Existing maternity and perinatal data sets in Australia
National Perinatal Data Collection and National Core Maternity Indicators
The National Core Maternity Indicators (NCMIs) provide information on measures of clinical activity and outcomes in relation to maternity care across Australia. The purpose of the indicators is to establish baseline data to monitor and evaluate maternity care in Australia and enable continuous improvement in care. The NCMIs are clinical indicators of maternity care, where a clinical indicator is defined as a measure of the clinical management and outcome of care and is based on evidence that confirms the underlying causal relationship between a particular process or intervention and health outcome (13). The NCMIs are constructed from data items from the Australian Institute of Health and Welfare (AIHW) National Perinatal Data Collection (NPDC), a national population-based collection that provides information on the pregnancy and childbirth of mothers, and the characteristics and outcomes of their babies. The NPDC captures all births in Australia in hospitals, birth centres and the community (14).
Tables 1 and 2 map the NCMIs and NPDC data item against the four values of the national strategy – safety, respect, choice and access.
Table 1: National Core Maternity Indicators mapped to the values’ of the Australian national materntiy strategy
Indicators
|
Safety
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Respect
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Choice
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Access
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Cost Adjustment
|
Antenatal Period Indicators
|
Tobacco smoking in pregnancy:
a. in the first 20 weeks of pregnancy for all women giving birth
b. after the first 20 weeks of pregnancy for all women who gave birth and reported smoking during pregnancy
|
|
|
|
|
X
|
Antenatal care in the first trimester for all women giving birth
|
|
|
|
|
X
|
Labour and Birth Indicators
|
Induction of labour for selected women* giving birth for the first time
|
X
|
|
X
|
|
|
Caesarean section for selected women giving birth for the first time
|
X
|
|
X
|
|
|
Non-instrumental vaginal birth for selected women* giving birth for the first time
|
X
|
|
X
|
|
|
Instrumental vaginal birth for selected women* giving birth for the first time
|
X
|
|
X
|
|
|
Episiotomy for women having their first baby and giving birth vaginally:
a. without instruments to assist the birth
b. assisted with instruments
|
X
|
|
X
|
|
|
General anaesthetic for women giving birth by caesarean section
|
X
|
|
|
|
|
Women having their second birth vaginally whose first birth was by caesarean section
|
X
|
|
X
|
|
|
Birth Outcome Indicators
|
Apgar score of less than 7 at 5 minutes for births at or after term
|
X
|
|
|
|
|
Small babies among births at or after 40 weeks gestation
|
X
|
|
|
|
|
Third and fourth degree tears:
a. for all vaginal first births
b. for all vaginal births
|
X
|
|
|
|
|
*Rather than the whole population, these indicators are measured only for ‘selected women’. This is women whose characteristics indicate they have a lower risk of birth complications and therefore provide a better indication of what are expected outcomes in ‘standard’ cases. Selected women are aged between 20-34 years; gave birth between 37-41 completed weeks of gestation; had a singleton baby who presented in the vertex (head down) position (17)
Table 2: National Perinatal Data Collection Minimum Data Set mapped to Australian national maternity strategy values
Data Item
|
Safety
|
Respect
|
Choice
|
Access
|
Cost Adjustment
|
Birth event—anaesthesia administered, yes/no
|
X
|
|
|
|
|
Birth event—analgesia administered, yes/no
|
|
|
X
|
|
|
Birth event—birth method: Vaginal—non-instrumental; Vaginal—forceps; Caesarean section; Vaginal— vacuum extraction
|
X
|
|
|
|
|
Birth event—birth plurality: Singleton; Twins; Triplets; Quadruplets; Quintuplets; Sextuplets; Other
|
|
|
|
|
X
|
Birth event—birth presentation: Vertex; Breech; Face; Brow; Other
|
X
|
|
|
|
|
Birth event—labour onset type: Spontaneous; Induced; No labour
|
X
|
|
X
|
|
|
Birth event—setting of birth (actual): Hospital, excluding birth centre; Birth centre, attached to hospital; Birth centre, free standing; Home; Other
|
|
|
X
|
X
|
|
Birth event—state/territory of birth
|
|
|
|
|
X
|
Birth event—type of anaesthesia administered: Local anaesthetic to perineum; Pudendal block; Epidural or caudal block; Spinal block; General anaesthesia; Combined spinal-epidural block; Other anaesthesia
|
X
|
|
X
|
|
|
Birth event—type of analgesia administered: Nitrous oxide; Epidural or caudal block; Spinal block; Systemic opioids; Combined spinal-epidural block; Other analgesia
|
X
|
|
X
|
|
|
Birth—Apgar score (at 5 minutes)
|
X
|
|
|
|
|
Birth—birth order: Singleton or first of a multiple birth; Second of a multiple birth; Third of a multiple birth; Fourth of a multiple birth; Fifth of a multiple birth; Sixth of a multiple birth; Other
|
X
|
|
|
|
|
Birth—birth status: Live birth; Stillbirth (fetal death)
|
X
|
|
|
|
|
Birth—birth weight, total grams
|
X
|
|
|
|
|
Episode of admitted patient care—separation date
|
|
|
|
|
X
|
Establishment—organisation identifier (Australian)
|
|
|
|
|
X
|
Female (mother)—postpartum perineal status: Intact; 1st degree laceration/vaginal graze; 2nd degree laceration; 3rd degree laceration; Episiotomy; 4th degree laceration; Other perineal laceration, rupture or tear
|
X
|
|
|
|
|
Female (pregnant)—number of cigarettes smoked (per day after 20 weeks of pregnancy)
|
|
|
|
|
X
|
Female (pregnant)—tobacco smoking indicator (after twenty weeks of pregnancy), yes/no
|
|
|
|
|
X
|
Female (pregnant)—tobacco smoking indicator (first twenty weeks of pregnancy), yes/no
|
|
|
|
|
X
|
Female—caesarean section at most recent previous birth indicator, yes/no
|
X
|
|
|
|
|
Female—number of antenatal care visits
|
|
|
|
|
X
|
Female—parity, total pregnancies
|
X
|
|
|
|
|
Person—area of usual residence, statistical area level 2 (SA2) code (ASGS 2016)
|
|
|
|
|
X
|
Person—country of birth
|
|
|
|
|
X
|
Person—date of birth
|
|
|
|
|
X
|
Person—Indigenous status: Aboriginal but not Torres Strait Islander origin; Torres Strait Islander but not Aboriginal origin; Both Aboriginal and Torres Strait Islander origin; Neither Aboriginal nor Torres Strait Islander origin
|
|
|
|
|
X
|
Person—person identifier
|
|
|
|
|
X
|
Person—sex: Male; Female; Intersex or indeterminate
|
|
|
|
|
X
|
Pregnancy—estimated duration (at the first visit for antenatal care), completed weeks
|
X
|
|
|
|
|
Product of conception—gestational age, completed weeks
|
X
|
|
|
|
|
It can be seen that the NCMI and NPDC data items relate predominantly to issues of safety and largely neglect those of respect, choice and access. Nevertheless, many of the NCMIs have some utility when considering the efficiency and productivity of maternity services.
Labour and Birth Indicators capture a number of common interventions in delivery. Although interventions in delivery are often required to ensure the safety of mother and baby, Australia is known to have a high rate of potentially unnecessary Caesarean sections, induction and episiotomy (15, 16). This can be seen as symptomatic of the medicalisation of the birthing experience and in the context of woman-centred care there is a clear impetus to eliminate unnecessary birth interventions. These labour and birth indicators are therefore highly relevant to include as output variables in efficiency and productivity measurement, as they can provide some indication as to how well a maternity service is providing care that adheres to the national strategy values of safety, respect, choice and access. Maternity services with a similar casemix should exhibit a similar rate of birth intervention. Differences in intervention rates could there indicate a high rate of unnecessary birth intervention in a given service and a deviation from the values and principles of the national strategy.
Birth Outcome Indicators capture important information regarding the physical health of mother and baby following labour and delivery. A baby’s Apgar score assesses the clinical status of a baby immediately following childbirth. Third and fourth degree tears are classified as severe trauma to the perineum and can occur spontaneously or as a result of obstetric intervention during vaginal birth. Birthweight is a key indicator of a baby’s health and is used as measure of health and wellbeing of the mother in pregnancy, as well as an indication of a baby’s chance of survival, health, development and wellbeing (17). The physical health of mother and baby is obviously central to the provision of safe and effective maternity care and these indicators are therefore logical choices for inclusion as output variables in an efficiency and productivity analysis.
The NCMI Antenatal Period Indicators capture maternal behaviours that have been shown to be associated with child health outcomes (13). Smoking during pregnancy is a risk factor for many adverse outcomes in pregnancy, including pre-term birth, placental complications and perinatal death of the baby. Antenatal care in the first trimester is associated with better maternal health in pregnancy, fewer interventions in late pregnancy and positive child health outcomes (13).
Indicators such as these are more appropriately included in an efficiency and productivity analysis as measures of input, rather than output measures. This is because they influence the complexity of care a woman may receive and therefore the resources consumed in delivering this care. E.g. women who smoke or do not receive antenatal care are at higher risk of a number of adverse outcomes in pregnancy, requiring higher complexity and more resource intensive maternity care. Indicators like these relating to maternal behaviours or characteristics are also a reflection of the casemix of any given maternity service. In an efficiency and productivity analysis, input measures can be ‘cost adjusted’ to account for the casemix of a given hospital, which can help distinguish between those maternity services who consume more inputs because they treat more complex patients and those who consume more inputs as a result of technical or allocative inefficiencies. Tables 1 and 2 indicate NCMI and NPDC items that are more appropriately included in an efficiency and productivity analysis as a cost adjustment measure.
The NCMI and NPDC collect a number of data items that can usefully be incorporated as output variables in an assessment of the efficiency and productivity of maternity services. However, this data is largely quantitative in nature and provides little insight into women’s lived mental and emotional experience of birth. Indeed, the national strategy itself recognizes that the maturity and effectiveness of existing administrative data sets can be improved to include the collection of woman-reported outcomes, wellbeing and experiences, e.g. using patient-reported experience and outcome measures.
State-based patient experience surveys
The New South Wales Maternity Care survey collects information from women who recently gave birth in a New South Wales public facility about the care they received. First undertaken in 2015, the survey is repeated every two years. The 2017 survey reflects the experiences of 4,787 women, representing 8% of approximately 62,000 women who gave birth in one of 71 NSW public hospitals in 2017. Results are reported at the hospital level where responses meet a pre-determined response threshold and all responses are incorporated into state-level reports (18). Survey questions relate to women’s experiences of care in public hospitals during various stages of their maternity journey, from antenatal care, care during labour and birth, postnatal care in hospital and follow-up care at home. They relate directly to the national strategy values of safety, respect, choice and access (19).
Queensland undertakes a similar maternity care survey. The Maternity Patient Experience Survey includes a random selection of mothers who gave birth or received care after birth at Queensland public hospitals and birthing centres. Surveys were conducted in 2018-2019, 2016 and 2014-2015. The Maternity Outpatient Clinic Patient Experience Survey includes a random selection of mothers who attended a Queensland public hospital maternity specialist outpatient clinic. Surveys were conducted in 2017-2018 and 2015. For each survey, online facility level results provided to Hospital and Health Services (20). Summary results of the 2017 and 2015 Maternity Outpatient Clinic Patient Experience Survey and the 2014-2015 Statewide Maternity Patient Experience Survey Report are publicly available on the Queensland Health website (20). The 2014-2015 Maternity Patient Experience Survey includes the results of 4,977 interviews completed with mothers who received care in one of 38 facilities across Queensland. Facilities are grouped into five ‘peer groups’ that provide similar services, to allow for comparisons between facilities within each peer group (21). The survey covers a range of issues relating to women’s experiences of antenatal and postnatal care in Queensland public hospitals and like the New South Wales Maternity Care survey there is strong alignment with the national strategy values of safety, respect, choice and access.
Other jurisdictions in Australia also have in place surveys to measure patient experience. Western Australia (22) and South Australia (23) employ randomized surveys to collect and measure data regarding patient experience, but none of these surveys relate specifically to consumers of maternity care. Victoria also employs randomized surveys to measure patient experience, but also includes specialized questionnaires for maternity clients. However, none of these surveys are as comprehensive or as widely reported as the New South Wales or Queensland surveys. Implementation of the New South Wales and/or Queensland Maternity Care survey methodology across Australia would go some way to ensuring that woman-reported outcomes of labour and delivery are represented in national data collections. It would also be of significant utility as a source of woman-reported outcomes for inclusion as output variables in any assessment of the efficiency and productivity of maternity services in Australia.
International Consortium for Health Outcomes Measurement Pregnancy and Childbirth Standard Set
The International Consortium for Health Outcomes Measurement (ICHOM) is a not-for-profit organization that was established to promote and facilitate the global uptake of value-based health care. Value-based health care is a theoretical framework that places patients at the centre of care. It defines value as the ratio of outcomes of care divided by the cost of achieving those outcomes, where outcomes are defined as relevant end results of care from the perspective of the patient. To facilitate the implementation of value-based care, ICHOM works with international Working Groups of clinicians, researchers and patients to define standardized outcome measure sets (Standard Sets) for evaluating value in specific condition areas (24).
ICHOM has developed a Pregnancy and Childbirth Standard Set that identifies 24 outcome measures to evaluate care during pregnancy and up to 6 months postpartum. Specific outcome measures are grouped across four domains: Patient satisfaction with care; survival; morbidity; and patient-reported health and well-being. The Standard Set also includes a list of case-mix factors to allow comparison of outcomes across various patient populations. Table 3 shows the Pregnancy and Childbirth Standard Set outcomes mapped to four values outlined in Australia’s national maternity strategy, and identifies those outcomes that are more appropriately included in an efficiency and productivity analysis as cost adjustments.
Table 3: ICHOM Pregnancy and Childbirth Standard Set mapped to Australian national materntiy strategy values
Measure
|
Safety
|
Respect
|
Choice
|
Access
|
Cost Adjustment
|
Maternal death
|
X
|
|
|
|
|
Still birth
|
X
|
|
|
|
|
Neonatal death
|
X
|
|
|
|
|
Maternal need for intensive care
|
X
|
|
|
|
|
Maternal length of stay
|
X
|
|
|
|
|
Late maternal complication
|
X
|
|
|
|
|
Transfusion
|
X
|
|
|
|
|
Spontaneous pre-term birth
|
X
|
|
|
|
|
Iatrogenic pre-term birth
|
|
|
|
|
|
Oxygen dependence
|
X
|
|
|
|
|
Neonate length of stay
|
X
|
|
|
|
|
Birth injury
|
X
|
|
|
|
|
Health related quality of life
|
|
|
|
|
X
|
Incontinence
|
X
|
|
|
|
|
Pain with intercourse
|
X
|
|
|
|
|
Success with breastfeeding
|
|
|
X
|
|
|
Confidence with breastfeeding
|
|
X
|
X
|
|
|
Mother-infant attachment
|
|
X
|
|
|
|
Confidence with role as a mother
|
|
X
|
|
|
|
Postpartum depression
|
|
|
|
|
|
Satisfaction with the results of care
|
|
X
|
X
|
|
|
Confidence as an active participant in healthcare decisions
|
|
X
|
|
|
|
Confidence in healthcare providers
|
|
X
|
|
|
|
Birth experience
|
|
X
|
|
|
|
A number of the ICHOM measures broadly map to data items collected as part of Australia’s NPDC, such as those related to ‘Survival’, ‘Severe maternal morbidity’ and ‘Neonatal morbidity’. However, measures related to ‘Patient-reported health status’, ‘Role transition’, ‘Satisfaction with care’ and ‘Healthcare responsiveness’ capture directly women’s experiences of pregnancy and childbirth and have no equivalencies in Australia’s national maternal data collection.
Although the ICHOM Pregnancy and Childbirth Set is not utilized at a national level, a number of studies in Australia have verified its utility in measuring the mental and physical health of women during pregnancy and the postpartum period (25, 26). Implementation of the ICHOM Pregnancy and Childbirth Set in Australia would significantly enhance the national maternity data collection and provide a more comprehensive picture of how maternity services across the nation are delivering care in accordance with the values and principles of the national strategy. It would also allow more sophisticated and relevant analyses of the efficiency and productivity of maternity services, allowing for the inclusion of output variables that directly relate to woman’s experience of pregnancy and childbirth.
Constructing an output measure based on current data
Output measures for assessing efficiency and productivity of maternity services in Australia should ideally reflect the values and principles of woman-centred care. Australia’s national maternity strategy clearly articulates Australia’s vision for the provision of woman-centred maternity care based on the values of safety, respect, choice and access. This strategy therefore provides a useful framework to consider potential output measures for assessment of the efficiency and productivity of maternity services in Australia. Ideally, any efficiency and productivity analysis would incorporate output measures that correlate with and indicate how well a maternity service is delivering care in accordance with these values. They should also be able to be applied nationally, using data that is collected and accessible in every state and territory.
With these principles in mind, we have constructed a composite output measure that can be used in assessing the efficiency and productivity of maternity services in Australia. This composite measure consists of antenatal, labour and birth and birth outcomes indicators where data is available from the National Perinatal Data Collection. These measures are shown in Table 4 and are mapped against the four values of Australia’s national maternity strategy: safety; choice; respect; access.
Table 4: Composite output measure for assessing maternity service efficiency and productivity in Australia
|
Values of women-centred maternity care
|
Composite Measure (number of births)
|
Safety
|
Respect
|
Choice
|
Access
|
Labour and birth indicators
|
Birth status: Live Birth
|
X
|
|
|
|
Labour onset type: Spontaneous
|
X
|
|
X
|
|
Birth event: Vaginal, non-instrumental, nil episiotomy
|
X
|
|
X
|
|
Gestational age 37 weeks or greater
|
X
|
|
|
|
Birth outcome indicators
|
Apgar score of more 7 or more at 5 minutes for births at or after term
|
X
|
|
|
|
Birthweight >2,500 grams
|
X
|
|
|
|
Postpartum perineal status: Intact or 1st degree laceration/vaginal graze or 2nd degree laceration
|
X
|
|
|
|