This preprint is under consideration at Health and Quality of Life Outcomes. A preprint is a preliminary version of a manuscript that has not completed peer review at a journal. Research Square does not conduct peer review prior to posting preprints. The posting of a preprint on this server should not be interpreted as an endorsement of its validity or suitability for dissemination as established information or for guiding clinical practice.
Learn more about In Review
A new preprint design is coming!
We have improved readability, clarity, accessibility, and opportunities for engagement.
Research
Jennifer A Dermott
Hospital for Sick Children
Corresponding Author
ORCiD: https://orcid.org/0000-0001-9740-7197
License:
This work is licensed under a CC BY 4.0 License. Read Full License
Background: To develop a priority-based patient/parent reported outcome measure for children with lower-limb differences (LD) by adapting the Gait Outcomes Assessment List (GOAL) questionnaire.
Methods: Guided by a conceptual framework of patient priorities, the GOAL questionnaire was iteratively modified and its sensibility evaluated by field-testing it on children with LD, and their parents. Cognitive interviews were conducted with a subgroup of these children, and an e-survey administered to a multidisciplinary group of health care professionals with expertise in paediatric LD. Findings were integrated to create the final version of the GOAL-LD.
Results: Twenty-five children (9-18 years), 20 parents, and 31 healthcare professionals evaluated the content and sensibility of the GOAL, with an emphasis on the relevance and importance of the items to patients’ health related quality of life (HRQL). This resulted in the retention of 26 of the original 50 items, elimination of 12, modification of 12, and addition of seven new items. The new 45-item GOAL-LD questionnaire was shown to be sensible and its content deemed important.
Conclusions: The GOAL-LD questionnaire has a high level of face and content validity, and sensibility. It comprehensively captures the HRQL goals and outcomes that matter to children with LD and their parents. Following further psychometric evaluation, the GOAL-LD may serve as a much needed evaluate patient and parent reported outcome measure for this population.
Keywords
Quality of Life, Patient Reported Outcome Measure (PROM), Orthopaedics, Paediatrics, Lower Limb Deficiency, Lower limb deformity, Limb length discrepancy
Figure 1
Figure 2
Figure 3
This is a list of supplementary files associated with this preprint. Click to download.
- Additionalfile1.docx
Additional file 1.docx Cognitive interview guide
- Additionalfile2.docx
Additional file 2.docx Child participant demographics
- Additionalfile3.docx
Additional file 3.pdf Summary of content adaptation through each iteration of the GOAL (Phase 1 and 2 feedback)
- Additionalfile4.pdf
Additional file 4.pdf GOAL-LD Child version
- Additionalfile5.pdf
Additional file 5.pdf GOAL-LD Parent version
Loading...
Badges
Prescreen
This manuscript passed our Prescreen assessment
Complete author information
Appropriate declaration statements
Potential risks to human health
Prescreen
Peer Review Timeline
CURRENT STATUS: Under Review
Version 2
Posted 21 Jan, 2021
No community comments so far
Editorial decision: Minor Revision
On 06 Mar, 2021
Review #2 received
Received 27 Feb, 2021
Reviewer #2 agreed
On 26 Jan, 2021
Reviewers invited
Invitations sent on 26 Jan, 2021
Reviewer #1 agreed
On 26 Jan, 2021
Review #1 received
Received 26 Jan, 2021
Editor assigned
On 13 Jan, 2021
Submission checks complete
On 13 Jan, 2021
Editor invited
On 13 Jan, 2021
No comments provided
Editorial decision: Major Revision
On 14 Nov, 2020
Review #3 received
Received 09 Nov, 2020
Reviewer #3 agreed
On 29 Oct, 2020
Review #2 received
Received 26 Oct, 2020
Reviewer #2 agreed
On 05 Oct, 2020
Review #1 received
Received 29 Aug, 2020
Reviewer #1 agreed
On 21 Aug, 2020
Editor assigned
On 20 Aug, 2020
Reviewers invited
Invitations sent on 20 Aug, 2020
Submission checks complete
On 19 Aug, 2020
Editor invited
On 19 Aug, 2020
First submitted
On 17 Aug, 2020
Metrics
Comments: 0
PDF Downloads: ...
HTML Views: ...
Subject Areas
Health Economics & Outcomes Research
Learn more about our company.
A new preprint design is coming!
We have improved readability, clarity, accessibility, and opportunities for engagement.
This preprint is under consideration at Health and Quality of Life Outcomes. A preprint is a preliminary version of a manuscript that has not completed peer review at a journal. Research Square does not conduct peer review prior to posting preprints. The posting of a preprint on this server should not be interpreted as an endorsement of its validity or suitability for dissemination as established information or for guiding clinical practice.
Learn more about In Review
Research
Jennifer A Dermott
Hospital for Sick Children
Corresponding Author
ORCiD: https://orcid.org/0000-0001-9740-7197
Badges
Prescreen
This manuscript passed our Prescreen assessment
Complete author information
Appropriate declaration statements
Potential risks to human health
Prescreen
Peer Review Timeline
CURRENT STATUS: Under Review
Version 2
Posted 21 Jan, 2021
No community comments so far
Editorial decision: Minor Revision
On 06 Mar, 2021
Review #2 received
Received 27 Feb, 2021
Reviewer #2 agreed
On 26 Jan, 2021
Reviewers invited
Invitations sent on 26 Jan, 2021
Reviewer #1 agreed
On 26 Jan, 2021
Review #1 received
Received 26 Jan, 2021
Editor assigned
On 13 Jan, 2021
Submission checks complete
On 13 Jan, 2021
Editor invited
On 13 Jan, 2021
No comments provided
Editorial decision: Major Revision
On 14 Nov, 2020
Review #3 received
Received 09 Nov, 2020
Reviewer #3 agreed
On 29 Oct, 2020
Review #2 received
Received 26 Oct, 2020
Reviewer #2 agreed
On 05 Oct, 2020
Review #1 received
Received 29 Aug, 2020
Reviewer #1 agreed
On 21 Aug, 2020
Editor assigned
On 20 Aug, 2020
Reviewers invited
Invitations sent on 20 Aug, 2020
Submission checks complete
On 19 Aug, 2020
Editor invited
On 19 Aug, 2020
First submitted
On 17 Aug, 2020
Metrics
Comments: 0
PDF Downloads: ...
HTML Views: ...
Subject Areas
Health Economics & Outcomes Research
License:
This work is licensed under a CC BY 4.0 License. Read Full License
Background: To develop a priority-based patient/parent reported outcome measure for children with lower-limb differences (LD) by adapting the Gait Outcomes Assessment List (GOAL) questionnaire.
Methods: Guided by a conceptual framework of patient priorities, the GOAL questionnaire was iteratively modified and its sensibility evaluated by field-testing it on children with LD, and their parents. Cognitive interviews were conducted with a subgroup of these children, and an e-survey administered to a multidisciplinary group of health care professionals with expertise in paediatric LD. Findings were integrated to create the final version of the GOAL-LD.
Results: Twenty-five children (9-18 years), 20 parents, and 31 healthcare professionals evaluated the content and sensibility of the GOAL, with an emphasis on the relevance and importance of the items to patients’ health related quality of life (HRQL). This resulted in the retention of 26 of the original 50 items, elimination of 12, modification of 12, and addition of seven new items. The new 45-item GOAL-LD questionnaire was shown to be sensible and its content deemed important.
Conclusions: The GOAL-LD questionnaire has a high level of face and content validity, and sensibility. It comprehensively captures the HRQL goals and outcomes that matter to children with LD and their parents. Following further psychometric evaluation, the GOAL-LD may serve as a much needed evaluate patient and parent reported outcome measure for this population.
Figure 1
Figure 2
Figure 3
This is a list of supplementary files associated with this preprint. Click to download.
- Additionalfile1.docx
Additional file 1.docx Cognitive interview guide
- Additionalfile2.docx
Additional file 2.docx Child participant demographics
- Additionalfile3.docx
Additional file 3.pdf Summary of content adaptation through each iteration of the GOAL (Phase 1 and 2 feedback)
- Additionalfile4.pdf
Additional file 4.pdf GOAL-LD Child version
- Additionalfile5.pdf
Additional file 5.pdf GOAL-LD Parent version
Loading...