Variable
|
Total sample
n = 141
|
Rheumatology
n = 83
|
Psychosomatic
n = 58
|
Age in years, mean ± SD (range)
|
53.3 ± 16.2 (19-86)
|
55.2 ± 17.4 (19-86)
|
50.6 ± 14.1 (24-80)
|
Sex, n (%)
|
|
|
|
Female
|
95 (67.4)
|
58 (69.9)
|
37 (63.8)
|
Male
|
46 (32.6)
|
25 (30.1)
|
21 (36.2)
|
Nationality
|
|
|
|
German
|
125 (88.7)
|
72 (86.7)
|
53(91.7)
|
Non-German
|
7 (4.9)
|
7 (8.4)
|
0 (00.0)
|
Unknown
|
9 (6.4)
|
4 (4.8)
|
5 (8.6)
|
Living status, n (%)
|
|
|
|
With partner
|
88 (62.4)
|
53 (63.9)
|
35 (60.3)
|
Single
|
39 (27.7)
|
24 (28.9)
|
15 (25.9)
|
Other
|
8 (5.7)
|
5 (6.0)
|
3 (5.2)
|
Unknown
|
6 (4.2)
|
1 (1.2)
|
5 (8.6)
|
Educational level (ISCED 19971), n (%)
|
|
|
|
Doctoral degree or equivalent
|
3 (2.1)
|
2 (2.4)
|
1 (1.7)
|
Bachelor’s/Master’s degree or equivalent
|
45 (32.0)
|
31 (37.3)
|
14 (24.1)
|
Degree of post-secondary/tertiary education
|
43 (30.5)
|
25 (30.1)
|
18 (31.0)
|
Degree of secondary education
|
12 (8.5)
|
8 (9.6)
|
4 (6.9)
|
Degree of primary education
|
28 (19.9)
|
15 (18.1)
|
13 (22.4)
|
Without
|
4 (2.8)
|
1 (1.2)
|
3 (5.2)
|
Unknown
|
6 (4.2)
|
1 (1.2)
|
5 (8.6)
|
Work status, n (%)
|
|
|
|
Full-time
|
20 (14.2)
|
11 (13.3)
|
9 (15.5)
|
Part-time
|
8 (5.7)
|
7 (8.4)
|
1 (1.7)
|
Seeking employment
|
4 (2.8)
|
1 (1.2)
|
3 (5.2)
|
Not employed (student, retired, freelancer)
|
48 (34.0)
|
20 (24.1)
|
28 (48.3)
|
Unable to work for health reasons
|
51 (36.2)
|
36 (43.4)
|
15 (25.9)
|
Unknown
|
10 (7.1)
|
5 (6.0)
|
5 (8.6)
|
Primary conditions, n (%)
|
|
|
|
Persistent somatoform pain disorder (PSPD)2
|
|
|
58 (100.0)
|
Arthritis
|
|
19 (22.9)
|
|
Systemic sclerosis (SScl)
|
|
17 (20.5)
|
|
Systemic lupus erythematosus (SLE)
|
|
13 (15.7)
|
|
Vasculitis
|
|
11 (13.3)
|
|
Others3
|
|
11 (13.3)
|
|
Sjogren’s syndrome (SS)
|
|
9 (10.8)
|
|
Ormond’s disease
|
|
3 (3.6)
|
|
Domain scores, M (SD)
|
|
|
|
EQ-5D-5L Mobility4
|
2.50 (1.14)
|
2.34 (1.15)
|
2.72 (1.09)
|
EQ-5D-5L Self-care4
|
1.67 (0.92)
|
1.63 (0.92)
|
1.72 (0.93)
|
EQ-5D-5L Usual Activities4
|
2.85 (1.26)
|
2.64 (1.30)
|
3.16 (1.15)
|
EQ-5D-5L Pain/Discomfort4
|
3.02 (1.10)
|
2.60 (1.01)
|
3.62 (0.95)
|
EQ-5D-5L Anxiety/Depression4
|
2.28 (1.15)
|
1.87 (0.93)
|
2.88 (1.19)
|
PROPr Cognition5
|
48.18 (6.65)
|
49.68 (7.13)
|
46.04 (5.52)
|
PROPr Depression6
|
55.39 (9.90)
|
53.17 (9.19)
|
58.57 (10.08)
|
PROPr Fatigue6
|
57.26 (9.25)
|
55.13 (9.70)
|
60.31 (7.67)
|
PROPr Pain6
|
62.03 (8.16)
|
59.72 (8.90)
|
65.33 (5.56)
|
PROPr Physical Function5
|
41.54 (8.59)
|
42.12 (8.58)
|
40.69 (8.60)
|
PROPr Sleep Disturbance6
|
52.32 (8.24)
|
50.59 (8.42)
|
54.79 (7.35)
|
PROPr Ability to Participate in Social Roles5
|
44.48 (8.62)
|
46.57 (9.00)
|
41.24 (6.91)
|
Health States Utilities, M (95%CI) [Range]
|
|
|
|
PROPr
|
0.26 (0.23; 0.29)
[-0.004; 0.955]
|
0.32 (0.27; 0.36)
[0.009; 0.995]
|
0.18 (0.15; 0.21)
[-0.004; 0.53]
|
EQ-5D-5L index value (US 5L Value Set)
|
0.44 (0.38; 0.51)
[-0.425; 1.00]
|
0.57 (0.50;0.65)
[-0.425; 1.00]
|
0.26 (0.17; 0.36)
[-0.329; 1.00]
|
1 International Standard Classification of Education; 2 ICD-10 code F45.4 (International Classification of Disease, 10th revision); 3 Others include: keratitis, orbital tip syndrome, Still’s disease, other myopathy, fever of unknown origin, neoplasm of unknown behavior in the craniopharyngeal duct, acute otitis media, vesicular pityriasis; 4 Standard measure to assess general health-related quality of Life (HrQoL) developed by the EuroQoL group, 1=no impairment, 5=full impairment; 5 PROPr PROMIS domains in theta T-score; 50 = population average; -/+10 SD worse/better than population average, higher values indicate better function; 6 PROPr PROMIS domains in theta T-score; 50 = population average; -/+10 SD worse/better than population average, lower values indicate better function; n = number; M = Mean; SD = standard deviation; CI = confidence interval
|