Membership of the Expert by Profession meeting
Six out of seven invited experts in rehabilitation or exercise science attended the EbP meeting. The EbP group included a clinical physiotherapist, research physiotherapist, a higher degree physiotherapy graduate with a specialist interest in PAE and three exercise scientists with expertise in physiology, muscular performance and clinical populations. The Managing Director of the PAE equipment manufacturer attended the meeting to answer any queries, observe the discussion and capture insight into the perspectives of the invited experts.
Table 2
Attendee I.D.
|
Profession
|
Longevity of experience (years)
|
Gender identity
|
Specialist interest
|
Highest qualification
|
P1
|
Physiotherapist
|
19
|
Female
|
Neurological rehabilitation and technology
|
MSc
|
P2
|
Physiotherapist
|
3
|
Female
|
Rehabilitation and PAE
|
MSc
|
P3
|
Physiotherapist
|
29
|
Female
|
Neurological rehabilitation
|
MSc
|
ES1
|
Exercise scientist
|
18
|
Male
|
Physical activity for special populations
|
PhD
|
ES2
|
Exercise scientist
|
10
|
Male
|
Clinical exercise physiology
|
PhD
|
ES3
|
Exercise scientist
|
11
|
Male
|
Neuromuscular physiology
|
PhD
|
Membership of the Expert by Experience meeting
Three out of five invited service users with a diagnosis of stroke and experience of using PAE machines attended the EbE meeting. The three attendees of the EbE meeting were female with hemiplegic impairment following stroke. Detail regarding experience of PAE is detailed in Table three.
Table 3
Attendee number
|
Age
|
Time since stroke
|
Gender identity
|
Impairment
|
Functional Ambulation Category
|
Experience of PAE*
|
E1
|
76
|
12 years
|
Female
|
Left hemiparesis
|
2/5
|
1 session per week for previous 6 months
|
E2
|
67
|
5 years
|
Female
|
Right hemiparesis and aphasia
|
3/5
|
2 sessions per week for previous 6 months
|
E3
|
56
|
4 years
|
Female
|
Left hemiparesis
|
4/5
|
2 sessions per week for previous 6 months
|
*PAE: Power Assisted Exercise
Group discussion
Four content domains were identified through analysis of the written notes and transcripts captured during steps tree, four and five of the NGT meetings. These were; 1) software and interface, 2) exercise programme, 3) machine and accessories, and 4) setting and service. The features suggested by the expert groups associated with each of these categories are detailed in Table Four. Priorities identified across both groups are indicated in bold font.
Table 4
Features for PAE suggested by the expert groups
|
Category
|
Subcategory
|
EbP Priority*
|
EbE Priority**
|
F
O
U
R
D
O
M
A
I
M
S
|
Software and Interface
|
Interface
|
User friendly
Clear visual display
Fun and motivating
Gamification
Demonstration video
|
User friendly
Clear visual display
Easy to reach
|
Feedback
|
Inter-session comparison
Meaningful
Individualised
Watts and power generated
Heart rate monitoring
Symmetry of effort
Baseline comparison
|
Inter-session comparison
Meaningful
Individualised
Sensitive to small effort
Accurate and continuous
Generate digital record
Calculated calorie expenditure
|
Exercise programme
|
Movement
|
Functional and efficient
Simple patterns
Goal orientated
Adjustable speed
Reciprocal movement
Machine initiated
Optimal limb alignment
Resisted movement option
|
Functional and efficient
Simple patterns
Goal orientated
Adjustable speed
Reciprocal movement
Multiple movements
|
Physiological demand
|
Improve motor control
Soft tissue stretch
Decrease hypertonicity
Physiological overload
Cross education
Eccentric and concentric
Aerobic demand
Progressive trajectory
|
Improve motor control
Soft tissue stretch
Decrease hypertonicity
Manageable duration
|
Machine and accessories
|
Accessibility
|
Safe transfer on and off
Hemiplegia friendly
Fits with transfer aid equipment
|
Safe transfer on and off
Reachable components
Able to access independently
Height adjustable
|
Accessories
|
Bespoke limb support
Quick release components
|
Bespoke limb support
Quick release components
Secure walking aid storage
Reach bar to secure balance
|
Setting and service
|
Team
|
Good knowledge of equipment
Ability to educate users
Ability to support goal setting
Ability to manage expectations
|
Good knowledge of equipment
Available to help
Understand movement patterns
Understand limited mobility
|
Environment
|
Client centred service
Social and peer support
|
Client centred service
Integrated therapy service
|
EbP*: Expert by Profession
EbE**: Expert by Experience
1. Software and interface
This domain summarised the content relevant to the suggested features, functionality and aesthetics of the user interface to enable the user to engage in programme selection and receive feedback on their exercise performance. There were two subcategories; a) interface and b) measurement of performance.
a.) Interface
A user-friendly visual platform for the software was prioritised by both expert groups and the EbE attendees highlighted the need to be able to reach the interface from either the right or left side. The EbP group emphasised the importance of a fun and motivating interface using 21st century technology, and potential for gamification of exercise through the interface.
b) Measurement of performance
Comparison of performance between sessions was identified as a priority feature by both groups. Amongst the EbP group, the exercise scientists emphasised the importance of inter-session comparison and identified several options for units of measurement including watts, power, range of movement, heart rate and calorie expenditure. However, it was acknowledged that values such as watts and power may not be meaningful to end-users. The EbE group also identified the potential value of inter-session comparison;
“If there was something that kept…nowadays you would expect something computerised, technology. You’d log in …. it would have kept the data for you. Week by week.” (EbE 2)
The physiotherapists in the EbP group specifically emphasised the potential value of feedback on symmetry of detected effort.
2. Exercise Programme
This domain encompassed the exercise stimulus created by the machine and the exercise programme relayed through the interface. There were two subcategories; a) movement stimulus and b) physiological demand.
a) Movement stimulus
Functional, simple and efficient patterns of assisted movement were prioritised by both expert groups. The physiotherapists in the EbP group and EbE members highlighted the importance of machine-initiated movement for people with neurological impairment and suggested that the perfect machine would facilitate good alignment and direction of movement. The physiotherapists in the EbP group and EbE attendees identified reduced hypertonicity as desired response to the exercise programme.
“The machines need to be encouraging me to focus on extension because obviously flexion is like, well I do it far more than I want to…. I would like to see that reflected in the way that the machines work, and record the effort so you could actually do more of that which I want to do, not this (indicates flexion) because I do that plenty.” (EbE 3)
The exercise scientists suggested that the option to progress from assisted to resisted movement would be an additional asset to align with overload principle of training. The EbP group identified those machines which assisted trunk movement as important as they enabled a stretch which would not be possible to achieve independently.
“Well that one (side bend stepper) did so much, I was so thrilled with it that I said could she put it on for a couple minutes more? Because, from my physio, I know that my back needs stretching. Because otherwise the muscles just tighten up.” (EbE 1)
b) Physiological demand
The attendees of the EbP group emphasised the importance of creating physiological overload to stimulate adaptation to the physical demand of the exercise. Improvements in various aspects of muscular performance were specifically highlighted by the exercise scientists, alongside the option to adapt the target intensity according to fluctuations in user wellbeing;
“There needs to be options for progression and regression,” (ES2)...“Yes, so not because you can’t be bothered today but if they’ve got other issues and comorbidities and today is a bad day but they still want to be able to exercise.” (P1)
3. Machine and Accessories
This domain was emphasised by the EbE group; the EbP group also highlighted the importance of safe and accessible machines. This domain is subdivided into two categories; a) accessibility and b) features and accessories.
a) Accessibility
The importance of being able to safely transition on and off the machines with minimal assistance was emphasised by both groups. The physiotherapists in the EbP group specifically suggested a hemiplegia friendly design with equal access from either side and safety features to minimise risk of injury. The EbE group wanted the machines to be height adjustable, to enable easier mount and dismount from the seated equipment.
“I’m only five foot two inch, I need a step to get on some of the machines, getting on can feel like a workout in itself.” (E3)
b) Features and accessories
Bespoke support structures for the limbs, hands and feet were suggested by both groups alongside the importance of user-friendly, removable attachments for the limbs. The physiotherapists from the EbP group emphasised the need for effective support of posture and alignment. Additional features suggested by the EbE group included secure walking aid storage and a reach bar to enable users to secure their balance whilst mounting and dismounting the equipment.
4. Setting and service
Attendees of both groups indicated the importance of types of setting and service where PAE for PwS may be offered and another category emerged as a result: a) team and b) environment.
a) Team
Both groups identified the importance of a skilled team to support users during their programme of PAE. Essential skills of a service provider team identified by the EbE group included knowledge of the machines, movement patterns and the availability of staff or volunteers to provide assistance when required. The EbP group identified the ability to educate, provide reassurance and support realistic goals.
b) Environment
A client centred service which was adapted to the needs of each individual was highlighted as important by both groups.
“Well, sometimes, the helpers come to help me, and I’ve finished on one machine and they want to go straight onto the next…and I say I’m sorry, I’ve got to rest for a minute. Because I can’t rush from one thing to another. I need the time to get around. And then I’m aware that someone else is obviously waiting for your machine.” (EbE1)
The EbE group also identified the value of the physiotherapy led guidance when using PAE machines. The EbP group emphasised the importance of social and peer support in exercise venues and the creation of an atmosphere which facilitates the development of friendships between users.
Machine preferences
The anonymised machine preferences indicated by tokens placed on a photograph of each machine were recorded and the votes from the EbE (n=3) group were multiplied twofold to ensure equal representation of machine preference with the EbP group (n=6). The three most popular machines were the Cross Cycle (23), Chest and Legs (22) and the Rotatory Torso (18). The least popular machines were the Tummy Crunch (4) and Seated Abductor (4).
The Side Bend Stepper was most popular amongst the EbE group, gaining 7 out of the total 30 tokens available. However, only 3 tokens were placed on this machine from the EbP group making it the fourth ranked machine overall. All nine machines gained a minimum of two tokens from the EbE group whereas the Tummy Crunch and Seated Abductor gained no tokens from the EbP group. The machines which predominantly assist limb movement gained the majority of votes from the EbP group in contrast to the user by experience group who indicated more preference for those machines which assist movement of the trunk. The ranking of machines is displayed in Table Five.
Table 5: Token allocation per machine