involved. Future research could focus on determining causality, the concept of ‘time’ and the relevance of cultural expectations.
Figure 1
Figure 2
This is a list of supplementary files associated with this preprint. Click to download.
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