Participants
The number of patients approached was 2,331 and the number of patients participated and completed the questionnaire was 1,032. The response rate was 44.3%. More than one-third of our participants were older than 80 years old. Around half of them were male (53.5%) and most participants received some level of education (80.9%), were married (67.4%), had family income below $6,000 (61.7%), had three to four diseases (60.9%) and no health insurance (90.9%). Around 17% were receiving comprehensive social security assistance (CSSA). The vast majority (92.2%) reported that they had a regular health care facility to visit, but only 28.3% reported that they had a regular doctor (Table1).
The percentage of missing data for primary outcomes:“Deciding a treatment according to your will and get you involved” was (952-897)/952=5.7%;“Do you have a treatment plan for your chronic conditions” was (1032-1025)/1032=0.6%;“How confident are you that you can control and manage your health problems” was (1032-1019)/1032=1.3%.
Proportion of presence of shared decision making and a treatment plan (table 1)
Only 35.8% of participants reported that their TPs were decided according to their own preferences or were involved in making it but 82.1% of participants reported the presence of a TP.
The proportion of presence of important components to shared decision making varied: 91.2% of participants believed that their doctors know their medical information; 72.2% felt that the consultation time was enough; 27.8% reported that their doctors encourage questions; 74.8% reported that explanation was easily understandable; 22.8% participants recalled that their doctor once discussed with them about their priorities and goals; and 27.4% reported that alternative treatments were discussed. Most participants (72.4%) felt the TP, when present, helped them to manage their chronic conditions. (appendix 2)
Factors associated with the presence of shared decision making and a treatment plan
The presence of the SDM process was not associated with any demographic data, including age, sex, marital status, the presence of health insurance or a regular doctor, number of diseases and where they received their follow-up (table 2), thus the multivariate model for SDM was not applicable. In the univariate model, the presence of a TP was more likely if the participants reported a regular doctor/facilities (OR=2.203; p =0.004), if the patient was recruited in GOPCs (SOPC: OR=0.538, p=0.009; GDH: OR=0.554, p=0.001) and if the patient received education up to secondary school level (OR 1.569; p =0.049); conversely, treatment plan was less common in participants aged 80-84 (OR=0.429; p=0.010) (table 2). In the forward logistic model, only having follow-up by a regular doctor or in a regular facilities (OR=1.980; p=0.013) and being recruited in a GOPC (SOPC: OR=0.608, p=0.041; GDH: OR=0.585, p=0.003) remained significant predictors for the presence of a treatment plan (table 3). Again, the number of diseases did not affect the presence of shared decision making or a presence of treatment plan. (table 2)
Similar analysis was conducted for other components of the SDM process. In the multivariate models, participants whose monthly family income more than $30,000 were more likely to be offered alternative treatments (OR=2.718, p=0.008), those with monthly family income between $0-$6000 were more likely to be discussed with their goals or priorities (OR=3.196, p=0.001) and given instructions about symptoms and further care (OR=2.012, p=0.004), as well as those with monthly family income was $6000-$17999 (OR=2.398, p=0.025; OR=2.124, p=0.007); patients who had more than 6 chronic diseases were more likely to be given clear instructions about symptoms and care (OR=2.121, p=0.007), but less likely to have things explained to them in an easy to understand manner (OR=0.439, p<0.0001); patients with regular doctors were more likely to report that the doctor know important medical information (OR=2.406; p=0.021) and that they were encouraged to ask questions (OR=1.387, p=0.037); participants who were recruited in GDH were more likely to be encouraged to ask questions (OR=1.440, OR=0.022), but less likely to have the doctor know important medical information (OR=0.138, p=<0.0001), spend enough time with them (OR=0.585, p=0.013), explain things clearly (OR=0.628, p=0.008), and they had less confidence about their own treatment plan (OR=0.491, p<0.0001).
Association between presence of shared decision making/treatment plan and patients’ confidence to manage disease
Overall, a quarter of participants (25%) felt not confident enough to manage their health problems (Table 1). Lack of confidence was associated with larger number of diseases being a female, low education attainment, being recruited from SOPC or GDH, and lack of health insurance (Table 2). In the forward stepwise multivariate model, lower educations, having more than 6 chronic diseases, and being recruited from SOPC or GDH remained significant predictors for lower confidence to manage health problems (table 3). The presence of a treatment plan enhanced patients’ confidence to handle their illnesses (OR=2.503; 95%CI: 1.715, 3.653) in the multivariate logistic regression model (Table 4); the presence of a shared decision making process also enhanced patients’ confidence (OR=1.298), however it was not statistically significant (p=0.126).