Teno JM, Clarridge BR, Casey V, et al. Family perspectives on end of life care at
the last place of care. JAMA 2004;291:88-93. doi: 10.1001/jama.291.1.88Castle N. Advance directives in nursing homes: resident and facility characteristics.
OMEGA 1997;34:321-32. doi:10.2190/YKJV-WUXM-EFVFX1TNWaldrop DP, Kusmaul N. The living-dying interval in nursing home-based end-of life
care: family caregivers’ experiences. J of Gerontol Soc Work 2011;54:768-87. doi:
10.1080/01634372.2011.596918Mitchell SL, Teno JM, Roy J, et al. Clinical and organizational factors associated
with feeding tube use among nursing home residents with advanced cognitive impairment.
JAMA 2003;290:73-80. doi: 10.1001/jama.290.1.73Menec V, Nowicki S, Blandford A, Veselyuk D. Hospitalizations at the end of life among
long-term care residents. J Gerontol A Biol Sci Med Sci 2009;64:395-402. doi: 10.1093/gerona/gln034Hockley J, Froggat K. The development of palliative care knowledge in care homes for
older people: the place for action research. Palliat Med 2006;20:835-843. doi: 10.1177/0269216306073111Palliative Alliance. Quality Palliative Care in Long Term Care: Tools & Resources
for Organizational Change. www.palliativealliance.ca Accessed 2017. Parker D, Hughes K, Tuckett A. 2010. Comprehensive Evidence-Based Palliative Approach
in Residential Aged Care: Final Report. The University of Queensland/Blue Care Research
& Practice Development Centre.Kaasalainen S, Sussman T, McCleary L, Thompson G, et al. Palliative Care Models in
Long Term Care: A Scoping Review. Can J Nurs Leadersh, Accepted for publication. Kaasalainen S, Sussman T, McCleary L, Thompson G, et al. A Stakeholder Analysis of
the Strengthening a Palliative Approach in Long Term Care (SPA-LTC) Model. Can J Nurs
Leadersh, Accepted for publication.Sussman T, Kaasalainen S, Bui M, et al. “Now I don’t have to guess”: using pamphlets
to encourage residents and families/friends to engage in advance care planning in
long-term care. Gerontol Geriatr Med2017;3:1-11. doi: 10.1177/2333721417747323Sussman T, Kaasalainen S, Lee E, Akhtar-Danesh N. Condition-Specific Pamphlets to
Improve End-of-life Communication in Long-term Care: Staff Perceptions on Usability
and Use. J Am Med Dir Assoc 2018;20;262-67. doi: 10.1016/j.jamda.2018.11.009Durepos P, Kaasalainen S, Sussman T, et al. Family care conferences in long-term care:
exploring content and processes in end-of-life communication. Palliat Support Care
2017;1-12. doi:10.1017/S1478951517000773Wickson-Griffiths A, Kaasalainen S, Brazil K, et al. Comfort Care Rounds: a staff
capacity-building initiative in long-term care homes. J Gerontol Nurs 2015;41:42-48.
doi: 10.3928/00989134-20140611-01Tashakkori A. & Teddlie C. Handbook of Mixed Methods in Social and Behavioural Research.
California: Sage Publications, 2003.DiCenso A, Hutchison B, Grimshaw J, et al. Health Services Interventions. In: DiCenso
A, Guyatt G, Ciliska D. Evidence-Based Nursing: A Guide to Practice. Missouri: Elsevier
Mosby, 2005. Dick B. Action research literature 2006-2008: themes and trends. Action Research 2009;7:423-441.
doi: 10.1177/1476750309350701Dupuis S, McAiney CA, Fortune D, et al. Theoretical foundations guiding culture change:
the work of the Partnerships in Dementia Care Alliance. Dementia 2016;15:85-105. doi:
10.1177/1471301213518935Shura R, Siders RA, Dannefer D. Culture change in long-term care: participatory action
research and the role of the resident. Gerontologist 2011;51:212-225. doi: 10.1093/geront/gnq099Kelley ML, McKee M. Capacity Development in Participatory Action Research. In: Hockley
J, Froggat K, Heimerl K, eds. Participatory Research in Palliative Care: Actions and
Reflections. UK: Oxford UP, 2013.Kaasalainen S. Improving Pain Management in Canadian Long Term Care Homes. In: Hockley
J, Froggat K, Heimerl K, eds. Participatory Research in Palliative Care: Actions and
Reflections. UK: Oxford UP, 2013.Berta W, Laporte A, Zarnett D, et al. A pan-Canadian perspective on institutional
long term care. Health Policy 2006;79:175-194. doi: 10.1016/j.healthpol.2005.12.006Miller SC, Mor V, Clark M. Reforming long-term care in the United States: findings
from a national survey of specialists. Gerontologist 2010;50:238-252. doi: 10.1093/geront/gnp111Charlson ME, Pompei P, Ales KL, MacKenzie CR. A new method of classifying prognostic
comorbidity in longitudinal studies: development and validation. J Chron Dis 1987;40:373-83.
doi: 10.1016/0021-9681(87)90171-8Lazenby M, Ercolano E, Schulman-Green D, McCorkle R. Validity of the end-of-life professional
caregiver survey to assess for multidisciplinary educational needs. J Palliat Med
2012;15:427-31. doi:10.1089/jpm.2011.0246Sicotte C, D’Amour D, Moreault MP. Interdisciplinary collaboration within Quebec community
health care centres. Soc Sci Med 2002;55:991–1003. doi: 10.1016/S0277-9536(01)00232-5Patton MQ. Qualitative Research & Evaluation Methods. 3rd ed. Thousand Oaks: Sage,
2002.Ouslander JG, Lamb G, Tappen R, et al. Interventions to reduce hospitalizations from
nursing homes: evaluation of the INTERACT II collaborative quality improvement project.
J Am Geriatr Soc 2011;59:745-53. doi: 10.1111/j.1532-5415.2011.03333.xO’Brien M, Rogers S, Jamtvedt G, et al. Educational outreach visits: effects on professional
practice and health care outcomes. Cochrane Database Syst Rev 2007;4:CD000409. doi:
10.1002/14651858.CD000409.pub2Rantz MJ, Zwygart-Stauffacher M, Hicks L, et al. Randomized multilevel intervention
to improve outcomes of residents in nursing homes in need of improvement. J Am Dir
Assoc 2012;13:60-68. doi: 10.1016/j.jamda.2011.06.012Phillips J, West P, Davidson P, Agar M. Does case conferencing for people with advanced
dementia living in nursing homes improve care outcomes: evidence from an integrative
review? Int J Nurs Stud 2013;50:1122-1135. doi: 10.1016/j.ijnurstu.2012.11.001Dwyer R, Stoelwinder J, Gabbe B, Lowthian J. Unplanned transfer to emergency departments
for frail elderly residents of aged care facilities: a review of patient and organizational
factors. J Am Med Dir Assoc 2015;16:551-62. doi: 10.1016/j.jamda.2015.03.007Sussman T, Kaasalainen S, Mintzberg S, et al. Broadening end-of-life comfort to improve
palliative care practices in long term care. Can J Aging 2017;36:306-317Mignani V, Ingravallo F, Mariani E, Chattat R. Perspectives of older people living
in long-term care facilities and of their family members toward advance care planning
discussions: a systematic review and thematic synthesis. Clin Interv Aging 2017;12:475-484.
doi: 10.2147/CIA.S128937Heals D. Development and implementation of a palliative care link-nurse programme
in care homes. Int J Palliat Nurs 2008;14:604-609. doi: 10.12968/ijpn.2008.14.12.32065Morris K, Hockley J, Gibbs M. End of Life Care Medication "As Stock" for Residents
Dying in Nursing Homes: A Project in 3 Nursing Care Homes. Presented at the 13th World
Congress of the European Association for Palliative Care. Prague, Czech Republic,
2013.Caplan GA, Meller A, Squires B, et al. Advance care planning and hospital in the nursing
home. Age Ageing 2006;35:581-85. doi: 10.1093/ageing/afl063Kaasalainen S, Martin‐Misener R, Carter N, et al. The nurse practitioner role in pain management in long‐term care. J Adv Nurs 2010;66:542–551. doi: 10.1111/j.1365-2648.2009.05206.xJensen JL, Travers AH, Marshall EG, et al. Insights into the implementation and operation
of a novel paramedic long-term care program. Prehosp Emerg Care 2013;14:86-91. doi:
10.3109/10903127.2013.83150