COPE Project Description:
COPE is an academic-community partnership that began June 2021, with funding support through May 2024 via the Kansas Department of Health and Environment through CDC funds to address health disparities exacerbated by the COVID-19 pandemic (CDC-RFA-OT21-2103: National Initiative to Address COVID-19 Health Disparities Among Populations at High-Risk and Underserved, Including Racial and Ethnic Minority Populations and Rural Communities).20 This funding allows COPE to focus on the broad range of health disparities related to and exacerbated by COVID-19 and empower communities to identify their priority health equity foci. We grounded our approach in Human-Centered Design,21 which offers strategies to partner with community stakeholders, understand their experiences, and co-design interventions. By using this approach, we centralized the needs and priorities of populations experiencing health inequities focused on capacity building and co-creating equity-aware strategies.
The COPE project will significantly expand a novel approach to community engagement called Local Health Equity Action Teams (LHEATs), that was employed in a NIH COVID-19-related study in Kansas in 2020 (RADX-UP, UL1TR002366-04S3).22,23 LHEATs include representation from local health departments, community-based organizations, social service organizations, FQHCs, rural health clinics, and community residents with lived experience who have experienced barriers to health and can voice perspectives of historically resilient populations. We hope these efforts will result in diverse LHEAT membership that will include: racial and ethnic populations, people residing in urban, rural, and frontier geographies, people experiencing houselessness, people who are refugees, those who are uninsured, those of low-socioeconomic status, and lesbian, gay, bisexual, transgender and/or gender expansive, queer and/or questioning, intersex, asexual, and two-spirit (LGBTQIA2S+)24,25 individuals.
Given the critical role of community health workers (CHW) in addressing health equity and to ensure LHEATs will include members with dedicated time to support outreach and implementation, the project will employ a minimum of two to a maximum of three CHWs per county, based on population and staff availability. This will result in a workforce of more than 50 CHWs across the state.
COPE has four main objectives: 1) establish or grow LHEATs equipped to develop and implement strategies to enhance health equity in their county, 2) hire and train community health workers CHWs that will support LHEAT activities and address the needs of at-risk members of their community, 3) institute learning collaboratives to foster exchange of ideas across communities, and 4) engage in multilevel dissemination of COPE resources, health equity messages, and project outcomes (Fig. 1). The overarching goal for COPE is to build infrastructure for public health and future pandemic response that elevates community engagement to prevent disproportionate impact on historically resilient populations.
Project Setting
To balance engagement across the state, we will include five counties in each of four regions of the state (west, central, northeast, and southeast). Counties will be selected and prioritized using multiple criteria to determine which counties are experiencing the most significant health disparities. This includes using: the Kansas Public Health rankings, data from the Social Vulnerability Index and the Area Deprivation Index,26,27 rates of COVID-19 infection, testing and vaccination, and existing/emerging relationships developed with local community leaders and organizations (Fig. 2).
Project Support Structure
Several technical assistance teams will support the COPE project across Kansas. The LHEAT technical assistance team will be tasked with providing training and contributing ongoing technical support regarding strategies to address social impediments to health. The CHW technical assistance team will be tasked with hiring, onboarding, and training CHWs across the state and providing monthly performance-based feedback. The Communications team will be responsible for increasing project visibility, strengthening collaborative relationships, customizing the design of promotional materials for a range of populations, managing the project website, and disseminating project highlights. At the regional level, on-the-ground project managers called regional community leads (RCL), will be hired for each of the four regions. Each RCL will be selected for their experience with community engagement, geographic location, and ability to provide on-the-ground support and assistance to the five LHEATs and 10 to 15 CHWs in their region. RCLs will assist with LHEAT formation, CHW hiring, attend LHEAT meetings, and support strategic planning and problem-solving for their regional teams. Additionally, a cadre of primary care physicians, several of whom are county health officers, will aid in initial partnership formation between LHEATs, FQHCs, and public health departments across the state. They will also provide health information relevant to COVID-19 (e.g., case rates and vaccination information) and other health topics (e.g., Mpox, influenza, RSV, etc.) to LHEATs and CHWs. An evaluation team, composed of mixed methods scientists, will evaluate all aspects of the project.
Local Health Equity Action Teams (LHEATs)
LHEATs will design innovative strategies for addressing and removing impediments to health and wellbeing in their counties.28 The LHEAT model utilized in RADx-Up Kansas22,23 demonstrated promise in diverse urban and rural communities whose populations had some of the highest COVID-19 case rates across Kansas.22,23 Thus, LHEATs will be created and expanded with an intent of social inclusion (i.e. members will be strategically recruited to include those most impacted by social impediments to health and those working to address impediments). Although membership will vary by county, we will intentionally recruit individuals from the following key populations: People of Color, low-income, uninsured, rural residents, older adults (65+), individuals with disabilities, LGBTQIA2S+, multilingual, refugees, immigrants, and limited English proficiency. Those who are otherwise at-risk for COVID-19, such as those who work in close confines (e.g. meat processing plants) or have poor living conditions (e.g. Kansans who are unhoused) will also be populations of focus.28
One LHEAT member from each county will be designated the “LHEAT lead” to serve as the facilitator for the group. In addition to leadership and facilitation training, the LHEAT lead will receive training on upstream (systemic or chronic), downstream (immediate), and community power-building approaches 29,30 to assist with idea generation on addressing their communities’ needs. LHEAT leads will receive a monthly stipend of $500 to support their role.
LHEATs will be charged with balancing their membership among 1) community residents who will bring lived experiences to the project, 2) organizational representatives (e.g., social service agencies, local health departments, etc.), and 3) COPE community health workers (CHWs). To help remove barriers to participation, LHEAT members will receive a $40 gift card for each meeting they attend. Moreover, each LHEAT will have a budget of $50,000 to implement the strategies and activities upon which they collectively agree over the three-year period. LHEATs will utilize an action planning document (30-day action plan) that aids in identifying: 1) why their topic is a priority activity, 2) who are the intended beneficiaries, 3) what are the action steps necessary for implementation, 4) who will complete the action steps, 5) what are the expected outcomes/impacts, and 6) a draft budget.
Community Health Workers (CHWs)
COPE CHWs will be tasked with two primary functions — implementing LHEAT activities and facilitating access to health and social services to address unmet social needs for individuals and families in their county.31 Active, involved, and trusted community members will be sought after to fulfill the role of CHW. CHWs will build individual and community capacity by increasing health knowledge and self-sufficiency through outreach, community education, informal counseling, social support, and advocacy.31 For COPE, community members will be hired, trained, and credentialed as CHWs and integrated into community organizations, FQHCs, rural health clinics, and/or local health departments in each COPE county. Each county will be afforded up to three full-time CHWs, with the option to combine part- and full-time CHW positions. CHW training will include COPE-specific training focused on daily responsibilities and database training to access, enter, and review client and project data. Training focuses on the core competencies of the CHW role, will be provided by a state approved CHW training program, and will qualify them for certification by the state of Kansas. One CHW in each county will be trained as a supervisor to meet with their teams weekly to support team building, engage in conflict management, provide supervision, and clarify key metrics of COPE.
The CHWs will foster cross-sectoral partnerships, support public health initiatives, help clients access healthcare, and make referrals to social service organizations (e.g., housing, transportation, food). COPE CHWs will be expected to spend approximately 70% of their time in the community, in contrast to the more traditional placement of CHWs in clinics or organizations. CHWs will receive client referrals through partnerships they build in their counties, individual requests for assistance, and communication and educational materials. To capture COPE CHWs’ range of activities, we will develop a database to track the number and type of community partnerships created, outreach events or activities conducted, and number of clients enrolled and served.32
Learning Collaboratives
Learning collaboratives will be designed to build regional capacity, foster innovation, and promote problem solving. The LHEAT technical assistance team will support a monthly statewide learning collaborative for the 20 LHEAT leads to share their work and foster innovation and advocacy. During these meetings, LHEAT Leads will share their successes and challenges and seek assistance to troubleshoot barriers. Guest presenters will be invited to inspire continuous innovation in priority areas (e.g., linkage to care, transportation, affordable childcare services). The CHW technical assistance team will support a statewide learning collaborative for all CHWs every other month to share case management, lessons learned, and innovations to overcome common barriers. Additionally, RCLs will lead monthly regional learning collaboratives for the LHEAT Leads and CHWs in the five counties comprising each of their respective regions in the state: northeast, southeast, central, and west (Fig. 2).
Multilevel Communications and Dissemination
The COPE communications team aligns the design and dissemination of communication activities with the COPE objectives. Guided by an overarching strategy of cultivating and maintaining relationships with internal and external stakeholders, the team will provide support in four key tactical areas: website, e-newsletter, storytelling, and tailored communication support. The team will maintain a website33 that includes information about LHEATs, CHWs, and news/reports from COPE. A referral form with a quick response (QR) code will be consistently embedded in communication promotional materials, allowing potential clients to contact CHWs for assistance directly. The team will disseminate a monthly e-newsletter that highlights successes of LHEATs and CHWs in addressing community needs and will spotlight notable achievements from COPE partners (e.g., community- and faith-based organizations).
The communications team will also respond to requests from LHEATs and CHWs to design promotional materials for community events and aid in social media use. The team will create COPE-branded, county-specific Facebook pages, provide training on social media content creation and analytics for all LHEATs, and supplies public health information for LHEAT Facebook pages.
Evaluation
The COPE evaluation plan will be grounded in implementation science and will examine COPE processes, outcomes, and determinants of project success.34 Evaluation design, qualitative and quantitative data collection, analysis, and outcomes assessment are structured around the Consolidated Framework for Implementation Research (CFIR) and Reach, Effectiveness, Adoption, Implementation, and Maintenance (RE-AIM) models to examine contextual determinants of the implementation process and assess the impact of COPE project strategies and activities.34
The mixed methods evaluation design will be used to determine the extent to which the planned program activities are completed (process indicators), assess the extent to which these activities lead to expected short- and long- term outcomes (outcome measures), identify barriers and facilitators to achieving COPE objectives (qualitative implementation evaluation), and leverage the evaluation to drive continuous quality improvement (Table 1).
Process indicators and short- and long-term outcomes associated with each of the four COPE project objectives are detailed in Table 1. Process metrics to identify needs for ongoing quality improvement will be evaluated quarterly. Short-term outcomes for COPE include establishing LHEATs, hiring and training CHWs in each of the 20 COPE counties, initiating monthly learning collaboratives, and creating and leveraging communication outlets. Intermediate outcomes for COPE include: 1) increased awareness of community needs and available resources, 2) the creation of a directory of partners and services available in each county, and 3) CHWs building relationships with clinics and community-based organizations for continued referral services after COPE.
Long-term outcomes for COPE include: 1) strengthening the role of communities in the public health response to COVID-19 and addressing social needs, 2) reducing COVID-19 related health disparities and improving outcomes for historically resilient populations, and 3) improving statewide and local health capacity and services for COVID-19 prevention and control.
Table 1
COPE Project Process Indicators and Outcomes.
COPE Objective | Process Indicators | Short-term Outcomes | Long-term Outcomes |
LHEATs Identify strategies to promote health equity at the community level | -LHEATs established in each county with strategic and inclusive membership including historically resilient groups1,3 -LHEATs identify priority needs2,3,4 -LHEATs implement budgets to address priority needs2,3 -LHEATs partner with community orgs to address SDOH2,4 | -LHEAT activities address priority areas2,3,4 -Partner organizations engaged in efforts2,3,4 - Community needs and available resources are characterized2,4 -Improved access to COVID-19 vaccination and testing2,4 -Community events address priority community needs2 | - LHEATs are sustained after funding ceases. - Local and state health departments leverage the LHEAT to inform public health practice. - Increased capacity of LHEAT members to organize and impact health equity locally |
CHWs identify and address social determinants of health in their community | -CHWs hired, trained, and certified in each county4,5,8 -CHWs equipped to provide education and promotion on COVID-19 vaccination & testing4,5 -CHWs are prepared to engage historically resilient groups5 -CHWs are active members of their respective LHEATs2,3 | -CHWs work with clients to assess needs, set goals and work to achieve goals4 -CHWs develop referral relationships with clinics and organizations4 -CHWs identify resources and act as liaisons between organizations and clients4 -Improved access to COVID-19 vaccination and testing2,4 | -Reports generated on value of investing in CHWs -Influence policies regarding reimbursement of CHW services at the institution and state-level -Improved referral networks and access to resources for addressing SDoH needs -CHW positions are maintained beyond COPE funding |
Learning collaboratives foster exchange of ideas | - LHEAT leads and CHWs participate in monthly learning collaboratives6 - Regional teams (LHEATS & CHWs from 5 counties) participate in quarterly learning collaboratives | - Satisfaction and perceived value of learning collaboratives8,9 - Regional and cross-regional project collaboration2,4,9 - Enhanced training on time-sensitive topics6 | - Sustained regional and cross-regional collaborations to address social determinants of health |
Disseminate COPE engagement opportunities, progress, and outcomes at state, region, and county levels | - Training provided to LHEATs to build local communication capacity6 - COPE website, social media, and newsletter created and distributed7 | -LHEATs use social media pages to promote activities and public health messaging7 -Community partners included in regional and national presentations and publications7 - Community utilization of media produced2,7 | -Communities better able to craft public health messaging -COPE presentations and publications build the evidence base for sustainable investment in local health networking and empowerment - Increase in national support for community-based efforts |
1 LHEAT intake survey, 2 30-Day action plans, 3 LHEAT vital sign check-in, 4 COPE Database, 5 CHW demographics and training database, 6 Learning Collaborative records, 7 Dissemination indicators, 8 CHW surveys, 9 LHEAT surveys.
Data Sources for Process and Outcome Measures
Seven data sources will be used for process and outcome measures.
1. LHEAT intake surveys will be conducted at the time of onboarding to capture demographics, including social identities which have been historically excluded and marginalized beyond race/ethnicity. Members will indicate why they joined and what they hope to contribute.
2. 30-day action plans will document how each LHEAT focuses health equity efforts and implements strategies (events, programs, and/or advocacy for policy, practice, systems, and/or environmental changes). LHEATs will indicate in their 30-day action plans whether their activities were upstream (addressing conditions creating SDoH), downstream (easing the negative impact of inequitable conditions), and/or LHEAT power building (capacity and influence in the community) and submit a budget and justification for proposed costs.
3. LHEAT vital sign check-ins will include brief monthly surveys to be completed by each LHEAT lead to capture data on LHEAT activities, barriers, partnerships, membership status, meetings, and communications.
4. COPE database will be a secure, HIPAA-compliant, comprehensive, electronic, cloud-based application designed for the COPE project based on input from experienced CHWs. The database will capture CHW client information (demographics, needs, goals), organizational partners (contact information, location, services offered), referrals to and from CHWs, and events (location, purpose, intended beneficiaries, attendance). 32
5. CHW demographics and training database will capture data from employment and training records to collect the number of CHWs hired, content and amount of training completed, certification acquired, type and location of hosting organization.
6. Learning collaborative records will document attendance and topics addressed at the monthly state and regional learning collaborative meetings.
7. Dissemination indicators will include COPE website analytics (views and engaged sessions), monthly newsletter analytics, COPE and LHEAT Facebook metrics (reach, impressions, and engagements), number of promotional materials produced, number of digital stories produced and analytics (views), abstracts, and manuscripts.
Qualitative Evaluation
The COPE qualitative evaluation will be developed to identify barriers and facilitators to implementing COPE activities and attaining COPE objectives. We will conduct two rounds of interviews with CHWs, LHEAT leads, and LHEAT members. The first round will focus on early implementation and be conducted shortly after LHEAT formation. Round one interview questions will be guided by the CFIR model35 and focus on four CFIR domains (e.g., outer setting, inner setting, intervention characteristics, and process of implementation). Round two interviews will focus on impact and be conducted approximately six months before the end of the COPE project. Round two interview questions will be based on the RE-AIM model36 to probe the respondent's perceptions about COPE activities' reach, effectiveness, and future maintenance. In addition to COPE LHEAT members, representatives from partner organizations, and project staff will be interviewed during the second round to understand lessons learned during this project.