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Research article
Andy Hau Yan Ho
Corresponding Author
ORCiD: https://orcid.org/0000-0003-0373-7043
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This work is licensed under a CC BY 4.0 License. Read Full License
Background: In 2016, over 6.6 million children died globally, and 245 children died in Singapore. Chronic illnesses are prevalent causes of child mortality around the world. Despite growing research that examines the lived experience of parents bereaved by their child’s chronic life-threatening illness, there is no such study within the Asian context.
Methods: To bridge this knowledge gap, meaning-oriented, strength-focused interviews were conducted with 25 parental units (i.e. 6 couples, 13 lone mothers, 4 lone fathers, and 2 primary parental figures) who lost their child to chronic life-threatening illness in Singapore (N=31), including those of Chinese (n=17), Malay (n=10) and Indian ethnicities (n=4).
Results: Data analysis adhering to the grounded theory approach revealed 7 themes and 25 sub-themes that were organized into a Trauma-to-Transformation Model of Parental Bereavement. This model shows the major milestones in participants’ lived experience of their child’s chronic life-threatening illness and death, starting from the diagnosis of their child’s chronic life-threatening illness and the subsequent emotional turmoil (Theme 1), the mourning of their child’s death and the losses which accompanied the death (Theme 3) and participants’ experience of posttraumatic growth as an outcome of their journey (Theme 5). The model further describes the deliberate behaviors or ‘rituals’ that aided participants to regain power over their lives (Theme 2), helped them to sustain an intimate bond with their child beyond death (Theme 4), and aided participants’ transcendence of their loss by deriving positive outcomes from their experience (Theme 6). Finally, the model denotes that the lived experiences and well-being of participants were embedded within the health-and-social-care ecosystem, and in turn impacted by it (Theme 7).
Conclusions: These themes and their corresponding sub-themes are discussed, with recommendations for enhancing culturally-sensitive support services for grieving Asian parents around the globe.
Keywords
Bereavement, Pediatric Palliative Care, Rituals, Qualitative Research, Asia
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CURRENT STATUS: Published
View the published article at BMC Palliative Care.
No community comments so far
Review #1 received
Received 29 Jan, 2020
Reviewer #1 agreed
On 12 Jan, 2020
Reviewers invited
Invitations sent on 22 Nov, 2019
Editor assigned
On 24 Oct, 2019
Submission checks complete
On 23 Oct, 2019
Editor invited
On 23 Oct, 2019
Version 1
Posted 25 Aug, 2019
No comments provided
Editorial decision: Major revision
On 01 Oct, 2019
Review #2 received
Received 23 Sep, 2019
Review #1 received
Received 23 Sep, 2019
Reviewer #2 agreed
On 12 Sep, 2019
Reviewer #1 agreed
On 09 Sep, 2019
Reviewers invited
Invitations sent on 09 Sep, 2019
Submission checks complete
On 22 Aug, 2019
Editor invited
On 22 Aug, 2019
Editor assigned
On 20 Jun, 2019
First submitted
On 13 Jun, 2019
Metrics
Comments: 0
PDF Downloads: ...
HTML Views: ...
Subject Areas
Anesthesiology & Pain Medicine
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A new preprint design is coming!
We have improved readability, clarity, accessibility, and opportunities for engagement.
See the published version of this preprint at BMC Palliative Care.
This is a preprint, a preliminary version of a manuscript that has not completed peer review at a journal. Research Square does not conduct peer review prior to posting preprints. The posting of a preprint on this server should not be interpreted as an endorsement of its validity or suitability for dissemination as established information or for guiding clinical practice.
Learn more about In Review
Research article
Andy Hau Yan Ho
Corresponding Author
ORCiD: https://orcid.org/0000-0003-0373-7043
Badges
Prescreen
This manuscript passed our Prescreen assessment
Complete author information
Appropriate declaration statements
Potential risks to human health
Prescreen
Peer Review Timeline
CURRENT STATUS: Published
View the published article at BMC Palliative Care.
No community comments so far
Review #1 received
Received 29 Jan, 2020
Reviewer #1 agreed
On 12 Jan, 2020
Reviewers invited
Invitations sent on 22 Nov, 2019
Editor assigned
On 24 Oct, 2019
Submission checks complete
On 23 Oct, 2019
Editor invited
On 23 Oct, 2019
Version 1
Posted 25 Aug, 2019
No comments provided
Editorial decision: Major revision
On 01 Oct, 2019
Review #2 received
Received 23 Sep, 2019
Review #1 received
Received 23 Sep, 2019
Reviewer #2 agreed
On 12 Sep, 2019
Reviewer #1 agreed
On 09 Sep, 2019
Reviewers invited
Invitations sent on 09 Sep, 2019
Submission checks complete
On 22 Aug, 2019
Editor invited
On 22 Aug, 2019
Editor assigned
On 20 Jun, 2019
First submitted
On 13 Jun, 2019
Metrics
Comments: 0
PDF Downloads: ...
HTML Views: ...
Subject Areas
Anesthesiology & Pain Medicine
License:
This work is licensed under a CC BY 4.0 License. Read Full License
View the published article at BMC Palliative Care.
Background: In 2016, over 6.6 million children died globally, and 245 children died in Singapore. Chronic illnesses are prevalent causes of child mortality around the world. Despite growing research that examines the lived experience of parents bereaved by their child’s chronic life-threatening illness, there is no such study within the Asian context.
Methods: To bridge this knowledge gap, meaning-oriented, strength-focused interviews were conducted with 25 parental units (i.e. 6 couples, 13 lone mothers, 4 lone fathers, and 2 primary parental figures) who lost their child to chronic life-threatening illness in Singapore (N=31), including those of Chinese (n=17), Malay (n=10) and Indian ethnicities (n=4).
Results: Data analysis adhering to the grounded theory approach revealed 7 themes and 25 sub-themes that were organized into a Trauma-to-Transformation Model of Parental Bereavement. This model shows the major milestones in participants’ lived experience of their child’s chronic life-threatening illness and death, starting from the diagnosis of their child’s chronic life-threatening illness and the subsequent emotional turmoil (Theme 1), the mourning of their child’s death and the losses which accompanied the death (Theme 3) and participants’ experience of posttraumatic growth as an outcome of their journey (Theme 5). The model further describes the deliberate behaviors or ‘rituals’ that aided participants to regain power over their lives (Theme 2), helped them to sustain an intimate bond with their child beyond death (Theme 4), and aided participants’ transcendence of their loss by deriving positive outcomes from their experience (Theme 6). Finally, the model denotes that the lived experiences and well-being of participants were embedded within the health-and-social-care ecosystem, and in turn impacted by it (Theme 7).
Conclusions: These themes and their corresponding sub-themes are discussed, with recommendations for enhancing culturally-sensitive support services for grieving Asian parents around the globe.
Figure 1
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