Public trust and Global Biobank Networks
Background
Biobanks provide an important foundation for genomic and personalised medicine. In order to enhance their scientific power and scope, they are increasingly becoming part of national or international networks. Public trust is essential in fostering public engagement, encouraging donation to, and facilitating public funding for biobanks. Globalisation and networking of biobanking may challenge this trust.
Methods
We report the results of an Australian study examining public attitudes to the networking and globalisation of biobanks. The study used quantitative and qualitative methods in conjunction with bioethical analysis in order to determine factors that may contribute to, and threaten, trust.
Results
Our results indicate a generally high level of trust in biobanks and in medical research more broadly. Key factors that can reduce perceived trustworthiness of biobanks are commercialisation and involvement in global networking.
Conclusions
We conclude that robust ethical oversight and governance standards can both promote trust in global biobanking and ensure that this trust is warranted.
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Posted 10 Aug, 2020
On 15 Aug, 2020
On 05 Aug, 2020
On 04 Aug, 2020
On 20 Jul, 2020
On 09 Jul, 2020
On 08 Jul, 2020
On 08 Jul, 2020
On 26 Jun, 2020
On 24 Jun, 2020
Received 24 Jun, 2020
Received 24 Jun, 2020
On 22 Jun, 2020
Received 13 Jun, 2020
Invitations sent on 03 Jun, 2020
On 03 Jun, 2020
On 01 Jun, 2020
On 31 May, 2020
On 31 May, 2020
On 28 Apr, 2020
Received 23 Apr, 2020
Received 19 Apr, 2020
On 17 Apr, 2020
On 15 Apr, 2020
Received 30 Oct, 2019
On 19 Oct, 2019
Invitations sent on 07 Oct, 2019
On 22 Sep, 2019
On 29 Aug, 2019
On 28 Aug, 2019
On 27 Aug, 2019
Public trust and Global Biobank Networks
Posted 10 Aug, 2020
On 15 Aug, 2020
On 05 Aug, 2020
On 04 Aug, 2020
On 20 Jul, 2020
On 09 Jul, 2020
On 08 Jul, 2020
On 08 Jul, 2020
On 26 Jun, 2020
On 24 Jun, 2020
Received 24 Jun, 2020
Received 24 Jun, 2020
On 22 Jun, 2020
Received 13 Jun, 2020
Invitations sent on 03 Jun, 2020
On 03 Jun, 2020
On 01 Jun, 2020
On 31 May, 2020
On 31 May, 2020
On 28 Apr, 2020
Received 23 Apr, 2020
Received 19 Apr, 2020
On 17 Apr, 2020
On 15 Apr, 2020
Received 30 Oct, 2019
On 19 Oct, 2019
Invitations sent on 07 Oct, 2019
On 22 Sep, 2019
On 29 Aug, 2019
On 28 Aug, 2019
On 27 Aug, 2019
Background
Biobanks provide an important foundation for genomic and personalised medicine. In order to enhance their scientific power and scope, they are increasingly becoming part of national or international networks. Public trust is essential in fostering public engagement, encouraging donation to, and facilitating public funding for biobanks. Globalisation and networking of biobanking may challenge this trust.
Methods
We report the results of an Australian study examining public attitudes to the networking and globalisation of biobanks. The study used quantitative and qualitative methods in conjunction with bioethical analysis in order to determine factors that may contribute to, and threaten, trust.
Results
Our results indicate a generally high level of trust in biobanks and in medical research more broadly. Key factors that can reduce perceived trustworthiness of biobanks are commercialisation and involvement in global networking.
Conclusions
We conclude that robust ethical oversight and governance standards can both promote trust in global biobanking and ensure that this trust is warranted.