The person living in a consistently and significantly unclean and disorganised home is often referred to as suffering from Diogenes Syndrome (DS) or they are residing in Severe Domestic Squalor (SDS). Snowdon suggests that the term SDS should be used when “…a person’s home is so unclean, messy and unhygienic that people of similar culture and background would consider extensive clearing and cleaning to be essential.” (1). For the individual, squalor can lead to physical safety risks, difficulty accessing and receiving services and associated isolation (2) and a raft of associated physical health problems (3, 4). Furthermore, squalor creates significant problems for the individual’s family and their neighbours (5, 6). The evidence base for squalor is thin, as it tends to be too narrowly focused on adults over 65 years old (7–10), has small sample sizes, is over-reliant on cross-sectional methods (7, 10–12), rarely have a control group, uses case identification approaches that lack reliability and validity (7, 8, 10, 11) and creates data not pertinent to the focus of the study (11–14). This list of methodological concerns clearly limits understanding and generalisability.
Squalor research has also been too heavily focused on the characteristics of the individual, such as their mental and physical health, their cognitive profile and their awareness of their condition (15–17) and lacks information on the context in which the person lives. Unlike related conditions, such as self-neglect (SN) and Hoarding Disorder (HD), which have researched household and local factors such as deprivation, community profiles, risk of crime, social resources and household income (18–21), squalor has only considered rates of home ownership and living alone. The limited information that is available reports ownership rates between 39–59% (2, 9, 10, 13, 22), although one study reported a much lower rate of 5% (15). In addition, squalor individuals live alone on approximately 65–94% of occasions (2, 7–9, 11, 12, 14, 15, 22, 23), with Ito et al. (23) showing that lone living was significantly higher than in a non-squalor control group. The SN literature (I.e. 24,25), which includes, but is not limited to, people who live in squalor, contains a more comprehensive evidence base with regards household and context factors. Studies found that SN was linked to higher levels of deprivation (18, 26). Furthermore, income and SN have also been shown to be related, with SN more common when income is lower (19, 27–29), though other SN studies contradict these findings (30, 31). Living alone was identified as being significantly more common in individuals who SN (19, 32, 33) and this was also found in the related condition of HD (20, 34, 35).
An improved understanding of the local and household risk factors for squalor would support community services in identifying locations, dwellings and families that have an increased chance of deteriorating into squalid living. However, to effectively identify and support individuals in these circumstances requires an accurate understanding of the scale of the problem and reliable case identification. Unfortunately, the literature is lacking a reliable estimate of the prevalence of squalor due to poor case identification methods. The point, period and lifetime prevalence of squalor is therefore unknown. A different, but related estimate is the 'incidence rate’ which, like period prevalence, considers squalor cases over time, but only includes new cases (36). Incidence rates for squalor have been calculated (9, 10, 15, 37) and estimates range from 0.05–0.12% in adults over 60, or 65 years. Only one study considered the occurrence of squalor across all ages (15), reporting an incidence rate of 0.03%. However, these studies had high risk of bias as they calculated incidence, not prevalence, with estimates drawn as a ratio from the number of referred cases per year from a known population size. Therefore, as stated by Snowdon and Halliday (9), true prevalence estimates would likely be “substantially higher”.
The present study will provide the first point estimate of squalor based on adults across all ages and furthermore, will base its estimate on a sample in which all types of dwelling are included, not relying on referred suspected cases. Case identification will be robust as this will be based on the valid and reliable methods used by the English Housing Survey (EHS) in which domiciliary visits form part of the robust assessment of the home environment. Also, in using data from multiple years of the EHS this will provide a large random sample from the general population (i.e., not just referred cases) and in adults across all ages (i.e., not just the over 65s). The EHS collects data annually from a random sample of households in England. However, the data does not use the same participants each year and is therefore not truly longitudinal, but does allow an estimate of the point prevalence of squalor year-on-year using a panel study approach (38). The distribution of prevalence over time therefore also allows identification of possible temporal trends in the prevalence of squalor to be considered for the first time.
Prevalence meta-analyses combine estimates from multiple studies to produce a summary estimate of the rate of a disorder or occurrence (39). In this study, the meta-analysis will synthesise results from 13 annual administrations of the EHS to produce a pooled estimate of the prevalence of squalor. This is novel in the squalor evidence base. Prevalence meta-analyses have become significantly more common in the last decade as they increase precision by minimising the error in the estimates (40). By using this method, an estimate of the point prevalence of squalor can be produced that is more reliable and robust than previous estimates, with reduced heterogeneity due to the same method of case identification being used each year. A more reliable estimate will allow health and social services to effectively plan for the needs of individuals living in the community whose dwellings show signs of squalor (41). Furthermore, by using a meta-analytical approach with subgroup analysis, it will be possible to identify the characteristics of households that have an increased risk of their dwelling becoming squalid. This will further inform services regarding where their resources should be focused to provide support to those most in need. To summarise, the aims of this study were therefore to estimate the point prevalence of squalor in the general population, identify variability of the prevalence of squalor in the general population over time and investigate the relationship between squalor and household factors. The specific hypotheses focusing on the role of household factors were as follows: (1) risk of household squalor will be higher in areas of more severe deprivation and when the household income is lower and (2) the size of the household, whether the home is owned or rented, and whether the individual lives alone will all predict squalor.