Of the 45 participants consented, 24 (53%) completed interviews by phone within 72 hours of diagnosis; 21 participants could not be reached after having consented to the study. These individuals did not differ in age, sex, or race from parents who participated (data not shown). The mean interview length was 13 minutes and 38 seconds.
Identifying AOM
Symptoms parents often reported included crying, fussiness, sleep disturbance, fever, respiratory and nasal symptoms, decreased oral intake, unaccustomed ear rubbing or tugging (hereinafter referred to as ear tugging) and decreased activity.
Approximately half of parents reported their child displayed ear tugging. Almost all parents who observed ear tugging suspected AOM and cited this behavior as the reason for seeking medical evaluation.
21 (mother, 6 mo): So yesterday, when I noticed she was pulling her ears, I was going to take her to the emergency room, but I knew she had a doctor's appointment today. So that's why I didn't follow-up.
Interviewer: Okay. And so, if you did not have this appointment today, what would have prompted you to go to the doctor's office?
21 (mother, 6mo): Her pulling on her ears
When ear tugging was absent, parents often suspected other acute illnesses as the cause of their child’s symptoms and behaviors, such as the common cold, teething and/or the flu.
Interviewer: Did you think he might have had an ear infection, or you were thinking something else?
18 (mother, 20 mo): No. I thought he had the flu ... He was really sick, but he didn't show the normal signs and symptoms. So, I'm thinking maybe the baby had the flu. They asked me if he played with his ears. I'm like, "No. He didn't– nothing about his ears at all." I didn't think– oh, I was not even thinking that.
43 (mother, 27 mo)
“He sounded a little congested and had kind of like a cough or a cold, what it sounds like. So of course, we just though the flu was coming around again, or the cold was coming around again, second time we had heard. So, we thought: Oh, we'll just kind of try to breeze through as best we can with that. He's also been teething, so we
thought maybe the slight fever he had over the weekend was probably that, possibly,
or something associated with the cold.”
11 (Mother 19 mo)
“I didn't know if it was teething, just the fever. I didn't know. Because he didn't grab his ears or anything, so I wasn't sure if that was it. But he just looked uncomfortable.”
Many parents reported that their child had pain not specific to the ears; some reported ear pain (hereinafter referred to as otalgia). Parents used observable symptoms to infer that their child was experiencing pain. Overwhelmingly, parents identified crying as the primary reason they inferred pain in their child. Some parents noted crying in combination with other behaviors, such as ear tugging and facial expressions, as indicative of otalgia.
30 (Mother, 17 mo)
Yes, I definitely thought she was in pain. And the screaming was a pretty strong indicator that she was in a lot of pain, the poor kid
17 (Mother, 9 mo): Because two nights went by where she was screaming, and then that's when I noticed the ear pulling.
Interviewer: And what was the thing that pushed you to call your pediatrician?
17 (Mother, 9 mo): Worrying that the ear would get worse and her being in more pain.
Interviewer: Okay. And so how could you tell– or, yeah, how could you tell if your child was in pain?
17 (Mother, 9 mo): Because of the look of pain on her face and the crying that went with it.
Interviewer: And so what does that expression look like?
17 (Mother, 9 mo): Just like when your eyes looked concerned.
Parents seemed more confident in their ability to identify an ear infection when their child verbalized their otalgia.
Interviewer: And so how did it feel for you seeing your child go through this?
4 (Mother, 32 mo): It was sad. I was about to cry. That's before he told me what was wrong. Once he told me what was wrong, I was like, "Yeah, he must've got a ear infection."
32 (Mother, 31 mo)
So now that he talks, he's telling me it hurts, so now I can, ‘Oh, okay, we need to go to the doctor's. You've got another ear infection.’ Now, before, when he cried, I didn't know he had it, and he had it, probably, for days. And he didn't talk, so I didn't know what was wrong; he just cried a lot. But now he don't cry a lot; he just telling me what's wrong. So it's a big difference.
Experience caring for a child with AOM
Parents of children with a history of AOM often suspected AOM as the cause of their child’s symptoms, even in the absence of ear tugging. On the whole, these parents exhibited more confidence in their prediction that their child had AOM.
15 (Mother 11 mo with history of AOM)
[He] started out with a runny nose, and then got a cough, and in the past he's had several ear infections, and I waited and waited and waited for it to clear up. It didn't clear up. Then he– I guess two weeks after it began he started not sleeping, so then I was like, ‘Ah I bet it's his ears’… he's had three other ear infections, and that's the only time he doesn't sleep
26- Father, 10 mo with history of AOM
Well, my daughter actually had it, [inaudible]. She used to get them all the time. And it's sort of the same thing. She never used to tug at her ears. She would just spike a fever and get really just lethargic. And when we see the same signs in him, it's time to bring him in
In contrast, if a parent had no history of caring for a child with AOM, and the child did not display ear tugging, the uninitiated parent generally did not suspect AOM as the cause of their child’s illness.
Participant 24- Mother of a 7-month-old with no history of AOM
I actually didn't think that it was an ear trouble. She hasn't been suffering [inaudible] or anything, it's just that she wasn't sleeping. And it just seemed like she was bothered.
Even for parents whose child had a history of AOM, discerning their child had AOM was sometimes difficult when the child’s symptoms were not consistent with their prior episodes of AOM.
Participant 11- Mother of 19-month-old with history of AOM
Interviewer: Okay. And so what led you to think that your child might have some ear troubles?
11: I thought he could because he's had history of ear infections and the cold. Sometimes, like I said, his nose is draining and he gets an ear infection. But he didn't actually grab his ears or pull at his ears or anything. I only found that out whenever they checked them just because of his history.
Symptoms that bothered child vs. bothered parent
Symptoms that most troubled parents were usually the same symptom they believed most bothered their child. This may have been related to parent’s inability to console their child and/or manage their child’s symptoms.
Participant 11- Mother of 19-month-old
Interviewer: And of all the symptoms that you've mentioned, from the cold-like symptoms to the behavioral changes, which ones do you think were the most bothersome to your child?
11: I think the fever, because he normally does not get fevers and he can be sick and completely happy. But with the fever this time, he was way more irritable. I mean, more fussy, cranky. Normally, if he's sick, it doesn't seem to bother him or affect him. But the fever this time definitely changed that.
Interviewer: And of all the symptoms again, which ones were most bothersome to you?
11: I think the fever too, just because it was hard to manage.
Behaviors that led to parental distress
When prompted with “what was it like for you to see your child like this?” parents often replied with emotionally loaded words. Feelings of helplessness and sadness were present in multiple interviews, and most of these interviews featured fussy children who were noted to be difficult to console. Emotional distress frequently appeared to be related to the parent’s inability to manage their child’s symptoms, and/or inability to determine the reason for their child’s symptoms.
Participant 22- Mother of 6-month-old
Interviewer: Okay. And once you noticed that your child– once you noticed her symptoms, what did you do?
22: [He] just was constantly crying. And it's like when they get to be five, six months, you sort of know their cries, and it's kind of like a painful squealing-like-something's-wrong cry. It was pretty much all the time for the most part.
Interviewer: And what was it like for you to see your child like this?
22: Awful. Completely awful. I feel helpless.
Participant 24- Mother of 7-month-old
“It makes me sad. She can't tell me what's wrong. So you're trying everything to figure out what's wrong. Trying to wipe her tears away. Because you don't want nothing to be wrong with your little baby. ‘What's wrong, baba?’”
Parent’s efforts to console their child
Consoling took many forms, such as increased contact, which included picking up, holding, rubbing, rocking, and/or kissing the child. It also included providing the child comfort items such as blankets, stuffed animals, toys, a bottle and/or a pacifier. Parents appeared to give their child attention to quell the child’s perceived frustration and discomfort. Furthermore, parents reported that these efforts often only worked while the parent actively gave the child attention.
Participant 26- Father of 10-month-old
I pick her up. I cradle her, rock her back and forth in my arms. I try to rub her back, give her kisses. I would try to give her a teddy bear or something that maybe that she likes to hold. Try to give it to her. But it's like she doesn't want any of that stuff, and she's really upset
Participant 22- Mother of 6-month-old
Parents typically administered acetaminophen and ibuprofen primarily to reduce their child’s fever, but also to reduce any pain their child may have experienced.
Participant 13- Mother of a 21-month-old
I mean, it was like Wednesday and Thursday was non-stop. She would not stop crying… we would give her the Motrin and it would kind of relieve her. And then it just– it did not really stop. It was very out of character for her.
Participant 4- Mother of a 32-month-old
he's just telling me now when [his ear] hurts, so I'll just give him a Tylenol to help, with his medicine.
Parents that believed their child was experiencing AOM also tried home remedies that they believed would relieve otalgia.
Participant 43- Mother of a 27-month-old
I knew some tricks and trades where if I thought– I was hoping it wasn't another ear infection, but until we got him checked out, when he was kind of spiking that fever off and on Monday again, I was using a warm compress, just to kind of wring out all the water and everything but then put that on the side of his ears to kind of calm or kind of keep him a little bit happier or maybe relieve some of the pressure if it was.
Participant 17- Mother of 9-month-old
Interviewer: Okay. And once you noticed that your child– once you noticed her symptoms, what did you do?
17: Gave her medicine, put in some eardrops, put a warm rag over her ears.
Interviewer: And was this prior to going to the pediatrician?
17: Yes.
Factors associated with the decision to seek medical evaluation
Parents sought medical care when they felt they could no longer manage their child’s symptoms without assistance.
Participant 22- Mother of 6-month-old
This is my third child, and I've been not new to this, so I mean, the fact that I can't really calm him down and comfort him showed that I needed to get more help than just me
Additionally, parents who suspected pain sought medical evaluation to prevent their child from experiencing unnecessary pain.
Participant 17- Mother of 9-month-old
Interviewer: And what was the thing that pushed you to call your pediatrician?
17: Worrying that the ear would get worse and her being in more pain.
Parents most frequently cited fever as the symptom that motivated them to seek medical care. The urgency with which parents sought medical care seemed to be associated with their level of concern accompanying fever in their child.
Participant 26- Father of 10-month-old
As far a runny nose and fussiness and stuff like that, I'd let that go a couple days usually, but once they get a fever, it's like I'll take them in
Participant 18- Mother of 20-month-old
It was really the fever that got me because an average cold, I can take care of that, like a cough, sore throat, stuff like that. But the fever is what would really scare me
Disruption of the child’s sleep also motivated parents to seek medical care. Crying and/or coughing during the night tended to cause parents more concern compared to crying and coughing during the day. Being kept awake at night seemed to mentally tax parents.
Participant 15- Mother of 11-month-old
15: [He] just was still not sleeping and just being fussy during the day and it just– I wasn't sleeping, and so that's when I was like, "I guess I'm just going to have him go checked out," and then, yeah, she said he had a double ear infection today, so.
Interviewer: And did anything else change when things started to get worse?
15: [His] cough was getting worse too. Just sounding more mucusy I guess. Wetter I guess. So that's– I mean, he still hasn't had a fever or pulled on his ears or anything, so.
Interviewer: Okay. And what was it like for you to see your child this way?
15: Oh, it's super sad. For sure. And it just makes for an extremely long day when he doesn't take one single nap and then you're up all night too, so. It is tough.
How parents determine when AOM has resolved
Most parents felt that their child being back to their ‘normal self’ was sufficient evidence of AOM resolution. Only a subset of parents mentioned that a clinician’s opinion would make them more confident that the infection had cleared.
Participant 30- Mother of 17-month-old
Interviewer: So, can you spend some time telling me about how you'd know whether her ear troubles were fixed? What do you think that would look like, a resolved ear infection?
30: Sleeping in her normal patterns again, not touching her ears, no more fevers, and a normal appetite.
Participant 11- Mother of 19-month-old
Interviewer: So could you spend some time telling me about how you would know whether your child's ear troubles are fixed?
11: This time, well, I mean, definitely the fever I'd look for, but also just the follow-up appointment. We come back soon, so just double check. Because like I said, he doesn't get symptoms normally, so we usually have a follow-up just to double check so they can look. But I look for, just in general, him looking like he feels better, eating more. Just back to his normal routine. That usually tells me that he's better.