The variety of comorbidity and disability in children with CP leads to impairments in QOL. parent /primary care givers report can provide better information to provide needed QOL care.
The Cronbach’s alpha coefficient is used for internal consistency. The Cronbach’s alpha scales ranged from 0.607 - 0.916 which showed good internal consistency and reliability. All domains exceeded the minimum acceptable values for internal consistency (Cronbach’s alpha ≥ 0.60). Test–retest reliability which was checked by the intra-class correlation coefficient (ICC)) ranged from 0.86 to 0.97 for Urdu translated primary caregiver. It was between excellent range. Pearson correlation was used to correlate CP-QOL parent proxy version with GMFCS. There was positive correlation in only one domain i.e., ‘Feeling about Functioning’ in other domains there was negative correlation.
Regarding internal consistency, The Cronbach’s α in original version, reported by water,s et all. was ranges from 0.74 to 0.92, and for Chinese version ranges from 0.78 to 0.91(14) and for Spanish version ranges from 0.75 to 0.91(15). In Persian version the pain domain had 0.61 all other ranges from 0.78 to 0.87(16). In Nepalis version pain had 0.58, participation had 0.68 and all other ranges from 0.71 to 0.84(17). In Arabic version emotion 0.62 and family 0.63 all other ranges from 0.74 to 0.93(10). In current Urdu version access to services had 0.60 and all other ranges from 0.71to 0.94, which is compare able with original and all other translated versions, showing good internal consistency.
For test-retest reliability in English version the ICC ranges from 0.76 to 0.89, in Chinese version ranges from 0.86 to 0.97 (14), and in Nepalis version ranges from 0.82 to 0.91(17) and In Arabic version ranges from 0.82 to 0.97 (10). In Persian version ICC for emotional wellbeing was 0.47 and for access to services was 0.57 all other domain ranges from 0.71 to 0.84 (16). In Turkish version ranges from 0.82 to 0.97(18). in current Urdu version the ICC ranges from 0.84 to 0.97, it is showing excellent test-retest reliability, also comparable with other translated versions.
There is negative correlation between CPQOL domains and GMFCS in Chinese and Persian version(14, 16). In Spanish version There is negative correlation between social, emotion, Feeling about Functioning and Pain and Impact of Disability domains and GMFCS(15). In current Urdu version only ‘Feeling about Functioning’ has positive association with GMFCS which is also comparable with other translated versions.
The potential determinants like physical health, motor function and social class etc. effect the QOL of CP child. Gross motor function is a good predictor of physical health part of QOL of CP child(19). Manjnemer and schnieder et.all determine that due to physical limitation of CP child cause limitation in outdoor and indoor physical activity(20, 21). Current study shows that lower the QOL of CP child more is the motor disability.