In total, twenty-seven respondents were recruited, but five out of 27 asked to withdraw from interviews halfway because they failed to give thoughts of ethical topics. The AIDS-related working experience of the remaining 22 informants ranged from 0.5 to 14 years (Mean = 6.61, SD = 3.91), and the duration of interview ranged from 14 to 66 minutes (Mean = 24.62, SD = 12.48). Among the 22 participants, five were physicians while 17 were nurses. Coincidentally, all the physicians were male, and nurses were female. The AIDS-related working experience of the physician participants ranged from 2.5 to 12 years (Mean = 6.40, SD= 3.63) and their interview duration ranged from 16 to 66 minutes (Mean = 35.06, SD = 18.79). The AIDS-related working experience of the nurse participants ranged from 0.5 to 14 years (Mean = 6.68, SD= 4,12) and their interview duration ranged from 14 to 35 minutes (Mean = 21.55, SD = 8.50). The average interview duration of physicians (male) was longer than that of nurses (females) (t=2.345, P=0.029).
Three themes were identified: (1) common ethical dilemmas experienced by health professionals; (2) factors influencing ethical judgment: emotion, gender, occupation and difficulty in balancing different roles; and (3) ethical motivations, with three sub-themes identified.
Common ethical dilemmas experienced by health professionals
Only three out of 22 respondents described the ethical dilemmas they encountered in clinical practice. The common ethical dilemma described was about the contradiction between the patient’s right to keep confidentiality and relatives’ right to know the truth. One participant expressed her quandary as follows:
It’s a special disease, so patients usually hold the infection status back from their relatives. So many relatives will come and ask us about the patients’ disease and question why it takes so long to recover. We really feel embarrassed about these questions. ... Because keeping patient’s confidentiality may be detrimental to public prevention, while disclosing the patient’s condition indicates disrespect for the patient. (Participant 23, nurse)
Factors influencing ethical judgment
Based on the interviews, participants’ ethical judgment was found to be influenced by four factors: difficulty in balancing different roles, emotion, occupation and gender.
Emotion
The phenomenon that individual emotion overrode professional ethics appeared among several interviewees. For example, when given a scenario about encountering a friend dating an HIV-infected patient (Dilemma 1, Appendix), an informant discussed an intentional violation of patient confidentiality in order to keep personal loyalty to friends. She said
I will tell my friend about the patient’s condition immediately (with an embarrassing laugh), and restrain their intimacy with each other. Being friends is allowed, but sexual relationship is banned. After all, I don’t want my friends to get infected. (Participant 18, nurse)
Moreover, emotion played a key role in ethical judgement in some situations. For example, some informants demonstrated an unwillingness or preference to distribute limited medical resources to some specific HIV-infected patients (Dilemma 2, Appendix) because of individual attitudes towards those patients. One informant stated:
I sympathize with the children infected with HIV via mother-fetus transmission because they have no choice. Drug addicts really repel me for their immorality. ... I prefer to distribute the bed to the teenager because he’s younger and there is hope and significance in treating him. And I am completely unwilling to distribute it to the drug addict because he deserves what he gets. (Participant 2, doctor)
Occupation and gender
Due to the complete overlap between the participant gender and occupation (where all males were doctors and all females were nurses), it is difficult to distinguish the influence of occupation from gender. In the interviews, physician (male) respondents make ethical judgement from the perspective of ethical principles, whereas nurse (female) respondents from the perspective of emotion. For instance, considering the dilemma in which relatives require physicians/nurses to conceal the patient’s critical condition from the patient (Dilemma 4, Appendix), physician respondents took the patient’s right into consideration while nurses paid attention to the patient’s feelings. The distinction was demonstrated below:
We hope not to conceal the patient from his/her condition. Life should be held by the patient’s own hand; if we discuss therapies with his/her relatives, his/her life will be controlled by others. (Participant 27, doctor)
If we tell the patient about his/her real condition, he/she may be so stressed that he/she could die earlier. (Participant 16, nurse)
Furthermore, compared to doctor respondents, many nurses demonstrated a preference for shifting the ethical-decision making responsibility to doctors. They attributed this behavior to the traditional impressions of nurses (nurses just follow doctors’ instructions) in China. One nurse expressed her quandary as follows:
We will turn to doctors when facing any difficulties in decision-making. Because patients always think we nurses just obey the doctor’s advice to give injection or urge them to pay fees. They trust doctors more. (Participant 5, nurse)
Difficulty in balancing different roles
Health professionals are not only advocates for their patients but also guardians of public health. At the same time, they are also individual people. These roles will inevitably conflict with one another in clinical practice, increasing the difficulty of making ethical decisions. When confronting ethical dilemmas, they have to strike the right balance. For example, interviewees were asked what they would do about the following scenario (Dilemma 1, Appendix), “You have suggested that a patient in your ward disclose himself/herself to his/her relatives and partners, but you often come across the patient hanging out with different young girls/boys, and they look intimate. One day you encounter the patient dating a girl/boy again. What will you do?” One informant said:
It’s illegal for HIV-positive people to spread disease on purpose. So if I come across that kind of patient hanging out with a girl, I will privately remind him of his duty to prevent HIV transmission and the ways of prevention (by phone or by an online chatting tool or face to face talking if possible). Because if you talk with the patient in public, you will break the regulation of patient confidentiality according to the professional codes of conduct. We health professionals are not supposed to judge the patient, but are responsible to inform him of his responsibility to protect others from infection. (Participant 25, nurse)
Although 2/3 of respondents struggled to find a balance among those roles, some of them unintentionally violated ethical principles. For example, a nurse who misunderstood the principle of patient confidentiality thought that she obeyed the rule as long as she kept the patient’s HIV-infection status confidential. When being asked what to do if she was encountering one of her friends dating an HIV-positive patient (Dilemma 1, Appendix), she made such a reaction:
It violates professional codes of conduct if I disclose the patient’s infection. However, if it’s my friend who hangs out with the patient, I will advise her to keep away from him by sharing or tampering some of the patient’s private information. For example, (I may) deceive her by identifying another contagious disease like tuberculosis (that her partner has). (Participant 23, nurse)
Ethical motivations
Informants demonstrated three kinds of ethical motivations in the interviews: to protect their own interests; to safeguard others’ interests; and to obey ethical principles, regulations or professional conduct of codes.
To protect health professionals’ interests
In the interviews, a few informants showed concern about their own interests in the EDM process. The rationale for this motivation was to protect themselves from medical conflicts. This could be implied from their answers to different scenarios.
When presented with the dilemma about what to do when visitors ask questions about the patient’s diagnosis, one participant stated:
(I would like) To protect the patient’s privacy. And it’s also to protect ourselves. Out of the mouth comes evil. (Participant 16, nurse)
When asked about what to do if a dying patient’s relatives required all the health professionals to conceal the patient’s terminal condition from the patient even if the patient looks optimistic, (Dilemma 4, Appendix), several informants pointed out the irrationality of ignoring patients’ autonomy, but they chose to keep secrets from patients to avoid medical conflicts (the ownership of a dying patient’s autonomy is a common cause of medical conflicts in China; according to Chinese tradition, the caregiver’s voice should be mainly taken into consideration). They said:
It is absolutely improper for the doctor to conceal information from the patient. He has the right to know his condition. However, we did defer to the relatives’ request to keep the secret from the patient (with a forced smile). But anyway, the treatment will still be as usual. (Participant 24, doctor; Participant 27, doctor)
Also worth noting, for this scenario, one participant said:
It’s unnecessary to tell the patient his/her condition if their relatives demand that it be concealed. Because if the patient knows his/her condition, he/she will be too depressed to cooperate with us. (Participant 10, nurse)
To safeguard others’ interests
This ethical motivation was frequently expressed by the interviewees. They took other people into consideration in the EDM process, such as their patients, the clients’ families, or all of society. For example, when presented with a scenario in which the caregiver for an end-of-life HIV-infected patient insists on the use of ineffective treatment (Dilemma 5, Appendix), participants’ considerations were:
Treatment for a terminal patient is necessary. While the treatment may be futile for him/her, it can comfort his/her family. (Participant 20, nurse; Participant 26, nurse)
To obey ethical principles or professional conduct of codes (rule guided)
Rule-guided motivation was widely mentioned in the interviews. Informants with rule-guided motivation gave priority to professional codes of conduct or regulations in the EDM process. For instance, when asked what to do if beds are limited (Dilemma 2, Appendix), one participant said:
I will distribute the limited beds according to the urgency of the case or the order of arrival. (Participant 5, nurse) (Essentially this is triage, which is part of the responsibility of many health professionals)
When participants were asked what they would do if visitors want to know the patients’ diagnosis (Dilemma 4, Appendix), one participant expressed:
I won’t tell any visitors the patient’s condition. Regulations on AIDS Prevention and Treatment stipulate that all units and individuals should never disclose patients’ disease. (Participant 3, doctor)