Demographic information
We interviewed 14 young and middle-aged hypertensive patients. The interviews ranged from 26 to 38 minutes in length. Seven were female(50%) and the mean age was 52 years with a range of 44-58 years. There were also 7 males, accounting for 50%, which was a balanced proportion of men and women. The average age of the men was 47 years old, ranging from 35 to 58 years. Participants’ characteristics are further described in Table 1.
Table 1. Sample Characteristics (n=14)
Patient
|
Sex
|
Age (years)
|
Occupation
|
Education Level
|
Marital Status
|
Any Systematic Learning of Medical Knowledge
|
P01
|
Male
|
35
|
Salesman
|
Undergraduate degree
|
Yes
|
No
|
P02
|
Male
|
40
|
Delivery person
|
Junior high school
|
Yes
|
No
|
P03
|
Male
|
56
|
Driver
|
High school
|
Yes
|
No
|
P04
|
Female
|
54
|
Vendor
|
Primary school
|
Yes
|
No
|
P05
|
Female
|
57
|
Laborer
|
Junior high school
|
Yes
|
No
|
P06
|
Female
|
44
|
Accountant
|
Junior college
|
Yes
|
No
|
P07
|
Male
|
54
|
Medical worker
|
Undergraduate degree
|
Yes
|
Yes
|
P08
|
Female
|
58
|
Laborer
|
Junior high school
|
Yes
|
No
|
P09
|
Female
|
51
|
Factory worker
|
High school
|
Yes
|
No
|
P10
|
Female
|
53
|
Primary school teacher
|
Undergraduate degree
|
Yes
|
No
|
P11
|
Female
|
50
|
Waitress
|
Undergraduate degree
|
Yes
|
No
|
P12
|
Male
|
58
|
Freelancer
|
High school
|
Yes
|
No
|
P13
|
Male
|
43
|
Stock transaction
|
Junior college
|
Yes
|
No
|
P14
|
Male
|
43
|
Truck driver
|
High school
|
Yes
|
No
|
Themes that emerged
The hypertensive patients participating in the interview described their experiences,feelings,influence and expectations about acquiring health information or using online medical services by the internet. Our findings were divided into four themes: (1)e-health literacy still needs improvement; (2)Online medical services operation skills need further promotion; (3)the influence of the e-health information or online medical services; and (4)the expectations for electronic health information or online medical services. Participants expressed a desire for more professional and technical support to learn authoritative medical knowledge and fully utilize e-health services for daily self-management.
Theme 1:electronic health literacy still needs improvement
The theme encompasses the acquisition and utilization of e-health information and online medical services. It includes access to digital health information and online medical treatments, evaluation of the quality of e-health information and services, and the intelligibility of obtaining and using e-health information and online medical services.
Subtheme 1a: the use of electronic health information or services
Most patients didn’t regularly use electronic health information or services because they only accessed them when experiencing symptoms of discomfort or requiring a follow-up examination:
For example,I get hypertension,when my blood pressure get high,what medicine should I take? I can find this information on Baidu.(Participant 13)
If there is suddenly an emergency related to hypertension or if I encounter a health knowledge gap, I will consider getting information online. For minor issues, I might search the internet for a general idea, then determine what kind of information is suitable for me.(Participant 6)
I usually search the internet for the reexamination time or precautions when I receive my medical examination results.(Participant 10)
I normally ask the doctor on health-oriented social media when my families are illness or when i receive the medical examination report.[...]I consult other doctor’s advice to find out if there’s a more optimized therapeutic schedule.(Participant 11)
Subtheme 1b: patient's ability to discriminate electronic health information or services
The majority of participants evaluated the quality of e-health information and online medical services based on subjective feelings, while very few assessed it using scientific standards:
By intuition.[...]Even if the medicine is fake,if you take one or two pills and it doesn’t work,you wouldn’t take it again,would you? It's simple, that’s how i can identify it.(Participant 13)
For Baidu,it can retrieve many results,and you can make a comparison,then trust the one with the most results.(Participant 2)
Sometimes I consult experts in the comments section, but I find that there are many deceptive individuals.[...]You know what i mean?it’s a scam. He hardly reads your comments below and rarely replies to them.[...]I usually refer to the comments below and then consult a doctor. If they don't respond, I'm certain it's fake.(Participant 9)
Subtheme 1c: patient's ability to understand electronic health information or services
More patients didn’t understand medical terms such as laboratory sheet,medical imaging report on the internet,and most of them usually chose to search the information on Baidu:
I can’t understand some of the terminology used in B-ultrasound and CT. (Participant 5)
First of all,those laboratory sheet and other related things need to be simplified and clarified.[...]I can’t understand some professional words,if you send me such an electronic message, I can’t understand it either.[...]I normally put some professional terms about pathology that I don’t understand into Baidu,then search for the similar explanation.(Participant 6)
I also search for terms on Baidu headlines until I find the relevant information. That’s it.(Participant 8)
Theme 2:online medical services operation skills need further promotion
The theme explains the reasons for the low utilization of online healthcare services among patients. Taking online drug screening as an example, most patients didn’t know the scientific criteria for distinguishing between real and fake drugs, nor did they know how to perform such tasks on a mobile phone.
Subtheme 2a: patient use of electronic health information or services still needs improvement
The majority of patients rarely utilized online medical services because some didn’t trust the authenticity of online medical information. In addition, another group of patients lacked the necessary skills to operate online medical services and needed family members to assist them in accessing online medical care:
First of all,i never purchase items or participate in activities on the internet that are unrelated to me.[...]I don’t consider whether it is authoritative, I just want to get a general idea.(Participant 12)
I don’t use the telephone to register online, consult a doctor, or check inspection results because it seems to require a fee or an appointment. I think it’s too troublesome.[...]No matter which app I use, it requires an appointment, and the answers are not explicit.[...]I don’t approve of it, and it hasn’t convinced me yet, so I still prefer to choose physical stores.(Participant 14)
I don’t share or communicate health information on health-oriented social media or other platforms because I consider it private.(Participant 2)
Subtheme 2b: patients' awareness and ability to distinguish genuine medicines still needs to be improved
Many patients lacked the awareness and habit of distinguishing genuine medications. However, one patient who had previously purchased the drug online and another patient whose family had studied medical knowledge knew how to scientifically differentiate between real and counterfeit drugs:
My daughter helps me to check it(drug).(Participant 4)
I seldom buy or check drugs online. I usually purchase them at the pharmacy because it provides a sense of relief.(Participant 2)
I use the scanning code function in health-oriented social media to check for anti-counterfeiting signs to distinguish real medicines from fake ones, but I am uncertain about the authenticity of these anti-counterfeiting signs.(Participant 5)
I compare it with the drugs prescribed at standard hospitals,such as the First Affiliated Hospital of the University of South China.[...]I check its batch number,manufacturer,dosage,production date and expiration date.(Participant 10)
Theme 3:the influence of the electronic health information or online medical services
The theme covers both the positive and negative impacts of online health information and services on patients, as well as the needs and preferences of the majority of patients in using these electronic health resources.
Subtheme 3a: benefits of e-Health information or services
Using e-health information or enjoying medical services was beneficial for most patients. Some patients highlighted that digital health information was comprehensive, convenient, efficient, and easy to understand. Other patients mentioned that this information also had the function of regulating mood or preventing disease:
When I press the points, I feel comfortable, my mood improves, and I am less depressed, so I really think it helps my emotional state. Every time when I take a half-hour ride to work, I press the acupuncture points on my hands, and I really feel that I have benefited a lot.(Participant 8)
You can read the knowledge and risks about the disease(hypertension),which has the function of prevention and learning.(Participant 9)
It can broaden my knowledge and I can read it repeatedly.(Participant 2)
It may have more or less effect on some of my eating habits and diet structures.(Participant 6)
Subtheme 3b: deficiencies in electronic health information or services
Many patients also discussed the negative impacts of electronic health information or online health services. This group of patients generally believed that electronic information lacked systematization and professionalism. There was even one patient considered it a scam:
Ugh, it's not good anyway, I've only asked the doctor twice, it's all a lie.(Participant 9)
On the one hand, I don’t believe it’s worth trusting,on the other hand,it lacks systematization and professionalism.[...]If I want to use this application properly, I have to trust it first and foremost.(Participant 6)
If I look at my phone for too long, I start to get visual fatigue.(Participant 10)
Subtheme 3c: patients are unclear about the source of authoritative health information
Some patients focused more on self-care,health maintenance,dietary therapy,exercise, and precautions for hypertension, while the majority of patients primarily browsed digital health information in a rather casual manner on platforms such as Baidu and health-oriented social media:
I consult all kinds of health information, and there is no fixed way to access electronic health information. Because I don't know any particularly good websites or applications to read consistently, I read a lot of different sources of information.[...]There are few recommendations on which applications provide quality health information.(Participant 8)
When you search for something on Baidu, it will subsequently push similar information to you.[...]If I search for sports-related activities, it will recommend a series of exercise videos for me to study.[...]I don’t follow any specific bloggers, i simply utilize videos that I find appealing or suitable for my needs.(Participant 11)
At the moment, for me personally, I don't have a particular preference, because I don't think there is a systematic or authoritative medical information website yet. Once you search or look up exercise information, you can usually only find some content about running or other sports, which is not authoritative.[...]And there is no authoritative medical information or health information networks,even some websites that you can refer to.[...]After all, we are not medical professionals and can’t precisely determine which information is beneficial or harmful for us, so our options are very limited.(Participant 6)
Theme 4: The Expectations for Electronic Health Information or Online Medical Services
The theme contains patients’ expectations and recommendations for e-health information or services to support their self-management.
Subtheme 4a: improve the accessibility,simplicity and operability of electronic health information and services
With respect to expectations for e-health information and online health services, most patients mentioned that they valued the prevalence, simplicity, and convenience of e-health information and services:
For app,it should cover the needs of users to foster consumer habits, which is difficult to achieve. Secondly,it’s cumbersome and inconvenient.(Participant 1)
Easy to implement and better to stick to, then not limited by time and space.(Participant 11)
It’s not widespread,especially for the ordinary people,who even don’t understand it. Some people don't even have smartphones, some people are still using 2G phones, and now the technology has evolved to 4G and 5G, isn't it?[...]In many cases,these people need to be accompanied by their children to the hospital, it needs to be simplified so that everyone is familiar with it.(Participant 7)
Subtheme 4b: improve the network information management system to weaken its commercial nature
Many patients expected that the future network information management system would be further improved to reduce its commercial nature:
In China, the service network is a systematic structure that needs to be connected from top to bottom. If a community hospital needs to develop an electronic documentation system, it must establish a communication channel between medical staff and patients, but this channel hasn’t been established in community hospitals yet.[...]Nowadays,if you search for health information when you’re riding the bus,for instance,if you want to search for a doctor in a certain hospital, you'll see a lot of advertisements pop up once you get to the relevant page.[...]If these ads aren't be removed,you may inadvertently click on a bundled package deal.[...]But today, when accessing the service page, which includes scanning QR codes for bill payments,a link automatically appears.(Participant 7)
Just don’t have too many advertisements.(Participant 2)
Subtheme 4c: Strengthen the coherence of medical institutions at different levels
Other patients prioritized the coherence of information between superior and subordinate medical institutions:
I noticed that the community hospital required documentation for patients with high blood pressure. A medical worker assisted me in filing my case. However, rather than relying on my history of hypertension to initiate relevant procedures, I feel unsure about how to proceed with the remaining steps. This indicates a gap in the communication process.[...]For example, I have been taking hypertensive medication for several months or even longer, but if I don’t document my hypertension, the relevant medications, values, and other records remain incomplete.(Participant 6)
Several aspects need improvement. For example, as I mentioned earlier, I believe that the experts recommended online are often not genuine, with minimal elements of truth.[...]I suggest that online experts adopt a real-name system. If they aim to disseminate knowledge and assist people with their problems, they should possess high qualifications.(Participant 9)