Norwegian Recovery Colleges
The Norwegian RCs we investigated aim to supplement existing services and treatment for people with substance use and mental health problems. They promote opportunities and the belief that people can live meaningful and satisfying lives, even with significant challenges in daily life. There are short sections on theory and individual reflection exercises, and dialogue in groups and plenary sessions is prominent. There is an educational approach, and service users enter new social roles as students. Illustrating pictures, videos, and poems is essential to evoke emotions, memories, and thoughts. One of the courses introduces concrete tools to build healthy relationships and create the desired community for each participant.
Two course leaders, one with a professional background and one with lived experience, run the course. Leaders from different backgrounds experience that they are equal in their position as leaders and that no one owns the course more than the other. They practice co-creation by securing both competencies at all stages, from planning and precautionary interviews to drifting lessons, and strive for an equal distribution of tasks. A culture of communication from one's daily life appears essential to stimulate co-creation. The exchange of expertise and ideas about challenges, life skills and contributions of both participants and leaders represents the knowledge and content of the course.
Table 3 is to be placed here
Table 3 Results concerning co-creation rituals and the interplay of structure and anti-structure
Promote equality and communitas
Leaders strive to establish communitas in the RCs, and this can be understood as an experience of community between a group of people when their lives together achieve an ordinary, mutual meaning [23]. They promote equality in the group by avoiding paternalistic attitudes. In one of the interviews, one of the leaders with lived experience explained: We have been very aware that we should not perceive a top-down philosophy. There should be a course group, and it should participate equally. Yes, we are a group. The statement indicates reciprocity between participants who initially had different roles, such as leaders, researchers, and other mental health service staff (see Table 3, Box 1). They help each other by participating equally, regardless of their position, and giving each other mutual advantages. It implies sharing experiences of one's life, feelings, and vulnerability, including personal values, goals, networks, and strengths and supporting each other. Leaders are prepared to participate and facilitate lessons in which they share their personal lives to promote equality and communitas. Participants who are accustomed to being in a role where they receive help now support other participants, including people with a professional background.
Sharing rituals are essential to achieve communitas, as demonstrated in the field notes.
On the first day, the leaders introduced us to the illustration pictures that would become a regular ritual. The leaders had placed cards with different motives on the table before the lesson and invited everyone to find a card that said something about who they were. I chose a picture of a beach with two wooden chairs facing the sea, representing my love for the ocean. One of the leaders chose a square to demonstrate that the person valued the structure. Other participants chose cards with monkeys embracing each other to illustrate their caring ability and a picture of nature to illustrate their interest in outdoor activities. The last participant chose an instrument that showed an interest in music and a great talent with which we later became familiar. Once everyone had chosen their card, the leaders invited the participants to share their thoughts. We ended up with a structured round where each participant, including the leaders, after a turn, shared their reflections on the card and allowed everyone to take a small part of their personal lives.
Leaders facilitated similar sharing rituals in the lessons by reading poems, showing movies, performing exercises, and inviting everyone to share their reflections. They alternated between making rounds where everyone shared their thoughts and having open discussions where those who wanted to say something participated.
Leaders also promote equality by giving everyone room and valuing experience as much as professional knowledge. Leaders encourage participation in the group by reaching out to participants and ensuring that their opinions are essential to the group. They highlight that the participant's inside is just as valid as what the leaders present. One of the leaders with a professional background explained:
The leaders do not have the correct answer when we go through the CHIME elements. It is the answer that comes from the group. I think it is also essential in practice that we believe the group has the process and the knowledge. We focus on their opinion, which is crucial for the group. (...). What hope is for my colleague differs from what hope is for me. When the group realises that their thoughts of hope are also important, it is easier for them to share. In a way, it defuses the sharing practice.
Sharing individual experiences and thoughts on a topic contributes to knowledge and learning. To encourage participation, they encouraged participants to share their experiences before leaders shared their thoughts. One of the leaders with a professional background shared: After seeing a film, we are not the first to share our feelings, experiences, and impressions. We sit back and want input and get them on track before sharing ours. In this way, the leaders show that the information of the participants is appreciated. In practice, we observed that the leaders alternated between waiting for participants' contributions and modelling, where they shared their own experience first, for example, to demonstrate an exercise. Sometimes, the leaders asked about the participants' thoughts and shared them if no one else did.
Volunteering appears essential in the course, whether participants want to share or not, and what they want to present is voluntary. The leaders felt that the participants were inspired by each other when they gradually shared their thoughts and that they had a positive influence on each other. One of the leaders with a professional background said: Eventually, people understood that it is nice to hear and be inspired by other people's thoughts when people share. There is an influence there, and we influence each other very positively. The quote shows the positive impact that sharing had on the group and each participant.
Continuous Assessments of What Leaders Share in a Liminal State
Leaders acknowledged that it would inhibit the co-creation process if professionals did not contribute when facilitating a culture of sharing. It forces them into a liminal state [18] of temporariness, vulnerability, and uncertainty, where they continuously need to assess what they share with the group (see Table 3, box 2). What leaders choose to share depends on the group's needs. One of the leaders with lived experience said:
I usually consider the group and how deep I can go when I share something. Sometimes, I can go much deeper because I see that someone is on the edge of sharing but is scared. Perhaps it lies in the integrated shame of childhood. Then, I can take my baggage deeper and say I have chosen to use this as a strength (…). In contrast, other times, I am barely below the surface and talk very generally about things if a group is not ready to accept them like that. You learn to read the group. I think there is a regulation of the group and the need, and then you balance the sharing accordingly.
Continuous assessments involve knowledge regarding shame that can cause participants to refuse to talk about their situation. When sharing, the leader can influence the participants to communicate by looking at their own stories in more detail. Some leaders with professional backgrounds emphasised sharing something meaningful so that other participants did not perceive problems as superficial and minimised their concerns.
What could be problematic (...). It is as if they [the participants] have the idea that we as professionals do not have a problem and if they portray my problems as simple. I shared some concerns about family life and children (...). Sometimes, I could be afraid that something would hurt them if they did not have children or if they did not have that situation or family. You do not want to come across as somehow perfect, either. (...) After all, there is something about the balance of not sharing the deepest of the deepest that you have not finished or processed yourself but also not sharing so easily that people think your life is so easy.
Leaders with lived experience favour the fact that the roles are different. One said that she had never experienced participants who perceived other people's challenges as superficial. Professionals who have traditionally hidden behind a façade show more of who they are as a person, which has a significant effect and contributes to acceptance in the group. In practice, Facebook requests and examples from professionals included in the other participants' contributions demonstrated their acceptance.
I have never seen anyone comment or appear to have perceived something as shallow or too small. I think the setting is that a professional used to be completely shut down and now shares and shows there is more to the façade. I think it has such a significant impact that there will be no measurement of how much you share the truth and what your life looks like.
In discussions about sharing goals that tend to differ from the lives of participants and the fear that participants experience that professionals are trying to rise above them, one of the leaders with a professional background said:
As you said, I cannot share that I want to be a professor.' There is something about our old professional point of view. They will not deal with the news that my good life is improving. However, everyone here can hear that my life is going well; I am rebuilding my house. None of them owns a home. He [one participant] could not pay for a bus ticket, and I am putting an extension on my house. It is a great contrast.
Leaders from both backgrounds emphasised that the most important thing was that the contributions were genuine based on their experiences.
Several avoided being too vulnerable and did not share personal stories or problems they had not processed. A leader with lived experience described this as distinguishing the private from the personal. Everyone must consider what is okay to share and what they want to keep to themselves. Despite the confidentiality that the participants agree to, one must assume the information will leak. Therefore, it is essential to decide what information to provide others.
It would help if you went through what you want to share (…). In other words, one has separated the personal, private, and what one only wants to have for oneself that one can only share with a few. One has found the balance (…) because you have the moral duty of confidentiality, but some things will continue anyway. Right? And then you are ready to hear it outside. Do not say anything that you do not want to hear back.
This leader shared on a somewhat superficial level, without too much detail about painful experiences. For example, she could share bullying experiences without telling details of the events. In this way, she avoided making herself too vulnerable.
I share, but I like to share superficially, not superficially, but how I have experienced things. However, I do not go into detail or share, making me very vulnerable. (…). For example, being bullied in an elementary school is not good. You are very insecure, and I have been insecure all my life. (…). I do not share anything more than that. I will not go into what has happened. Those who have experienced bullying know this. You do not have to go into detail. After all, it is recognisable to those who are supposed to recognise it.
Here, the leader provides information about her life without discussing trauma. A leader with a professional background described a challenging experience with a course in which several participants with comorbid disorders were competitive in sharing the worst experiences of their personal stories. Then, it became difficult for participants with more extraordinary functional abilities who chose to quit the course. As part of the liminal state, the leaders agreed not to induce the trauma of the participants and strove to highlight valuable strategies in their recovery process.
Experience of the past when it becomes a competition to share the worst. Then, others think, 'You know what, we do not bother.' Therefore, they do not share because they do not want to be part of that 'worst carousel.' It can be a problem for the sharing culture if the compositions are not good enough; then, you can get a dichotomy in the group that makes one part withdraw a bit.
This example shows that poor group composition can cause some participants to dominate sessions and others to become passive or drop out. The leaders highlighted other challenges, such as when someone chooses not to share or contribute to the course. Furthermore, the lack of volunteerism or participation under the experience of coercion from others was an inhibitor of co-creation and the culture of sharing.
Transmitting to a new position with a less prominent professional façade
Leaders with a professional background challenged their traditional role by promoting communitas and changing their understanding of their role in the liminal state. A professional façade is a high priority in ordinary mental health services, and leaders said that employees could experience being seen as unprofessional when sharing information from their own lives. Now, they grow into a new position where they share their experiences, feelings, and vulnerability, and the professional façade becomes less prominent (see Table 3, Box 3). One of the leaders with a professional background explained:
You have an experience that you should not share a piece of sh*t! We are professionals (…). Everything we say and do should be factual and sensible. When we share our personal feelings and thoughts, there is something that takes time to improve. Therefore, it is time, but it is something to feel that you get acceptance in the group and that it is also okay to feel, and then you get acceptance from the group. (...) You are human, too. You are not just a professional.
The leaders experienced through the liminal state that sharing led to great respect and acceptance from the participants. They emphasised that stories of their life experiences could normalise problems, make participants feel less alone with their issues, and give them a broader perspective. Seeing the relational gains of sharing and seeing that their contributions are helpful to people with substance use and mental health problems, leaders show positive attitudes and enthusiasm to be more open to service users outside of the RC. One of the leaders with a professional background shared how his professional role had changed.
I have a lower threshold to share. When they present their problem, I can share that I have the same or similar problem. It helps to normalise their situation. It is no longer as large, harmful or heavy. More people are struggling with it. I work with them, the healthiest in society. There is something about it: When you feel like a crisis, you come in, and someone tells you that what you are experiencing is entirely normal. Only your feelings have 'jumped on the bus' slightly. In addition, then, in a way, when they understand that this is within what is okay, they manage to regulate themselves. Then, life goes much better. Moreover, knowing that the guy sitting here is not necessarily the best parent in the world either, who thinks it is nice to give the iPad to the kid to get some extra time off on the weekends? Therefore, being able to share a little here lowers the threshold for daring to come here and accept that things can improve.
This quote from this leader indicates that whether and what one shares depends on the service recipient. The leader quoted above worked with well-functioning people who received a low-threshold offer from the municipality. Another participant with a professional background worked in a municipal service where users had comorbid disorders and poorer functioning abilities. Despite some difficulties, the person also saw gains from sharing:
I have some of the same experiences that I can share more. At the same time, I have the patient group, so you must consider who… I judge based on who I am talking to. However, I think you have something to gain from sharing, especially in relational terms. However, what I can share is very individual.
This quote indicates that despite their enthusiasm for what is happening in RCs, they still need to assess what they can share with service users of other mental health services and how to transfer what they have experienced and learned in RCs.