Participants:
In total, 62 participants took part in the pilot implementation. We displayed further specifications on the participants per phase of data collection in Table 3.
Table 3
Overview of participants per setting and phase of data collection.
Setting | Organisation | Occupation1 | Total number of participants2 n = 62 | Participants of registration (n = 46) | Survey participants (n = 44) | Focus group participants (n = 25) |
All settings | Team manager | 6 | 1 | 3 | 4 |
RN | 24 | 16 | 14 | 5 |
CNA | 11 | 12 | 10 | 7 |
NA | 2 | 2 | 1 | 1 |
RN Intern/student | 10 | 10 | 9 | 5 |
Personal support worker | 8 | 4 | 2 | 2 |
Home care | Team manager | 1 | 0 | 1 | 1 |
RN | 1 | 1 | 1 | 1 |
CNA | 1 | 1 | 1 | 1 |
NA | 1 | 1 | 1 | 1 |
RN Student/intern | 1 | 2 | 2 | 2 |
Acute and subacute care | Geriatric rehabilitation | Team manager | 1 | 0 | 0 | 1 |
RN | 4 | 4 | 4 | 1 |
CNA | 2 | 2 | 1 | 2 |
Stroke rehabilitation | Team manager | 1 | 0 | 0 | 0 |
RN | 5 | 0 | 5 | 0 |
RN student/intern | 3 | 3 | 3 | 3 |
Hospital care (mixed ward) | RN | 8 | 8 | 4 | 0 |
RN student/intern | 3 | 3 | 3 | 0 |
Long term care | Nursing Home 1 | Team manager | 1 | 1 | 1 | 1 |
RN | 1 | 1 | 0 | 1 |
CNA | 5 | 5 | 5 | 2 |
RN Student/intern | 1 | 1 | 1 | 0 |
Nursing Home 2 | Team manager | 1 | 0 | 1 | 1 |
RN | 4 | 1 | 4 | 1 |
CNA | 4 | 4 | 3 | 2 |
NA | 1 | 1 | 0 | 0 |
RN Student/intern | 2 | 2 | 0 | 0 |
Care for intellectually disabled adults | Team manager | 1 | 0 | 0 | 0 |
RN | 1 | 1 | 1 | 1 |
Personal support worker | 8 | 4 | 2 | 3 |
1 Registered Nurse (RN); Certified Nursing Assistant (CNA), Nurse assistant (NA) 2 The number of participants per data collection may overlap so these numbers are not a cumulative summation of the number of participants per point of data collection. |
[INSERT Table 3]
Weekly registrations:
During the three-week period, 46 participants applied in total 2565 KRs. The number of applied KRs varies widely, ranging from 111 to 393 times. Generally, the use of KRs varies significantly across all KRs. The KRs on involving care receivers in ADL related care choices were applied most often across care settings. Four out of the five most applied KRs were KRs on involving care receivers in ADL care, including working (1) towards an equal collaborative relationship (KR1: 619); (2) involving care receivers in care actions (KR8: 435); (3) Shared goal setting (KR5: 272); Shared care agreements (KR7: 264). Additionally, the KR on Function Focused Care (FFC) belonged to the top three of the most applied KRs (KR10: 273). Focus group sessions added information on how involving care receivers in ADL related care choices largely aligns with current norms, values, workflows, and organizational developments (see compatibility).
The KRs that were used the least are those on identifying the level of ADL independence using the Barthel Index (KR3: 66 [0–26]) and identifying the capacity of informal caregivers on supporting the care receiver in ADLs (KR6: 48 [0–18]). Focus group discussions revealed that ADL functioning is often not routinely assessed, especially in community or long-term care settings. In hospital or rehabilitation settings, Dutch health insurance requires periodic assessment of ADL functioning. Whereas community or long-term care organizations did not choose to assess and consequently did not provide either assessment forms or digital infrastructure. In some cases, the ADL assessment is taken over by other disciplines, e.g., occupational of physiotherapists. We presented an overview of the applied KRs within and across care settings in Table 4.
Table 4
Overview of registered use of KRs within and across care settings and organizations
Setting | Organization | N | | KR 1 care relationship | KR 2 subjectieve data | KR 3 objectieve data: Barthel index | KR 4 contextual data | KR 5 shared goal setting | KR 6 informal caregiver skills | KR 7 shared care agreements | KR 8 shared care actions | KR 9 bathing intervention | KR 10 function focused care | KR 11 informal caregiver support | Total |
All settings | All organizations | 42 | Total | 619 | 200 | 66 | 79 | 272 | 48 | 264 | 435 | 258 | 273 | 71 | 2565 |
% of total KRs used | 24,1 | 7,8 | 2,6 | 3,1 | 10,6 | 1,9 | 10,3 | 17,0 | 10,1 | 10,6 | 2,8 | 100 |
Home care | 5 | Total | 122 | 2 | 0 | 0 | 9 | 0 | 7 | 120 | 3 | 0 | 0 | 263 |
% of total KRs used | 46,4 | 0,8 | 0 | 0 | 3,4 | 0 | 2,7 | 45,6 | 1,1 | 0 | 0 | 100 |
Acute and subacute care | Hospital | 11 | Total | 57 | 27 | 14 | 26 | 60 | 13 | 56 | 55 | 32 | 50 | 3 | 393 |
% of total KRs used | 14,5 | 6,9 | 3,6 | 6,6 | 15,3 | 3,3 | 14,2 | 14 | 8,1 | 12,7 | 0,8 | 100 |
Neuro-rehabilitation | 3 | Total | 41 | 14 | 3 | 4 | 13 | 2 | 12 | 9 | 3 | 9 | 1 | 111 |
% of total KRs used | 36,9 | 12,6 | 2,7 | 3,6 | 11,7 | 1,8 | 10,8 | 8,1 | 2,7 | 8,1 | 0,9 | 100 |
Geriatric rehabilitation | 6 | Total | 55 | 28 | 22 | 8 | 40 | 6 | 40 | 45 | 20 | 20 | 0 | 284 |
% of total KRs used | 19,4 | 9,9 | 7,7 | 2,8 | 14,1 | 2,1 | 14,1 | 15,8 | 7 | 7 | 0 | 100 |
Long-term care | Nursing home 1 + 2 | 16 | Total | 186 | 46 | 26 | 30 | 49,0 | 18,0 | 52,0 | 167,0 | 43,0 | 42,0 | 21,0 | 577,0 |
% of total KRs used | 32,2 | 8,0 | 4,5 | 5,2 | 8,5 | 3,1 | 9,0 | 28,9 | 7,5 | 7,3 | 3,6 | 100,0 |
Care for intellectually disabled adults | 5 | Total | 82 | 17 | 0 | 1 | 5 | 0 | 12 | 45 | 42 | 30 | 0 | 234 |
% of total KRs used | 35 | 7,3 | 0 | 0,4 | 2,1 | 0 | 5,1 | 19,2 | 17,9 | 12,8 | 0 | 100 |
[INSERT Table 4]
Facilitating and impeding factors of KR use:
In our survey, we identified the factors influencing the use of KRs regarding the inner setting (i.e., the care organization or team), the innovation (i.e. the KRs), and the individuals (nursing professionals) applying the KRs. Overall, our results show that the majority of factors influencing the KR use are perceived as facilitating with 80.2% (n = 2259). More specifically, characteristics regarding the individuals were perceived as the most facilitating with 87.3% (n = 1235), followed by characteristics of the innovation with 81.6% (n = 659). Inner setting characteristics scored the least facilitating with 61.4% (n = 365). In the section below, we illustrate the results of the factors we surveyed, as well as the additional factors participants addressed in the focus group sessions.
[INSERT Table 5]
Characteristics of the inner setting:
General inner setting:
The constructs that stand out the most in the inner setting domain are the low tension for change and the high degree of compatibility. Tension for change appears to be most impeding since 63.2% (n = 24) of the participants do not feel the urgency for the ADL care situation to change, in contrast to the 15.8% (n = 6) who do. This result might align with the perceived high-level compatibility scored as the most facilitating with 81.7% (n = 165). The focus group sessions confirmed the impression of the KRs being close to the norms and values of person-centered ADL care. Participants express how the vision on care evolved towards person-centered care and in line with the KRs as the following nursing professionals explains:
“I also see a development in the care we provide. Because I've been working in healthcare since 1985. […] And I've noticed that in the past, as soon as you walked in the door of a nursing home, the control was within the nursing home, and as a resident or client, or whatever you want to call it, you had very little insight into what one could or could not do. Much more attention was paid to the structure of a ward, what fitted in. And now we have to look the other way around" [CNA, Nursing home care].
In terms of workflow, we see that depending on the KR, nursing professionals generally feel that the KRs are ‘not being anything new’ and in line with ‘what one does on a daily basis anyways.’ They were largely perceived to be in line with their daily work when it comes to involving the care receiver in ADL related care choices or stimulating independence in ADL care.
On a different note, focus group sessions revealed how, depending on the care setting, KRs were less compatible regarding assessing ADL functioning or involving informal caregivers in the actual care. Whether or not nursing professionals assess ADL functioning seems to depend on the organizational choice, especially in long-term care settings, where an ADL assessment is not a requirement from an insurance company, for example. Moreover, reporting subjective, objective, and contextual data depends on the structure of electronic patient dossiers (EPDs), which can differ per organization.
KR-specific inner setting characteristics:
We separately surveyed other constructs such as ‘time’ and ‘staff capacity’ as part of the inner setting for each KR. The responses showed that time was generally perceived as facilitating, with a score 67.3% (n = 136) across all KRs. KR8 was the only KR where time was perceived as more impeding, with a score of 21.7% (n = 5). The focus group sessions revealed a tension between the perception of involving caregivers in actions and encouraging autonomy, which takes more time. However, it could save time in the long term if colleagues act consistently, as this nursing professional explains:
“Well, I also think you need to be on the same page with colleagues. For example, if I ask a resident, who can still do a lot of things independently, to wash their face, I expect my colleagues to do the same the next day. Otherwise, you end up with a ‘wait-and-see attitude,’ like, hello, yesterday Johnny did everything for me and now you want me to wash my face. So you don't gain any time. But if you can get a resident to do it themselves, I think you can save some time” [CNA, Nursing Home care].
Staff capacity was generally perceived as less facilitating, with a score of 60.9% (n = 123), and was also addressed as a major issue in the focus group sessions. Issues raised by focus group participants mainly evolved around workload due to staff shortages that even have been exacerbated by COVID-19. One nursing professional expresses the hope of being able to change the way of ADL care when the team is complete again:
“We all have good ideas all in us, and we would like to change. But, right now we have four instead of eight colleagues. And we've all just had COVID. It's all not going the way we want, actually. So, at the moment, we can't do very much yet. But, I think when we will soon have the team complete again, we will find the turn well for certain things. Just keep going, and you'll get the good things out of it. But, you need a good team for that, indeed” [RN, Care for Adults with Intellectual Disabilities].
Characteristics of the innovation:
In our study, the characteristics of the innovation scored relatively high, with a total score of 81.6% (n = 695) facilitating. This result might create the impression that the innovation is generally well adaptable, not too complex, and an advantage over alternatives. However, focus group sessions revealed additional constructs related to the innovation, among which procedural clarity was highlighted. Despite the KRs’ procedural clarity generally being perceived as facilitating, hindering aspects included wording and sentence structures at some instances. Nursing professionals recognized the challenge of being complete and clear in the formulation of KRs while also being concise, as this nursing intern illustrates:
“In itself, I found what was written clearly understandable. Now it takes, say, so much time […]... So I can imagine, if it is perhaps even more concise ... We had also received a summary per KR, which is again a bit too concise, but somewhere in the middle, you can find some extra explanation, I can imagine. But in itself, how it was written down, I thought it was pretty clear” [RN intern, Neuro rehabilitation].
Additionally, based on the focus group data, we added the construct of completeness, which was especially perceived as hindering in KRs on interventions lacking a clear and complete description of the steps to be taken in order to be performed (KR9, 10).
"If this core task can provide calmness to the care receiver, then I think this is a good one to apply. Yet, I also find it difficult and would like to know more about it" [CNA, nursing home].
In terms of the design and packaging of the KRs, nursing professionals found perceived overlap of information in the KRs to be hindering. For example, overlap of information on involving care receivers in different steps of the nursing process came at the expense of readability.
"‘I also spent quite a long time reading it because a lot of things were similar. I don't know if you had that too, that there were repetitions, maybe in it, well, not really repetitions, but overlap, that key recommendation especially the first few, are quite similar.” [Community Nurse].
Moreover, the presentation of KRs did not allow all nursing professionals to locate the information they were looking for immediately.
Characteristics of the individual:
Nursing professionals generally attribute the most facilitating factors to their individual characteristics with a mean of 87.3% facilitating (n = 1235). Of all the individual characteristics we surveyed, the professional obligation was perceived as most facilitating with 93.6% (n = 189); (impeding: 1.5%, n = 3). Despite providing ADL care, including observing and documenting changes, is perceived as part of the profession, focus group results show that certain roles within the nursing profession perceive a different obligation towards certain KRs. Nursing professionals fulfilling additional roles in intake processes or supporting during a transition from home to nursing home adhering to KRs on identifying and monitoring ADL care needs contributes to the professional obligation. Additionally, the role of other disciplines was discussed in focus groups. Nursing professionals explained that occupational or physical therapists routinely assess ADL functioning or investigate the living environment. This limits the contribution from nursing professionals, as this nursing professional explains:
“Our occupational therapist does know the Barthel Index. But, she was also like, ‘Yes, that's my area, and you don't have to do anything with that’” [RN, Care for adults with intellectual disabilities].
In terms of personal benefits and drawbacks, results show that personal drawbacks were not perceived as an issue with a score of 92.6% (n = 187) facilitating (7.4%; n = 15). Personal benefit scores comparatively low with 69.3% (n = 140) facilitating (impeding: 30.7%; n = 62). However, the open-ended questions in the survey and focus group sessions indicate that nursing professionals report beneficial experiences on three levels: (1) the care relationship indicating that working towards a care relationship based on trust, respect, equality, and shared responsibility results in, for example, care receivers sharing their concerns and emotions more easily; (2) care delivery and working climate where nursing professionals experience their care as more person and goal-centered since they feel empowered in clinical reasoning when assessing ADL functioning and using these results to set goals. Regarding the working climate, nursing professionals report that when care receivers feel seen and heard in their ADL care needs, nursing professionals feel less stressed since they don’t have to engage in discussions with care receivers. Additionally, clear documentation results in clear care arrangements among nursing professionals, who can work consistently according to those arrangements. Nursing professionals also report benefits in their (3) Professional development, especially through mutual evaluation and reflection with care receivers on the provided care, leads to points of improvement for the professionals.
“The KRs contribute to my growth process in being a Certified Nursing Assistant is not taking over too much from the care receivers. My lesson is that autonomy is important for the client's self-esteem” [Nursing professional, Nursing Home Care].
Personal drawbacks were reported by some nursing professionals, indicating struggle with frustration or disappointments when they feel unable to address care receiver’s needs. Additionally, they mention that being too close a care receiver can limit the professional ‘objective’ view of the care receiver’s process.
Other characteristics of the individual addressed in the focus group sessions:
The cooperation of care receivers and informal caregivers was a construct that was added after the focus group sessions. This construct was generally perceived as facilitating, especially when applying KR1 and working towards improving the care relationship, or letting care receivers make their own ADL choices (KR 5, 7, 8). Participants perceive this to increase the level of cooperation of care receivers resulting in ‘smoother’ care delivery. A hindering aspect of the cooperation with care receivers or informal caregivers arises when generational gaps or attitudes clash with the care paradigm of younger care professionals who aim to encourage independence.
“But of course, there are different ages of employees. And some find it more difficult to say to an older resident: ‘Well, you'd better try it yourself.’ The resident then thinks, ‘Well, I'm not going to enter into that whole discussion, […] you young thing, you can't do that.’ […] they just outplay each other. And then they [the younger employees] think, I'm not going to have that whole discussion, I'll do it. Because then I'll be done faster” [Community Nurse].
Especially professionals working with intellectually disabled adults highlight that difficulties in collaboration with care receivers due to insecurity of care receivers and old traditions are a hindering factor:
“Well,[…] our residents have also never been […] asked: ‘What do you think is important?" We just had another client who just can't choose what color nail polish she wants because she was never asked, "What do you like?" From back home, huh. So, I think asking: ‘How do you want to be cared for?’ That's a question that goes all over them. I mean, I can ask: "Do you want to take a bath or do you want to shower?" They then sometimes say, ‘What would you do?’ […]” [RN, care for intellectually disabled adults].
Cooperating with informal caregivers was perceived as a delicate when aiming to involve them in ADL care (KRX). Nursing professionals reported a fine line between voluntary involvement and obligation. Nursing professionals appreciate the involvement, while not wanting to increase the burden of informal caregivers. In fact, ADL care by nursing professionals in home care, for example, was reported as a moment in which informal caregivers have time for themselves, as this nurse describes:
"However, many informal caregivers also choose to retreat the moment the nursing professional comes. They are then just happy, like okay, you can take over for a while, I can do something for myself, even if it's a cup of coffee or just take a shower, etc" [Community nurse].
Knowledge and beliefs of nursing professionals were perceived as a facilitating factor when their previous education was in line with the KRs, especially involving care receivers or stimulating independence. Additionally, the KRs helped nursing professionals realize the depth of ADL care and how it contributes to the personhood of the care receiver, as this CNA explains:
"I'm caring for persons with severe dementia, and then you quickly take control yourself. But just then, when I think about this, I see, "This care receiver has special body lotion or she likes to brush her teeth before or after something." […] I became much more aware that it has a lot more depth, and not just that person at that time and that time in this room" [CNA, nursing home care].
Hindering attitudes were mainly characterized by being ‘stuck in old patterns and routines’ and ‘less motivated’ to change their ways of providing ADL care.