DOI: https://doi.org/10.21203/rs.2.17945/v1
Introduction: Reablement is a rehabilitative intervention provided to homecare receivers (mostly older adults) with the aim of improving function and independence. There is limited evidence of the effectiveness of reablement and the content of these interventions is variable. Physical activity (PA) is known to be important for improving and maintaining function among older adults, but it is unclear how PA is integrated in reablement.
Objective: To map existing evidence of how PA strategies are integrated and explored in studies of reablement for community dwelling older adults and to identify knowledge gaps.
Methods: An apriori protocol was published. Studies investigating or exploring time-limited (within 6 months), interdisciplinary reablement for community-dwelling older adults, published in English, Norwegian, Danish, Swedish and German were considered for inclusion. PubMed, Cochrane central register of controlled trials, Embase, PsycINFO, AMED, PEDro, CINAHL and Google Scholar were searched for studies published between 1996 and July 2019, in addition to reference and citation searches. Study selection and data extraction were made independently by two reviewers.
Results: Forty-three studies were included. Exercise strategies and practice of daily activities were reported to be included in the majority of intervention studies, but in most cases, no information was provided about the degree or intensity of which PA was involved, or how PA interventions were targeted to individual needs. Interventions aiming to increase general PA levels or reduce sedentary behavior were rarely described. None of the studies explored older adults’, health care providers’ or family members’ experiences with PA in a reablement setting, but some of the studies touched upon themes related to PA experiences. Some studies reported outcomes of physical fitness, including mobility, strength and balance, but there was insufficient evidence for any synthesis of these results. None of the studies reported PA levels among older adults receiving reablement.
Conclusion: There is limited evidence regarding how PA is integrated in reablement, including how PA strategies are targeted to older adults’ individual needs and preferences in a reablement setting. The feasibility, and effectiveness of PA interventions, as well as experiences or barriers related to PA in a reablement setting should be further investigated.
What evidence regarding experiences (of older adults, HCPs and family members) and barriers related to PA facilitation in a reablement setting can be identified? The number of older adults (aged 65 years or over) is growing and there is expected to be a rapid increase, in particular, in the number of people aged 85 years and over in the near future (1). For some older adults, aging leads to increased disability and/or difficulties with completing activities of daily living (ADLs), which can be essential for their ability to live independently and maintain quality of life. This may lead to increases in the need for healthcare services in the years to come. The World Health Organization (WHO) has emphasized a need for innovative and sustainable initiatives to meet these challenges, with a specific focus on evidence-based action to improve functional ability and well-being in older age (2).
Reablement is an interdisciplinary practice introduced in homecare services during the last two decades aiming to provide homecare services that help people regain function and independence, rather than continuing to increase services to compensate for ongoing functional loss (3-6). Different terms have been used for reablement such as everyday rehabilitation and restorative care. For the purpose of this study, the term reablement will be used and is defined as rehabilitative initiatives that aim to maximize functional ability and independence among homecare service users, by offering intensive, time-limited, interdisciplinary, person-centered and goal-directed homecare services (6). A common feature of reablement is that the services are person-centered, with an emphasis on identifying and working towards the participants’ own prioritized goals (6). Different types of healthcare providers (HCPs) are typically involved in reablement, including health professionals (with a bachelor degree) such as occupational therapists (OTs), physical therapists (PTs) and registered nurses (RNs), and also allied health personnel (without a bachelor degree) e.g. nurse assistants, students or community health workers (7).
Several recent systematic reviews have investigated different perspectives of the effectiveness of reablement (3-8). Although some promising implications are reported (4, 8), there is limited evidence of the effect of reablement for improving function and independence compared to standard home care (3, 5-7). The specific characteristics of reablement provided in the included intervention studies are reported to be poorly described, and little is known about the effect of individual components included in reablement practice (5, 6, 8). The focus of this review was to map evidence on how physical activity (PA) is integrated in reablement, as PA is considered an important factor for improving and maintaining older adults’ function (9).
Inactivity among older adults affects their physical fitness (e.g. cardiorespiratory and muscular endurance, muscular strength, flexibility, balance, mobility or speed of movement) and is correlated to frailty and functional limitations (10). Research demonstrates the positive effects of regular PA and exercise for older adults such as reduced risk of falling (11), reduced level of frailty (12) and improved performance in ADLs (13). WHO recommend older adults be physically active for at least 150 minutes a week, including activities that are adapted to the individuals’ functional level (9). They also recommend activities that enhance muscle-strength and balance be included at least twice a week. However, PA levels decrease substantially in older populations, and only 12-18% of people aged 75 years and over are reported to meet these PA guidelines (14, 15).
For the purpose of this study, physical activity was defined in accordance with the definition used by WHO as “any bodily movement produced by skeletal muscles that requires energy expenditure” (16 para.1). This includes different activities, such as leisure time PA, transportation, occupational activity, household activity, games, sports, everyday activities and exercise. Within this broad definition of PA, the focus of this study was on general PA facilitation and also exercise strategies and prevention of sedentary behavior. Exercise was defined as “physical activity that is planned, structured, repetitive, and purposive in the sense that improvement or maintenance of one or more components of physical fitness is an objective” (17 p.128). Sedentary behavior was defined as “any waking behavior characterized by low energy expenditure […] while in a sitting, reclining or lying posture” (18 p.10).
There are many factors that are perceived by older adults as barriers to being physically active, (19, 20) and it is recommended that HCPs pay special attention to inform older adults about the health benefits of PA and that they consider the persons’ personal, social and environmental constraints for being physically active (19, 21). Furthermore, it has been suggested that more attention be directed to real-life contexts of PA interventions among community-dwelling older adults (22).
PA or exercise strategies have been reported as part of the reablement intervention in some systematic reviews of reablement published over the last few years (4, 6-8), but no further characteristics of these strategies are provided. No identified systematic review has mentioned strategies aimed at reducing sedentary behavior among participants (3-8). It was anticipated that experimental, quantitative and qualitative study designs would provide evidence relevant to the objective of this scoping review and the intention was therefore to include a broader range of study designs than previously included in systematic reviews of reablement. A scoping review was considered appropriate in order to identify and map different types of evidence related to PA in reablement.
The objective of this systematic scoping review was to identify and map existing evidence of how PA strategies are integrated and explored in studies of reablement for community dwelling older adults and also to identify knowledge gaps that are important for further research.
More specific, the questions of this review were:
We used a systematic scoping review method following recommendations from the Joanna Briggs Institute (23, 24). The study was reported based on the Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) (25). A protocol was published prior to the review (26).
Types of participants
To be included, the studies had to focus on older adults aged 65 years and over that were in receipt of reablement services. Studies focusing on HCPs working with reablement and family members of reablement participants were included. Studies focusing on people requiring end-of life care were excluded.
Concept
Studies that investigated or explored the concept of reablement were included. The reablement intervention had to be delivered by several types of HCPs (involving at least two disciplines of health professionals or one discipline in addition to allied health personnel), aiming to improve functional ability and be person-centered (i.e. targeted to the participants’ individual goals). Studies investigating reablement with no time-restriction or a duration of more than six months were excluded. Studies focusing on home rehabilitation targeting people with one particular diagnosis (e.g. heart failure, hip fractures, stroke, osteoarthritis) were also excluded. Studies were included regardless of whether or not they reported any information related to PA, since it was an aim to map both the existence of, and the absence of information related to PA in reablement studies.
Context
To be included, the reablement intervention had to be provided by homecare services (e.g. managed by local government or not-for-profit agencies) in the participants’ home (including a variety of housing arrangements) or local environment. Studies focusing on reablement interventions provided in long-term care facilities/nursing homes or housing arrangements with 24-hour care were excluded. Studies investigating reablement in relation to transition from a hospital setting were included if they met all other eligibility criteria. There were no restrictions regarding country of origin of the studies.
Types of sources
This review included original peer-reviewed scientific studies with different designs, including (but not limited to) intervention studies (e.g. Randomized Controlled Trials (RCTs), controlled trials, case control studies), qualitative studies, quantitative research and mixed method research. Reviews, cost-effectiveness studies and study protocols were excluded. Text (e.g. political documents or government recommendations) and opinion papers were also excluded. Studies published in English, Norwegian, Danish, Swedish and German were considered for inclusion. Reablement is a relatively young intervention with the majority of studies being published in the 2000s (3, 4, 6, 7, 27). Given the search by Cochrane et al. (6) had no date restrictions yet found few studies (i.e. only those in the 2000s), we decided like Ryburn et al. (27) to only include studies published in 1996 or later.
Firstly, an initial limited search in PubMed and CINAHL was undertaken to identify relevant key words and search terms used in titles and abstracts in studies published within the field. Based on search terms identified in this initial search, a search strategy was developed with assistance from a librarian. PubMed, Cochrane central register of controlled trials, Embase, PsycINFO, AMED, PEDro, CINAHL and Google Scholar were all searched from 1996 to August 2019, with the latest update of the search being made July 30th 2019. Although we initially intended to search for grey literature, we decided to only include peer-reviewed published studies, since there are no specific recommendations for inclusion of grey literature in scoping reviews (23). Therefore, we did not find it necessary to search ProQuest as reported in the protocol. The search strategy for PubMed is presented in an additional file (see Additional file 1). and includes search terms related to participants (aged/older adults) and concept (reablement). We did not include search terms related to context, to avoid narrowing the search and risk missing studies that did not explicitly describe the context. Relevant MeSH terms and headings were identified and used where required. Only English search terms were used in the search strategy. The language changed slightly depending on the database, however the main key words were used throughout. Additionally, the reference lists of included studies were searched and a citation search of included studies was performed through Google Scholar in order to identify eligible studies that had not been identified through the previous search strategy.
After removing duplicates, two reviewers (HLM, CFM) independently performed screening of titles and abstracts and excluded studies not meeting the inclusion criteria. Remaining studies were retrieved in full-text and further evaluated for eligibility independently by two reviewers (HLM, CFM). Disagreements were solved by discussion or by involving a third reviewer for consensus (LU or EB). Authors of 24 studies were contacted for additional information related to our inclusion criteria. Rayyan (28) and End Note X8 (Thomson Reuters, 2017) were used to manage records and data throughout the selection process.
Data charting forms were developed by the research team (HLM, CFM, EB and LU) and piloted by two reviewers (HLM and CFM) prior to data extraction. Data extraction was made independently by HLM and CFM and then compared in order to reduce errors.
Extracted data included information about author, year, country, aim, study design/method, intervention and comparative intervention (if applicable), duration of intervention, HCPs involved, characteristics of reablement receivers- including age distribution if provided, sample size/informants. The following specific information related to the scoping review questions was extracted: Characteristics of general PA facilitation, exercise characteristics, experiences related to PA (by older adults, HCPs or family members) and information of assessment of physical fitness and assessment of PA levels. An additional data extraction was made by HLM to identify PA-related terms used in each study.
Data mapping and summarization was conducted by one reviewer (HLM) in cooperation with the rest of the review team. For the second scoping question (experiences and barriers related to PA), meaningful units of text from the studies were extracted, condensed and systematized in an additional Excel spreadsheet. The findings were mapped and summarized and presented in text and tables.
Figure 1 Prisma Flow diagram
(Add Figure one here)
(Legend): Adapted with permission from the PRISMA Group (29)
After screening 2,304 unique records, of which 236 were examined in full-text, 43 articles met our eligibility criteria and served as the overall data material for the scoping review (illustrated in Figure 1- Prisma Flow Diagram). Among these studies were 12 intervention studies, including five RCTs (30-34), five non-randomized controlled trials (35-39) and two non-controlled pre-post study (40, 41), in addition to one RCT long-term follow up study (42); four studies with mixed design/other (43-46); three studies based on quantitative research (47-49); and 23 qualitative studies, of which 15 focused on HCPs’ perspectives (50-64), six on older adults’ perspectives (65-70) and two on family members perspectives (71, 72).
In most of the included studies, the terms reablement or restorative care were used (n= 39). However, four of the studies that met our inclusion criteria did use other intervention terms including ‘homecare rehabilitation service specially trained in falls identification’ (39), ‘supported discharge team’ (32), ‘everyday rehabilitation’ (63) and ‘rehabilitative eldercare/homecare’ (62). Different groups of HCPs were represented in the interdisciplinary teams including OTs (n=41), PTs (n=36), RNs (n=11) or nurses (n=26), allied health personnel (n=40) and social educators/managers (n=7). All of the included studies served as the collective data material for investigating how PA was described and explored in reablement research. Intervention studies are presented in Table 1, and studies that provided additional information about PA characteristics or provided information about PA experiences or barriers are presented in Table 2. Further information and study details of all included studies is presented in an additional file (see Additional file 2).
Q1 -Extensiveness and characteristics of physical activity strategies in reablement
Characteristics of general PA interventions
Five Australian studies aimed to specifically investigate PA-related inquiries in a reablement setting (30, 42-44, 47). In one of these studies PA/Exercise interventions were described in detail, including intensity of the intervention (30) and two of the studies referred to government recommendations of PA in the background of the studies (43, 44). With the exception of these studies, the term physical activity was rarely mentioned in other studies. Instead, a range of terms that were likely to involve some degree of PA were used, such as training, training in daily activities, practicing ADL-activities, physical training, being active or enhancing active engagement or independence in daily activities. Also, broader terms such as rehabilitation, occupational therapy, physiotherapy or reablement intervention were used in contexts, in which it was likely that some degree of PA was involved.
Encouragement of active engagement and practicing/training ADL- tasks were explicitly reported as part of the reablement intervention in nine of 12 intervention studies (30-36, 38, 41). These activities were related to the older adults’ individual goals for reablement and could include activities such as indoor or outdoor mobility, dressing, bathing, kitchen activities, household activities and social/leisure activities. However, in most studies it was not possible to capture if and to what degree/intensity the activity training involved PA. Only one (American) study mentioned sedentary behavior, and explicitly mentioned that the interventions were (among other aims) aimed at reducing sedentary behavior among participants (46). Terms such as inactivity or passivity were rarely used.
Characteristics of exercise interventions
Exercise interventions were reported to be included in nine of the 12 intervention studies. Of these, six studies reported only overall aims/characteristics of the exercises, such as ‘exercise programs targeting strength, balance or endurance’ (31, 32, 36-39). One Australian intervention study (30), two Norwegian intervention studies including referrals to their study protocols (33, 35, 73, 74), and also one Norwegian field study (including three publications) (53-55) reported additional characteristics of exercise interventions provided through reablement. Two different overall exercise approaches were described in these studies, including i) standardized exercise programs (30, 54) and ii) individually targeted/ adapted exercises (30, 33, 35).
Burton et al. (2013) was the only study that provided detailed descriptions of PA and exercise interventions incorporated in the reablement intervention (30). The aim of that study was to compare a lifestyle exercise program (LiFE) with a standardized structured exercise program in an Australian reablement setting (30, 42). The LiFE program was aimed at improving balance, increasing strength and preventing falls by embedding exercises into everyday activities. The program included 18 different exercises/tasks (e.g. knee bends, walking up stairs, tandem stand or walking, one leg stand; these were further specified in the article) that were incorporated into daily activities. The exercises were to be performed every day and did not require additional time. The control intervention of this study was a structured exercise program, which had been part of the restorative care services for years. The structured exercise program included eight prespecified balance and strength exercises (e.g. sit to stand, stand and reach, toe taps) that the participants were asked to do in five repetitions three times a day (approximately 15-20 minutes per day).
In the two Norwegian intervention studies by Tuntland et al. (2015) and Langeland et al. (2019), it was described that daily training in activities was part of the general features of reablement, while exercise programs were recommended as individual features to improve strength, balance or fine motor skills (33, 35, 73, 74). In the study by Eliassen et al. (2018), they explored different perspectives of physiotherapy practice and supervision in reablement in Norwegian municipalities, and found that exercises were provided in all observed cases and that reablement plans contained elements of both exercises and daily activities (53-55). Though, while some of the teams mainly emphasized standardized exercises, other teams put more emphasis on daily activities in addition to targeted exercise strategies (53).
The intensity for follow-up of exercises by HCPs was different between studies. Burton et al. (2013) described that health professionals provided an average of three visits to participants, and that the participants were instructed to do the exercises unsupervised (30). At the visits in that study, the health professionals described the different exercises, discussed with the participants how they could incorporate the exercises into their daily routines (for the LiFE program) and provided support and encouragement for doing the exercises as well as other areas of their reablement. Tuntland et al. (2015) and Langeland et al. (2019) reported more frequent visits and described that HCPs would be present during daily training to build confidence, relearn skills and stimulate the participant in self-management and self-training (33, 35). They also reported that the participants would be encouraged to perform exercise programs on their own.
The duration of the exercise interventions in Burton et al. (2013) was 8 weeks (with care manager assistance) (30), while Langeland et al. (2019) reported a maximum of 10 weeks duration (average 5.7 weeks) (35) and Tuntland et al. (2015) a maximum of 3 months (with an average of 10 weeks) duration of the reablement intervention (33). Some of the included studies reported that written and/or illustrative manuals of the exercises/training was provided (30, 33, 44, 54). None of the studies reported using equipment for PA/Exercise.
Targeting and progression of PA interventions
In some of the studies, it was reported that exercises were provided to reablement users if they had an individual need for this (30, 33). However, none of the studies provided information about how the individual needs for exercises or PA were assessed. In the LiFE RCT study by Burton et al. (2013), only older adults that had been prescribed an exercise intervention by their care manager (health professionals, including PTs, OTs or RNs) were included in the study (30). Of the entire group receiving reablement, only 5.4 % met the eligibility criteria of the study; one of which included that they had been referred to an exercise program. This could indicate that only a minority of reablement receivers in that setting was considered to benefit from participating in an exercise program. In a questionnaire study undertaken in the same state of Australia as the LiFE RCT, 30% of reablement clients recalled being given an activity program, and a third of them reported having been encouraged to be more physically active (47).
Several of the studies reported that exercises were progressed and adapted during the reablement period according to the older adults’ development of function (30, 32, 44, 53). In the LiFE program and the structured exercise program in the study by Burton et al. (2013), progression of exercises was reported to be included, but it was not described how the need for progression was assessed (30). In the structured exercise program, it was reported that the participants were to progress to level two exercises on the back of the exercise sheet. In the field study by Eliassen et al. (2018), the researchers observed that the characteristics of the targeting processes of the exercises were mainly divided into two groups; i) standardized approaches and ii) individually tailored approaches (53-55). In the standardized approaches, allied health personnel conducted training sessions based on standardized exercise programs. In these cases the reablement plan (including the exercises) was provided by the PTs, and the allied health personnel made minimal adjustments to this. In the second group, Individually tailored approaches targeting quality of movement, the exercises were individually targeted based on extended examinations and assessments by PTs, including functional analysis regarding movement and structure of muscles and joints, in addition to standardized physical performance tests. In these teams, the allied health personnel were instructed about movement quality, however it was described that only a few of them were able to pay attention to the small details of the instructions (54). Similar to this second approach, Moe et al. (2016) reported from another Norwegian field study, that exercises (and other therapeutic activities) were based on a detailed screening that identified activity goals and functional impairments, as well as other factors contributing to functional loss such as pain, malnutrition and medication use (69). Several of the studies described that the role of the health professionals was to be a consultant and/or advisor, including developing and adjusting a rehabilitation plan and supervise allied health personnel. The allied health personnel were then responsible for following up on the training, including e.g. encouraging, supporting and ensuring security when the older adult performed everyday activities and/or exercises (53, 54, 58, 62).
Compliance of PA recommendations
Burton et al. (2013) was the only study that had assessed compliance with exercises during the intervention period, by using an exercise adherence diary (30). They found that participants undertook exercises on average 4.91 times a week (in the LiFE group) and 4.42 times a week (in the structured exercise group). In the six-month follow up study it was reported that the participants in both groups still undertook exercises, though a little less often (average of 3.45 times per week) (42).
(Add Table 1 here)
Q2 -Experiences and barriers for PA
Older adults’ perspectives
Six qualitative studies explored older adults’ experiences of participating in reablement (65-70), of which three qualitative studies (two Norwegian and one from the United Kingdom) (67, 69, 70) and also one mixed method study(45) touched upon themes related to PA, which are summarized in the following. Additionally, one Australian mixed-method study investigated motivators and barriers to being physically active for older people (70+) that previously had received either reablement or usual home care services (43), and one Norwegian quantitative study explored which occupations and rehabilitation goals older people prioritizes in a reablement setting (75).
In a field study by Moe et al. (2016), the older adults experienced physical strengthening to be essential for their progress and that physical strengthening also led to increased participation in other activities in their daily life (69). Some older adults reported that they felt insecure when participating in activities, due to fear of injury or overload of body structures (69). However, they experienced that self-confidence to manage exercises and activities was built during the reablement period and was strengthened by doing activities repeatedly (69). Similarly, Hjelle et al. (2017) found that the older adults’ willpower to engage in exercises and everyday activities evolved during their recovery (67). The older adults’ determination and willpower was considered important for their engagement in exercise and performing everyday activities (67).
Encouragement, support, supervision, and a push by reablement staff was considered a motivational factor for increasing PA (67, 69). The support from the reablement staff stimulated some older adults to do exercises/activities on their own and also to continue PA after the reablement period, while others were only motivated when the staff were encouraging them (67). Older adults reported that they preferred to plan their own day themselves, including deciding when to perform training and activities, and that being in their home environment stimulated them to be independent and take part in everyday activities (67). Organizing the home to make it safer and easier to maneuvre inside, as well as reducing barriers for outside activities were also reported as important for activity performance (69).
Some of the older adults expressed that they considered exercising or training to be something different than practicing activities (67). They considered training in reablement as doing physical exercises in order to improve physical strength, balance or range of motion, but they did not consider ADL as training, although the HCPs facilitated training in ADL as well as suggesting various physical exercises. In a study from the UK by Wilde et al. (2012), service users expressed frustration at the limited access to wider sources of professional expertise (social workers and OTs were involved in that setting), particularly with the aim of maintaining or improving their ability to walk outdoors and manage stairs so that they could participate in social activities (70). Likewise, another UK study reported that outdoor mobility goals were difficult to reach due to fluctuations in the users’ health or weather conditions (45).
Tuntland et al. (2019) investigated what types of activities or tasks that older adults that had participated in an Norwegian RCT (33) reported as difficult to perform, and which activities they prioritized as rehabilitation goals (75). They found that fracture and dizziness/balance problems were the most frequent reasons for needing reablement. Functional mobility goals, such as going for a walk, climbing stairs, transferring or outdoor mobility were most frequently prioritized (35% of prioritized sub-areas), followed by personal care activities, such as taking a shower or dress/undress (18% of prioritized sub-areas) and household activities, such as preparing food or cleaning/vacuuming the house (15% of prioritized sub-areas).They also reported that some of the responses remained unclassified (3.5%) because they were mainly impairment-based goals such as improving balance, strength or memory, rather than activity-based goals.
Burton et al. (2013) found in their mixed-method study that health and fitness (reported by 56.3% of reablement receivers) and well-being (55.3%) were the top two reasons participants gave for being active, followed by enjoyment (48.4%), social/family (44.7%) transport (20%), weight loss (18.6%), walking the dog (11.6%) and competition/challenge (7%). The highest ranked barriers were ongoing injury/illness (reported by 45.6% of reablement receivers) and feeling too old (41.4%), followed by temporary injury/illness (17.7%), nobody to be physically active with (12.1%), lack of transport (11.6%), cost (7%), nowhere to be physically active (4.7%), not interested (3.7), do not know how to be physically active (1.9%) and lack of time (3.7%) (43).
HCPs’ perspectives
Fifteen qualitative studies and two mixed method/feasibility/implementation studies investigated inquiries based on HCPs experiences or perspectives on reablement (44, 46, 50, 52-64, 76), but none of these specifically aimed at investigating or exploring HCPs’ experiences related to PA facilitation. However, some of the studies – of which five were Norwegian (53-55, 58, 60), two were Danish (51, 62), one Australian (44) and one from the USA (46), brought up perspectives from HCPs related to activity training or exercises, which are presented in the following.
HCPs considered the organization of tasks between health professionals and allied health personnel to be beneficial for reaching out to a larger population and for giving more intensive training (54, 58). However, it was also reported that the competencies of the allied health personnel and the team collaboration could have impact on the content of the training or exercises (46, 53-55). HCPs in several of the studies noted that it was advantageous to implement simple and recognizable exercises, that could easily be explained to both the allied health personnel and the older adults (44, 46, 54). It was considered beneficial to use written instructions for the exercises/training (44, 46), and in one study they reported lower compliance among users when e.g. giving complicated verbal instructions without leaving written instructions (46).
In some reablement settings, the ability to target the exercises/training to the older adults’ individual needs, including a focus on movement quality, was more emphasized than standardized exercise programs (53). In these teams, a more intense collaboration between health professionals (PTs in this case) and allied health personnel was observed, including both formal and informal meeting-points, as well as on-going supervision and common reflection in the team. It was emphasized that allied health personnel had the required competencies to follow up individually targeted interventions, that they were capable of independent evaluations of the older adults’ function and independence during the period, and also that they had sufficient competence to evaluate the need for additional therapeutic assistance (53). The allied health personnel in these teams expressed that it was difficult to point out what to look for, but that they learned along the way. Thus, this approach relied more on building the competencies of allied health personnel, which was reported as a limitation in other settings (46, 54).
The roles of the allied health personnel were found to be transformed from being carers to become trainers and implied a change of mindset of what it means to be a good carer (76). However, this transformation of mindset could also lead to discrepancies regarding different disciplinary views and norms related to caring and rehabilitation (76). Phrases such as keeping your hands behind your back and don’t take over for the citizen were reported to be commonly repeated in a Danish reablement setting, and HCPs were reported to increasingly assume a physically passive position, including a more distanced, observational and instructing practice (62).
One study investigated HCPs perspectives regarding family members of older adults in a reablement setting (60). They found that family members were sometimes considered a resource, that could facilitate the older adult to participate in additional activities. However, the family members could also be a barrier to (physical) activity, by taking over the older adults daily activities. Several studies reported that the knowledge and values related to the benefits of PA and active aging sometimes were met with skepticism or resistance from older adults themselves, family members, HCPs or by habitual traditions of running healthcare services (46, 60, 64, 76).
Family members’ perspectives
Three Norwegian studies had investigated family members’ perspectives (including relatives, adult children and caregivers/spouses) and experiences with reablement (69, 71, 72), and two of them touched upon some themes related to PA (71, 72). Family members expressed that they wanted information about how to support and motivate the older adult to engage in PA (71, 72). However, some of them expressed that taking this responsibility was problematic (72). Some of the family members perceived that it was difficult for them, in the role as a family member, to facilitate PA, and that the older adult (their mother/father etc) were more likely to listen to PA advice from the reablement staff (72). Some of the family members missed follow-ups, including motivation to train and practice to ensure that the older adults’ achieved function was maintained after the reablement was finished (71).
(Add Table two here)
Q3 -Assessment of physical fitness and PA levels
Physical fitness
Five of the 11 intervention studies that were included (three Australian studies and two Norwegian studies) reported using at least one standardized clinical measure of physical fitness (30, 31, 33, 35, 36). Timed up and Go (TUG) was most frequently used (n=4) with the aim of measuring functional mobility (30, 31, 33, 36). One study used the Short Physical Performance battery (SPPB) to measure lower extremity strength, walking speed and static balance (35). Specific strength assessments included Sit-to-stand one repetition and five repetitions (30) and Grip Strength/Dynamometer (33), while specific balance assessments included Functional reach/static balance (30) and Tandem walk/dynamic balance (30). Follow-up measures of physical fitness in the intervention studies were made at 8 weeks (30), 10 weeks (35) three months (31, 33, 36), six months (35, 42), nine months (33) and 12 months (31, 35, 36). Eliassen et al. (2018) reported in their field study that SPPB was used as a standard assessment method in all of the seven included Norwegian municipalities, and that some of the municipalities also used additional tests (no further details provided) related to movement quality (54).
Among the included RCT-studies, the two studies that reported mobility outcomes (TUG) did not have comparable comparison interventions (one compared two different exercise interventions in reablement and the other compared reablement with standard homecare services) (30, 33). Thus, a synthesis of this evidence would not be considered adequate. Among the non-RCTs, more positive results for physical fitness outcomes were reported (for TUG and SPPB), however the design of these studies meant that the risk of bias was too high to be included in a synthesis of outcomes. No other outcome measures related to physical fitness were comparable in the RCTs. Overall, the only significant differences related to physical fitness in an RCT study was reported by Burton et al. (2013), that reported significantly better outcomes in balance (tandem walk) in the reablement + LiFE program compared to reablement + structured exercise program (30).
Physical activity
None of the intervention studies assessed levels of PA or sedentary behavior. However, one Australian RCT reported using an exercise diary to assess adherence (30). One feasibility study (44) used the physical activity scale for the elderly (PASE) to assess habitual PA among older adults receiving reablement in an Australian setting. They also used an accelerometer to assess energy expended over seven days. It was however, decided not to include accelerometer assessments in the following RCT because of poor compliance and potential for causing discomfort to some participants (44).
The only study that reported PA levels among older adults (that previously had received either reablement or usual care), was an Australian questionnaire study (n=506) that used the self-reported PASE questionnaire to assess and compare PA levels between participants receiving reablement and usual care (47). They found that 77.7% of all respondents reported that they were physically active for the recommended minimum 30 min of moderate exercise each day, and that there were insignificant differences between groups (47).
We conducted a systematic scoping review with the aim of mapping existing evidence of how PA strategies have been integrated and explored in reablement research and to identify knowledge gaps. We identified and mapped evidence of how PA strategies have been integrated and explored in 43 studies of reablement. The scoping review revealed that PA recommendations, such as the WHO recommendations (77), were rarely mentioned, and that the degree and intensity of PA or inactivity/sedentary behavior among older adults’ receiving reablement has been given little attention in research.
The scoping review showed that there was little information regarding the causes of functional decline among older adults receiving reablement. Baseline measures of physical fitness in the identified intervention studies indicated that the older adults in general had reduced physical fitness, which is likely to be part of the causes of functional decline (30, 31, 33, 35, 36). It should be further investigated how reablement is targeted to these causes in order to improve the effectiveness of reablement. PA levels have been found to correlate with physical fitness among older adults in other settings (10), but none of the identified intervention studies in this review included information about the PA levels among older adults in receipt of reablement.
Functional mobility, such as walking, stairwalking, transferring or outdoor mobility was reported as commonly prioritized goals among older adults receiving reablement (75). These types of activities are premises for participating in a large range of daily activities, both indoor, outdoor and social activities. It was reported that older adults participating in reablement perceived that improvements of functional mobility or physical strengthening lead to increased participation in other activities, increased self-confidence, and helped them to increase the freedom to plan their daily activities themselves (67, 69). This may suggest that a focus on improving basic functional mobility and physical fitness is essential both for achieving the individual goals of the older adults, as well as for increasing general activity levels and participation. Older adults’ experiences of PA in a reablement setting should be further investigated.
The older adults’ individual goals were reported by HCPs as crucial to their development of a reablement plan (50, 56, 59, 61, 64). Although facilitation of activity through practicing daily activities or enhancing participation in daily activities seem to be a central component of reablement, the degree of PA involved in these activities may vary considerably, depending on the activities involved and the functional levels of the older adult. Thus, there may be large differences to the degree of PA involved in reablement. An increased focus on PA behavior may be helpful in order to improve the older adults’ achievement of their goals and also for maintenance of function after reablement. It should be further explored if PA recommendations such as the ones recommended by WHO are feasible and effective in a reablement setting, and also what type of support the older adults’ need in order to maintain PA and function after reablement.
Several of the included studies reported that societal expectations regarding aging and activity influenced PA facilitation in this setting, both from the older adults themselves, family members and HCPs (46, 60, 64, 76). HCPs should be aware of such existing assumptions when informing about PA. It was also reported that the older adults’ motivation and confidence related to PA increased along with their experiences of PA and improvement of function (67, 69). This is in line with findings in other settings, where older adults perceive that the value and enjoyment of being physically active are important factors for participating in PA interventions, and that positive PA experiences increases their motivation of PA (78). Thus, the HCPs may need to adapt their motivational strategies continually during the reablement period in order to facilitate PA as part of the reablement intervention.
Although exercises often were reported as a component of reablement, the characteristics of these interventions were in general poorly reported and it was unclear how HCPs made judgments and recommendations regarding PA and exercises. One of the priority areas of the WHO within their physical activity strategy for 2016-2025 is to improve the quality of advice on PA by HCPs to older people (21). Reablement may be a convenient setting for integrating and developing such recommendations, due to its features of being person-centered and intensive (78). There is a need to further investigate how HCPs can facilitate PA in a reablement setting in an effective way and how HCPs can overcome the barriers reported by older adults. Also, there is a need to further investigate what type of competencies and resources are required by HCPs to facilitate PA and how PA should be prioritized among other components of reablement in a reablement setting. Furthermore, there is a need to further investigate the evidence-base supporting reablement, and how evidence-based strategies and person-centered strategies are appropriately united in reablement practice.
Figure 2 Gaps of knowledge
(Add Figure 2 here).
Strengths and limitations
A strength of this scoping review was the comprehensive search strategy aiming to identify a broad range of study designs related to the topic. We also followed acknowledged method recommendations for scoping reviews and did duplicate study selection and data extraction in order to reduce bias.
A limitation to the study is that the eligibility criteria that we used may not have captured all types of reablement interventions, due to the variability of reablement characteristics. However, by building on a reablement definition used by one of the latest systematic reviews in the field (6), we aimed to capture the main essence of reablement research. Since PA in general was vaguely described and defined in the included studies, the extraction of data related to PA experiences were based on the reviewers’ discretion, which can be a limitation to the reliability of the study findings. However, by pilot-testing the data extraction forms and performing data extraction in duplicate, it was enhanced to optimize the consistency of this process. Another limitation to the study is that we did not use search strategies with other search terms than English, and we may have missed eligible studies in the other languages that we intended to include. Although the time-limitation used in the search strategy may seem a limitation to the study, our findings strengthened our anticipation that the main body of literature was published in the latest part of the last two decades. This scoping review did not consider quality of the included studies, and thus it was not possible (or intended) to synthesize and evaluate research evidence. Rather, the intention was to identify and map the current evidence in order to identify gaps of knowledge for future research.
Conclusion
There is limited evidence of how PA is integrated in reablement, including how PA strategies are targeted to older adults’ individual needs and preferences in a reablement setting. Also, there is a lack of understanding concerning the knowledge and competencies that are required by HCPs in order to facilitate PA among older adults receiving reablement. While PA levels are known to be highly related to older adults’ physical fitness and function in other settings, there is limited evidence regarding how reablement influences PA levels and physical fitness. Further research is needed to explore how PA should be integrated in reablement and how it should be prioritized among other intervention components included in reablement.
PA: Physical Activity
HCP: Health Care Providers
PT: Physiotherapist
OT: Occupational therapist
RN: Registered nurse
TUG: Timed Up and Go
SPPB: Short Physical Performance Battery
STS: Sit-to-Stand
PASE: Physical Activity Scale for the Elderly
RCT: Randomized Controlled Trial
Ethics approval and consent to participate
Not Applicable
Consent for publication
Not Applicable
Availability of data and materials
All data generated or analyzed during this study are included in this published article and its supplementary information files.
Competing interests
None of the authors participating in the review (HLM, CFM, EB and LU) have any conflicts of interest.
Funding
This study is part of a PhD project undertaken by the first author, HLM, and funded by Nord University, Norway. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.
Authors’ contributions
HLM carried out searches (in cooperation with a librarian), did study selection, data extraction, mapping of results and made a draft of the manuscript. CFM carried out duplicate study selection and data extraction. EB and LU were involved to solve discrepancies between reviewers. All authors (HLM, CFM, EB, LU) contributed to the design and development of the study protocol of this study, revision of the manuscript and accepted the final version of the manuscript. All authors agree to be personally accountable for the author's own contributions and to ensure that questions related to the accuracy or integrity of any part of the work, even ones in which the author was not personally involved, are appropriately investigated, resolved, and the resolution documented in the literature.
Acknowledgements
We thank Marit Veie, librarian at Nord University, Norway, for guidance in the development of the search strategy and assistance with performing searches in scientific databases.
Table 1 Intervention studies with PA characteristics and assessment methods for physical fitness and PA levels
Author Year Country |
Design |
Intervention |
Control intervention |
Duration of intervention |
HCPs |
Sample size (each group) |
Characteristics of general PA facilitation |
Exercise characteristics |
Assess-ment of physical fitness |
Assess-ment of PA levels |
Intervention studies – RCTs (n=6) |
||||||||||
Burton et al. (30) 2013 Australia |
Parallel pragmatic RCT |
Restorative care + LIFE (lifestyle functional exercise program) |
Restorative care + standard exercise program |
8 weeks |
OTs |
80 (40, 40) |
Include promotion of active engagement in activities of daily living. |
Yes. Detailed descriptions provided (elaborated in text) |
Functional reach |
Exercise diary |
Burton et al. (42) 2014 Australia |
Pragmatic |
Restorative care + LIFE (lifestyle exercise program) |
Restorative care + standard exercise program |
8 weeks |
OTs |
80 (40, 40) |
Refers to Burton 2013 |
Same as Burton 2013 |
Same as Burton 2013 |
Exercise diary |
Tuntland et al. (33) 2015 Norway |
Parallel-group superiority RCT |
Reablement |
Usual care |
Max 3 months (average: 10weeks) |
OT |
61 (31,30) |
Training in daily activities such as dressing, food preparation, vacuuming, bus transport, visiting friends at a club, or being able to knit |
Exercise programs were recommended as individual features, such as indoor or outdoor walking with or without walking aids, climbing stairs, transferring and performing exercises to improve strength, balance or fine motor skills |
TUG |
No |
Lewin et al. (31) 2013 Australia |
RCT |
HIP (the home independence programme). A restorative home-care program |
Usual home care |
Max 12 weeks |
RNs |
750 (375, 375) |
Promotion of active engagement in daily activities. |
Strength, balance and endurance programs for improving or maintaining mobility. |
TUG |
No |
Whitehead et al. (34) 2016 United Kingdom |
Feasability parallel group RCT |
Reablement + OT intervention |
Reablement |
6 weeks +/- |
Social care workers |
30 (15/15) |
Practicing ADL-activities was part of the intervention |
Not reported |
No |
No |
Parson s et al. (32) 2018 New Zealand |
RCT |
Supported discharge team |
Usual care |
Max 6 weeks |
Healthcare assistants PTs OTs Geriatrician |
183 (97,86) |
Utilize functional rehabilitation principles to maximise recovery through incorporating exercises within ADL tasks. |
Exercises progressively incorporated within ADL tasks |
No |
No |
Intervention studies – Not RCTs (n=6) |
||||||||||
Lewin et al. (36) 2010 Australia |
Non-randomized controlled trial |
HIP (the home independence programme). A restorative home-care program |
Usual care |
Up to 12 weeks. Average 62 days |
Nurses |
200 (100/100) |
Interventions included promotion of active engagement in a range of daily living activities |
Interventions included strength, balance and endurance programmes for improving or maintaining mobility |
TUG |
No |
Whitney et al. (39) 2015 USA |
Retrospective quasi-experimental two-group design |
Usual home care rehabiltiation service specially trained in falls identification and prevention (Safe Strides) |
Usual home care rehabiltiation service |
Mean duration in inter-vention group was 52.6 days |
Nurses |
3902 (2121/ 1781) |
Not specifically reported |
Targeted exercise programs focused on improving mobility and safety in the home were mentioned in discussion section. |
No |
No |
Winkel et al. (41) 2015 Denmark |
Non-randomized pilot study |
Reablement |
(No comparison) |
12 weeks |
Home carer |
91 |
The role of the home carer was to verbally and physically support and motivate the participant to perform the ADL tasks. |
Not mentioned |
No |
No |
Tinetti et al. (37) 2002 USA |
Controlled clinical trial |
Restorative care |
Usual home care |
3 months |
Nurses |
1382 (691,691) |
Not reported |
The treatment plan included various combinations of exercises and training (not further elaborated, refers to Baker 2001) |
No |
No |
Tinetti et al. (38) 2012 USA |
Quasi-experi-mental; matched and unmatched |
Restorative care
|
Usual home care
|
Mean duration 20.3 days +- 14.8 days |
Nurses PTs OTs Home health staff |
770 (410/360) |
Treatment plans targeted physical impairments and tasks of daily living. Included training and counseling of participant, family and caregivers (content of training not specified). |
Treatment plan included various combinations of exercise |
No |
No |
Langeland et al. (35) 2019 Norway |
Clinical controlled trial in 36 municipalities |
Reablement
|
Standard care
|
Maximum 10 weeks; mean 5.7 weeks |
OTs |
849 (707/121) |
Intensive attention was given to encourage participation and stimulate daily training for the participants, including performing their daily tasks themselves. |
Exercise programs such as performing exercises to improve strength, balance, or fine motor skills. The exercises will be incorporated into daily routines and the participant will be encouraged to train on their own. |
SPPB |
No |
Slater et al. (40) 2018 United Kingdom |
A retrospective cohort design
|
Reablement
|
No comparison
|
6 weeks*
|
OTs
|
416
|
Not reported |
Not reported |
No |
No |
* information from personal contact with author. |
Table 2 Other studies providing information of PA experiences and PA characteristics
Author |
Aim |
Method |
Duration of intervention |
HCPs involved |
Informants |
PA Characteristics |
PA Experiences |
Perspectives of older adults |
|||||||
Burton et al. (43) 2013 Australia |
To identify the motivators and barriers to being physically active for older people receiving either restorative or “usual” home care services |
Cross-sectional mixed method study using questionnaire and interviews |
Minimum 4 weeks, generally 6-12 weeks* |
RNs |
Questionnaire: 506 Older adults |
Not reported |
Facilitators/ barriers for PA among previous reablement receivers are reported |
Hjelle et al. 2017 Norway |
To describe older adults experience of reablement |
Qualitative Interviews (part of larger research programme; Tuntland 2015) |
Max 3 months |
OT |
8 older adults |
Same as Tuntland 2015 |
Own will-power and responsibility Encouragement and motivation from HCPs Home environment stimulated to activity Understanding of PA-related terms |
Wilde et al. (70) 2012 United Kingdom |
Not clearly stated, but the title informs that the perceptions and experience of users of home-care reablement services are in focus. |
Interviews |
Normally up to 6 weeks, with some flexibility* |
Homecare staff with additional training. OTs regarded as essential members of the team* |
34 service users 10 carers |
Focuses on increasing service users ability to perform tasks such as getting up, washing, bathing, moving around the home and other daily living activities such as preparing drinks and light meals |
Expressed frustration at lack of professional expertise to improve/maintain outdoor mobility |
Moe et al. 2016 Norway |
To generate a grounded theory of service users' and their caregivers' experiences of reablement |
Grounded theory; focus groups, interviews and observation |
Average duration of 6 weeks, maximal duration of 6 months* |
Nurse OTs PTs Nurse assistants |
17 services users, 10 carers |
Includes doing repetitive practice of activities of daily life at home and in the neighbourhood. Exercises included based on a detailed screening that identifies activity goals and functional impairments, with a focus on physical strengthening. |
Values/knowledge of PA Physical strengthening could boost participation in other activities Experiences of insecurity for injury and overload Self-confidence for PA was build during the reablement Encouragement and motivation from HCPs was important Reducing environmental barriers (indoors/outdoors) |
Tuntland et al. (48) 2019 Norway
|
To explore which occupations/activities older people with functional decline find important to improve, which of these they prioritize as their rehabilitation goals, and what factors are associated with these priorities |
A cross-sectional study based on data from a nationwide trial (Langeland 2019) |
Mean 5.7 weeks (majority between four and six weeks) |
OTs PTs Nurses Auxiliary nurse Home helpers |
738 reablement receivers |
Same as Langeland 2019 |
Goals related to functional mobility was most often prioritized, followed by goals related to personal care and household activities |
Whitehead et al.(45) 2018 United Kingdom |
To provide a detailed description of the content of the occupational therapy intervention that was provided in the OTHERS trial, and to evaluate whether the intervention was acceptable to the participants who received it |
Feasability/ evaluation study (Part of a feasibility RCT); questionnaire and interviews
|
Median length of reablement episode was 56 days (range: 20-126 days)
|
OT
|
Interviews: 5 older adults
|
Practicing ADL activities was included in intervention
|
Outdoor mobility goals were difficult to reach due to fluctuations of health condition or weather. |
Perspectives of HCPs |
|||||||
Hjelle et al. (58) 2018 Norway |
To explore and describe the roles of interdisciplinary teams in reablement services in a Norwegian setting |
Focus groups + interviews |
Max 3 months in the rural setting, 4 weeks duration in the city |
OTs |
27 HCPs |
Same as Tuntland 2015 |
Beneficial organization for reaching more users |
Jakobsen et al. (60) 2018 Norway |
To describe HCPs ’perspectives of next of kin in the context of reablement. |
Focus groups |
Often 4-6 weeks |
PTs OTs RNs Social educators Other employees of the home care services |
49 HCPs |
HCPs assisted the older adults with practising everyday activities and an individual physical training program |
Values/knowledge of PA Relatives as a facilitator/barrier for PA |
Meldgaard Hansen (62) 2016 Denmark |
To analyze and discuss how the bodywork of homecare develops and is framed as clean, non-dirty work in the context of rehabilitative homecare |
Ethnographic fieldwork |
Average of 8 weeks in one unit, not specified in the other unit* |
PTs |
Two homecare units; 30 interviews with homecare workers, managers and administrators, shadow observations of 20 homecare workers |
Not reported |
Transformation of roles |
Eliassen et al. (54) 2018 Norway |
To explore how physiotherapy practice is performed in reablement settings and the content of the service provided to reablement users |
Field study |
4-6 weeks (with some exceptions)* |
PTs |
7 PTs and 7 allied health personnel (+ 7 clients) |
Daily activities were included in reablement plans and could involve getting dressed, showering, and walking to the grocery store. Exercises were provided in all teams, either as mainly standardized exercises or individual adapted exercises. |
Beneficial organization for reaching more users Competencies of allied health personnel Simple exercises were considered beneficial |
Eliassen et al. (53) 2018 Norway |
To explore how the allied health personnel follow up instructions and supervision by PTs in reablement |
Field study |
4-6 weeks (with some exceptions)* |
PTs |
7 PTs and 7 allied health personnel (+ 7 clients) |
Same as Eliassen 2018a |
Competencies of allied health personnel Individually targeted exercises prefered in some teams |
Eliassen et al. (55) 2018 Norway |
To explore the content of PTs’ supervision of home trainers in reablement teams |
Field study |
4-6 weeks (with some exceptions) * |
PTs |
7 PTs and 7 allied health personnel (+ 7 clients) |
Same as Eliassen 2018a |
Competencies of allied health personnel |
Bodker et al. (76) 2019 Denmark |
To explore how transitioning from compensatory care to reablement care is not merely a practical process, but also a deeply normative one |
Etnographic field work |
8 weeks |
OTs |
One municipality, involving 31 older people (of which 8 received reablement) Interviews with 13 HCPs |
Individualised reablement program includes reablement training. Allied health personnel (upon instruction by health professionals) works to re-enable the older person to manage ADLs |
Transformation of roles and mindsets Values/knowledge of PA |
Baker et al. (46) 2001 USA |
To describe the development of a restorative model of home care designed to integrate medical treatments for acute conditions with personal care and rehabilitation for chronic disabilities in order to improve older adults’ functional outcomes. |
Description of design and implementation of a restorative care model |
Mean duration of the Restorative care was 24.8 days * |
Nurses |
Model development within a branch of a homecare agency. Work group included two researchers (RN, PT), two RNs, 2 PTs, two allied health personnel. Staff and six older adults participated in focus groups |
Supporting older adults to perform activities themselves. Help patients safely practice regaining function. Prevention of sedentary behavior. Allied health personnel were trained to help patients follow through on prescribed exercises and gait and transfer training. |
Competencies of allied health personnel Simple exercises were considered beneficial Values/knowledge of PA |
Burton et al. (44) 2014 Australia |
To determine whether a lifestyle and functional exercise program (LiFE) was suitable for delivery in a restorative home care service. |
Feasability study; Pilot intervention study, including interviews with clients and care managers |
Average 7-8 weeks |
RNs |
9 clients |
Exercises incorporated into daily activities. An individually targeted Lifestyle exercise program as intervention, including strength and balance activities; a standardized exercise program as comparative intervention. Manual delivered, including guidance on how to progress exercises |
Simple exercises were considered beneficial Beneficial with written instructions |
Perspectives of family members |
|||||||
Hjelle et al. 2017 Norway |
To explore and describe how family members experience participation in the reablement process |
Qualitative; Interviews (part of larger research programme; Tuntland 2015) |
Max 3 months |
OT |
Six family members (spouse, child or other kinship) |
Same as Tuntland 2015 |
Wanted information about how to support for PA Some relatives missed follow-ups |
Jakobsen et al. (72) 2019 Norway |
To identify how adult children perceive the collaboration between older parents, family members, and HCPs in reablement services. |
In-depth interviews |
4-6 weeks |
PTs |
Eight daughters, six sons and a daughter-in-law of older adults receiving reablement |
Not reported |
Some family members wanted information about how to support for PA Some family members found this responsibility problematic Difficult to facilitate PA as a relative. |
* information from personal contact with author. |